ADALIMUMAB?????

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scorpio
scorpio Non-active member Posts: 159
edited 9. May 2010, 04:26 in Living with Arthritis archive
A guy i met through work is currently taking this and says that it has transformed his life, as he could hardly walk, but now runs and leads a normal life

Is anyone else on it?

If not, has anyone heard anything good or bad about it?

Chris

Comments

  • bailey27
    bailey27 Non-active member Posts: 689
    edited 30. Nov -0001, 00:00
    Hi
    Just looked it up and it is what many on here refer to as Humira.
    I'm not on this but somene with more advice will be along shortly.
  • scorpio
    scorpio Non-active member Posts: 159
    edited 30. Nov -0001, 00:00
    cheers mate
  • tillytop
    tillytop Non-active member Posts: 3,460
    edited 30. Nov -0001, 00:00
    Hi Chris
    Adalimumab (Humira) is one of a group of drugs known is anti-tnfs and I know from experience, that they can work wonders . I had a similar experience to your work colleague when I took Infliximab (another anti-tnf drug) for about 5 years - it was absolutely wonderful. After an allergic reaction I changed to Humira which worked almost as well for me until recently when I became allergic to that one too. It seems that these drugs work brilliantly for some but not for others and that some people need to try more than one to find one that works. You don't say in your "hello" post if you are under the care of a rheumatologist - but I guess you probably are so you've got nothing to lose by asking if an anti-tnf is an option for you. If you go to the Publications and Resources section of this site and type "medication" into the search box, you will be able to download an Arthritis Care booklet which gives information about anti-tnf drugs.
    I know that there are others on the forum who take Humira and I'm sure they will post too to share their experiences. Best wishes, Tilly
  • scorpio
    scorpio Non-active member Posts: 159
    edited 30. Nov -0001, 00:00
    tillytop wrote:
    Hi Chris
    Adalimumab (Humira) is one of a group of drugs known is anti-tnfs and I know from experience, that they can work wonders . I had a similar experience to your work colleague when I took Infliximab (another anti-tnf drug) for about 5 years - it was absolutely wonderful. After an allergic reaction I changed to Humira which worked almost as well for me until recently when I became allergic to that one too. It seems that these drugs work brilliantly for some but not for others and that some people need to try more than one to find one that works. You don't say in your "hello" post if you are under the care of a rheumatologist - but I guess you probably are so you've got nothing to lose by asking if an anti-tnf is an option for you. If you go to the Publications and Resources section of this site and type "medication" into the search box, you will be able to download an Arthritis Care booklet which gives information about anti-tnf drugs.
    I know that there are others on the forum who take Humira and I'm sure they will post too to share their experiences. Best wishes, Tilly

    yes i was seeing a rheumatologist, but after i came off methx they stopped appointments and i allowed them to slip as the dic, codeine phosphate and paracetamol were working so well - until Mr Gout reered his painful head; since then my drugs have been tinkered with, allowing my pains to come back with a vengeance

    chris
  • tillytop
    tillytop Non-active member Posts: 3,460
    edited 30. Nov -0001, 00:00
    yes i was seeing a rheumatologist, but after i came off methx they stopped appointments and i allowed them to slip as the dic, codeine phosphate and paracetamol were working so well - until Mr Gout reered his painful head; since then my drugs have been tinkered with, allowing my pains to come back with a vengeance

    chris[/quote]

    Hi again Chris. You will need to see a Rheumatologist to discuss the possibility of an anti-tnf because the GPs are not able to prescribe them so hopefully, your GP will be able to refer you for an urgent appointment so that you can get some "proper" advice about your options and some help with getting your PA under control again..... Tilly x
  • scorpio
    scorpio Non-active member Posts: 159
    edited 30. Nov -0001, 00:00
    tillytop wrote:
    yes i was seeing a rheumatologist, but after i came off methx they stopped appointments and i allowed them to slip as the dic, codeine phosphate and paracetamol were working so well - until Mr Gout reered his painful head; since then my drugs have been tinkered with, allowing my pains to come back with a vengeance

    chris

    Hi again Chris. You will need to see a Rheumatologist to discuss the possibility of an anti-tnf because the GPs are not able to prescribe them so hopefully, your GP will be able to refer you for an urgent appointment so that you can get some "proper" advice about your options and some help with getting your PA under control again..... Tilly x[/quote]

    thanks Tilly, i will do that - i have to, my psoriasis is well out of control covering my whole body

    Chris
  • bubbles
    bubbles Non-active member Posts: 6,508
    edited 30. Nov -0001, 00:00
    Hi Chris, I hope you get a fast track appointment with the rheumy, as you certainly need a review asap. What do you use for psoriasis? My OH has it and used exorex lotion and found that worked really well, you can buy it, but I am sure the Dr would prescribe it. Sorry you are having such a rotten time. Keep us informed and welcome to the forum too. Pop into the cafe sometime, for a cuppa eat-drink-smiley-5155.gif XX Bubbles
    XX Aidan (still known as Bubbles).
  • tkachev
    tkachev Non-active member Posts: 8,332
    edited 30. Nov -0001, 00:00
    Hi Chris,

    I am on this and it works brilliantly for me from the very first injection. I have suffered for ten years but the first year and the 5-8th year were traumatic. Humira made a massive difference.The pain seem to melt away for me and what a relief that was!
    You will prob need to try the other medication first to see how you get on. It is a costly medication and Rheummys dont prescribe it unless other stuff has not worked for you.
    I take it by injection along with Methotrexate,sulfasalazine and plaquenil and iron tabs.Some peeps take humira alone, there was a post on it last week.
    Best wishes
    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • scorpio
    scorpio Non-active member Posts: 159
    edited 30. Nov -0001, 00:00
    i use elocon, dovobet, diprobase, cocois and betnovate scalp lotion for the psoriasis..........still covered head to toe and i also get light treatment via PUVA

    thanks for the well wishes, Chris
  • dreamdaisy
    dreamdaisy Non-active member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Anti TNFs are wondrous drugs indeed, but they have not worked for me. Infliximab failed after four infusions, enbrel put me at serious risk of liver failure and humira (adalimumab) is failing after ten months. Pain levels (for me) under these treatments did not lessen in any way. Inflammation levels only dropped to single figures with humira, but the inflammation is now re-appearing - in different joints woo-hoo! - so I'm getting bloods done on Monday to see what's what.

    Mabine means based on mouse proteins, so if your meds end with 'mab' that's what's in 'em. As my GP wisely pointed out to me, I'm based on cat protein, hence my failure with these meds. Cold comfort but it made me laugh! Dreamdaisy
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • dorcas
    dorcas Member Posts: 3,516
    edited 30. Nov -0001, 00:00
    Hi Chris,

    I was on Adalimumab for five years...and it definitely did slow down the PsA; unfortunately my body produced antibodies that stopped it working so I came off it in March. :roll:

    I was on Etnaercept but had an allergic reaction to that (more's the pity as I found it very effective) so had to stop that one.

    I'm now waiting to try infliximab after I have my op in June!.

    I answered your other post and mentioned another med (ustekinumab) that may be helpful for both your psoriasis (and may be the PsA) so won't repeat all I said there. :wink:

    also you might find the Psoriasis and Psoriatic Alliance website worth a look!
    http://www.papaa.org/tiki-custom_home.php

    Iris x
  • scorpio
    scorpio Non-active member Posts: 159
    edited 30. Nov -0001, 00:00
    some great advice - thanks

    i am really worried about work, i just cannot cope much more............but what can you do, i cannot just quit

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