SULPHASALZINE

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jillydog61
jillydog61 Non-active member Posts: 33
edited 5. Dec 2009, 14:58 in Living with Arthritis archive
Hello, hope somebody can help. I am on mtx and steriods and have been put on sulphasalazine. Taken it for 3 weeks and have the most awful headaches. Verging on a migrane.
Nurse has told me to take 2 a day and see how i get on????? NOT GOOD going to stop taking it

Has anybody been in the same situation and what have they given instead. Wish i could find something that works, feeling very low at the moment :(:cry:

i would prefer the injections, does anybody else prefer the injections to the tablets and has it worked?????

Thank you Gill

Comments

  • bailey27
    bailey27 Non-active member Posts: 689
    edited 30. Nov -0001, 00:00
    Hi
    I havent had the sulphasalazine injections but am currently on the tablets. I have found that they make me feel a bit spaced out but dont really get a headache as such.
    Sorry can't be anymore help.

    p.s. I havent noticed an ounce of improvement from being on the sulphasalazine but have only been on them for 6 weeks so it may take more time.
  • jillydog61
    jillydog61 Non-active member Posts: 33
    edited 30. Nov -0001, 00:00
    bailey27 wrote:
    Hi
    I havent had the sulphasalazine injections but am currently on the tablets. I have found that they make me feel a bit spaced out but dont really get a headache as such.
    Sorry can't be anymore help.

    p.s. I havent noticed an ounce of improvement from being on the sulphasalazine but have only been on them for 6 weeks so it may take more time.

    Thank you for the reply. A lady that i work with has been on sulphasalazine for a few months and has noticed no improvement at all. Luckily she also has no side effects.
  • bevman
    bevman Non-active member Posts: 107
    edited 30. Nov -0001, 00:00
    jillydog61 wrote:
    Hello, hope somebody can help. I am on mtx and steriods and have been put on sulphasalazine. Taken it for 3 weeks and have the most awful headaches. Verging on a migrane.
    Nurse has told me to take 2 a day and see how i get on????? NOT GOOD going to stop taking it

    Has anybody been in the same situation and what have they given instead. Wish i could find something that works, feeling very low at the moment :(:cry:

    i would prefer the injections, does anybody else prefer the injections to the tablets and has it worked?????

    Thank you Gill
    hi i have been on sulphasalazine for over twelve months and found that they have not worked .I was then put on embrel anti TNF and i also take MTX injection once a week i also take predesalone.I have severe RA when i asked about coming off sulphasalazine my rummy nurse said no because ir could be them that is controlling my RA at the moment i have never had any headaches thoe.
    take care laurence
  • skezier
    skezier Non-active member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Gill,

    I been on the sulfa since June (I think it was June) and used to get the horriblist of headaches but thankfully they have stopped now. It doesn't seem to have been too good in how it worked for me, it didn't for ages then my rumo upped the dose. It worked for a few weeks but doesn't seem to be now. It might be worth asking if you could lower the dose for a min, then after you have adjusted go up to your proper dose? I really hope you can get sorted soon though. Take care Cris
  • trisher
    trisher Non-active member Posts: 9,263
    edited 30. Nov -0001, 00:00
    Hi Gill

    I was on Sulfasalazine I got up to 6 and I got such bad headaches, as soon as the consultant knew, she rang up and said to stop straight away.

    I have been to see her and then myblood tests showed that my liver was very high, so now waiting for to start a new meds.

    Trisher xx

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