Sulfa

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barbara01
barbara01 Non-active member Posts: 85
edited 20. Mar 2010, 08:16 in Living with Arthritis archive
Hi All

Haven't posted for ages and now two in one day.....I do always read what you are all saying though and get lots of useful advice.

As the Plaquenil is not working the next thing is likely to be Sulfa. I am always very wary of new meds and the side effects always seem horrendous.

Is any one taking Sulfa on its own and does it work, how long before effects seen and what side effects.

I have been trying to find the right med for nearly a year now and its all so long winded...having to wait 3 - 6 months to see if some are going to work and in the meantime just being dragged down by continual pain.

Thank for your help...just want to be prepared before Rhuemy visit in 2 weeks.

Barbara :)

Comments

  • valval
    valval Non-active member Posts: 14,911
    edited 30. Nov -0001, 00:00
    hi can not help but sure some one will soon enough good luck hope new meds help
    val
  • skezier
    skezier Non-active member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Barbara,

    Sorry your having so much trouble with bones and treatment, sending you a ((( ))) and a hope the next thing will work for you.

    I was on sulfa for months and in the middle of it it sort of began to work. What I didn't know was it was working for my crohn's :wink: Anyway I had to double the dose to get any benefit and unfortunately I developed a real reaction to it. It manifested its self in throat and lymph swelling and a permanent 'cold' so now I am off it.

    Like you I am seeing the Rumo and will have something else (unless he puts me back on sulfa?) and I'm actually looking forward to having something that does work for me....... might be a bit silly eh? :lol: I promise you the sulfa did do something and before the dose was doubled it was ok...... I do know my wrists have been worse since I been off it and it certainly was holding the crohn's off...... So even with the reaction it sort of worked to a degree :wink:

    Good luck Flower and give it ago cus it might be good for you. Another ((( ))) cus I kinda know what it's like uncontrolled. Cris x
  • wibberley
    wibberley Non-active member Posts: 421
    edited 30. Nov -0001, 00:00
    Hi,

    I've been taking sulpha for around 10 weeks now. It has definitely helped and I've now been able to drop the celebrex anti-inflammatories.

    I did have some nausea and headaches for the first month or so. Haven't been able to shake off a cough completely but other than that, I don't have any problems with it (I take 4 daily).
  • fayrose
    fayrose Non-active member Posts: 241
    edited 30. Nov -0001, 00:00
    I've been on sulpha for several years. Various other things have been added from time to time but for various reasons I've had to come off those, but stiil on the sulph.

    Its one of the few drugs I haven't had a bad reaction to. We are all different in our responses to the meds.
    I take 2 tabs twice daily.

    Good luck in finding the right thing for you. :)
  • jenzie06
    jenzie06 Non-active member Posts: 708
    edited 30. Nov -0001, 00:00
    Was on Sulpha a few years ago. I didn't have any side effects other than it turned my blue contact lenses green. It didn't have a huge effect on the RA either, unfortunately. Can't remember if I had to have regular blood tests with it (think I probably did) - it might be worth asking if your rheumy thinks its worth it.

    Hope they work for you.
  • skezier
    skezier Non-active member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Barbara,

    Glad Jenzie said about the bloods cus I forgot that bit :oops: Mine were every month for 5 months and then 3 monthly. I think the Rumo's all have their own ideas but initially it would be monthly I expect. Cris x

    Hi Fayrose nice to see you and hope your doing ok? x
  • kickyloo
    kickyloo Non-active member Posts: 66
    edited 30. Nov -0001, 00:00
    Hi
    I'm on Sulfa and have been since 20th Dec (I had to come off previous meds Hydroxychloroquine because it made my hair fall out and upset my tummy, to put it nicely :oops: ).
    I had some headaches and nausea during the first month, but nothing too bad and didn't last. I have not had any other side effects, which is great :D . Oh, except making my urine and tears orange!
    They are working for me. Not a complete cure but a lot better, making life liveable. I've been off sick from work for over a year but am actually going back in a few weeks - so that says a lot.
    I do have monthly blood tests at the moment but that will reduce after a while.
    I do hate to jinx things by saying this, but things are looking good!
    Hope they work for you.
    xx
  • barbara01
    barbara01 Non-active member Posts: 85
    edited 30. Nov -0001, 00:00
    Thanks everyone for your replies...it is really encouragng to hear that something is working for some people.....am actually looking forward to seeing rheumy and geting new meds.....nothing can be worse than this pain xx
  • fayrose
    fayrose Non-active member Posts: 241
    edited 30. Nov -0001, 00:00
    skezier wrote:
    Hi Fayrose nice to see you and hope your doing ok? x
    Hi skezier, not been so good and having a bone density scan in April :( Still working ..... and painting and drawing though. :wink:
    Not wishing to hijack this thread but how about you?
  • skezier
    skezier Non-active member Posts: 11,333
    edited 30. Nov -0001, 00:00
    Hi Fayrose,

    I am sorry your not so good and sending you a ((( ))) and a healing slurp from the lunatic dog :wink: Really do hope the scan results will be ok and will keep my fingers crossed for you there.

    Me well I think my body and I have moved into all out war fare :lol::lol::lol: We just don't want each other any more :wink::lol::lol: I got to see the rumo next week and maybe mtx will help :wink: You take care and its nice to see you again. Cris x

    Sorry Barbra for the hi-jack but a ((( ))) for you as well. x

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