seen the rheumy nurse

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jenzie06
jenzie06 Non-active member Posts: 708
edited 14. Jun 2009, 13:36 in Living with Arthritis archive
My OH and I went to see the rheumy nurse today and I ended up having a steroid injection. But I left feeling pretty low. I don't have 'classic' RA, my joints are painful but they are not always swollen. I've recently given up work until I feel better but I'm not taking any decent meds as we want to try for a family in the near future. There's not a lot the hospital can do but I have no support with the GP and I feel like I'm wasting the hospital's time. I have a positive CCP so I definately have RA and I also have Fibro but they're also knocking around the idea of Gout. I really wish they would make up their minds as I've had this for 11years!! Everyone at the hospital are really nice and friendly but all this indecision and 'not ticking all the boxes of RA' makes me feel like a complete fraud.
Not sure what I'm moaning about really, just feeling low. Sorry.

Comments

  • vonski
    vonski Non-active member Posts: 1,292
    edited 30. Nov -0001, 00:00
    Hi Jenzie

    You are right to have a bit of a moan with all you are going through. You are not wasting anyones time so don't think you are, you just want to feel better. I'm in a similar situation and have seen various consultants and now at last I think I'm being referred to a Rheumy. What meds have you been given? If they don't help push your GP to try some diifferent ones, there are lots about so worth a try.

    Don't forget to take it easy for a few days after your injections so you get the benefit.

    Hope you get a good result in the end, try and keep your chin up but I know it's hard. Come here and moan if you want to, it might make you feel better :)

    Love
    Vonski x
  • woodbon
    woodbon Non-active member Posts: 4,969
    edited 30. Nov -0001, 00:00
    I dont have RA, I have OA, and I'm a lot older than you, 54, but I can understand some of your frustrations and I think a lot of us feel the same, that we're waisting time, but the truth is we are not well and its important that we get treatment to help us cope. I'm sure the medics wish they could do more for you, especially as you want to have children.

    If you feel that your GP isn't right for you, can you see a different one in your practice who might be more sympathetic. Or even change practices, if thats possible. Relationship with your GP is important, as they are your first port of call for all health problems.

    I really hope all goes well for you. Their are lots of young Mums on this site who also have children. Don't give up. Love Sue
  • michael7272
    michael7272 Non-active member Posts: 11
    edited 30. Nov -0001, 00:00
    Post deleted as it is aiming to sell a miracle juice

    Moderator
    YEH
  • lindalegs
    lindalegs Member Posts: 5,399
    edited 30. Nov -0001, 00:00
    Please ignore this Salesman everyone he's just after your money.
    :x :x

    Legs :x
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • topgirl
    topgirl Non-active member Posts: 290
    edited 30. Nov -0001, 00:00
    Sorry to hear you are feeling low.
    I to have RA and in took over a year to diagnois( they thought it was a torn cartlide in my knee)...as mine is seronegative...
    I know what you mean about feeling a fraud as thats sometimes how i feel too...but believe me if your seeing a rumy nurse YOU have got it....At least you are in the right place to get treatment....
    WE all believe you too....
    As above, please dont buy anything that people are selling on this site....just take advice from rumy and rest....
    I know i have had lots of support on this site.....
    x
  • page35
    page35 Non-active member Posts: 1,081
    edited 30. Nov -0001, 00:00
    jenzie06 wrote:
    My OH and I went to see the rheumy nurse today and I ended up having a steroid injection. But I left feeling pretty low. I don't have 'classic' RA, my joints are painful but they are not always swollen. I've recently given up work until I feel better but I'm not taking any decent meds as we want to try for a family in the near future. There's not a lot the hospital can do but I have no support with the GP and I feel like I'm wasting the hospital's time. I have a positive CCP so I definately have RA and I also have Fibro but they're also knocking around the idea of Gout. I really wish they would make up their minds as I've had this for 11years!! Everyone at the hospital are really nice and friendly but all this indecision and 'not ticking all the boxes of RA' makes me feel like a complete fraud.
    Not sure what I'm moaning about really, just feeling low. Sorry.

    Hi jenzie
    Snap i have RA painfull joints but not always swollen, hurt like mad sometimes and dont alwalys have full movement but doc done 2 lots of bloods and told me i dont have arthur. i kept going back as still hurting and got refered to rhumy who found out i have RA cos i have very strong CCP.
    Anyway your not a fraud nor am i you couldnt make it up if you tryed and who would want to.
    if your not going to try for children for a few years it might be good to get some stronger meds, i think some drugs you have to stop taking 6 months before TTC.
    i hope the injection helps you, i had 1 and it was great for a few weeks some people it lasts a few months :D
    if you feel like having a moan feel free to PM me i really dont mind.
    Take care
    Page :D
    PS i am 33 years old

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