Success -brain is working a bit

maud48 · 11. May 2010, 06:55

Thank you everyone for your lovely and thoughtful replies which have made me feel much more positive. Now all I have to do is beat this thing.
OH picked up a prescription for amitryptiline yesterday so took it first time last night - success my brain is working a bit after a better night's sleep, still zonked but hopefully that will improve in a day or two. It really needs to as however much I think about accepting this horrible illness it's so difficult to see my OH, at the age of 61, doing a demanding full time job, looking after a 4 year old with special needs, doing all the shopping, cooking, housework and running round after me.
Another thing that I think about is all the people who don't even get to this point where I have. It's been hard to keep visiting doctors when they've made me feel like I'm making a fuss about nothing and I'm sure a lot of people must give up and never get a proper diagnosis.
Will keep you posted about progress. maudxx

dreamdaisy · 11. May 2010, 07:23

You are not a fraud and it does take time to get the help you need. I am glad that the ami worked - I think I've read on other threads that people take it quite early in the evening so that they wake properly the next day. I began my psoriatic arthritis in 1997 but nothing was done about it until 2002, partly due to me believing doctors (there's nothing we can do, it will go away) and partly because I got used to living with a grossly swollen knee. Rheumatology and orthopaedics spent a year arguing about whose pigeon I was (started in ortho, and am now firmly rheum's problem) and wasn't diagnosed until October 06.

Stick at it. That's the only way you will get help that you need. Involve social services for practical aids such as raised loo seats or new banisters (that's what I needed and received) and try OT for help and exercises. You have to do much of the basic legwork yourself - it's not that people are not willing to help but they need to know of you first! Good luck with it all, remember we're here for help, info and to listen to you when you need to let off steam. Dreamdaisy

speedalong · 11. May 2010, 07:28

Hi Maud -

so glad the new med helped you sleep better. Get a few good night sleeps and you will start to feel much more able to cope. Stick with it you will get proper treatment in the end .... silly so many people have to fight for it!!

Speedalong

PS
Your OH sounds a real gem.

frogmorton · 11. May 2010, 08:10

Hi maud

good to hear you so much more positive.

You honestly were blaming yourself weren't you? you though YOU weren't coping didnt you? With so much that people years younger than you would have crumbled!

Now you know there wasa valid reason and you can beat it. I am so glad you slept and after a week or so you will feel ten times better.

So happy for you

Love

Toni xx

carolanivey · 11. May 2010, 11:26

(((hugs for maud)))

hileena111 · 12. May 2010, 17:23

Hi Maud
Glad you got the new med and it seems to be working. I've just had a THR and for 6 weeks on my back I didnt sleep at all so I know how you feel....I just wasn't coping during the day at all. Even when allowed to sleep on my side I could sleep properly and they put me on codeine at 10pm {2 at 6pm as well} and it has made such a difference. Getting sleep...you can cope with almost anything
Love
Hileena

woodbon · 13. May 2010, 10:56

Hello, Its good to hear the the amatryptlyne is helping you, I have it for sleeping too. It works for me. I expect you will find that its going to be much easier to cope with a good nights rest.

I'm so sorry that you don't feel happy with your GP. I know how easy it is to feel that its all in the mind and I have just come through a period of thinking that too. Its not in your mind, you are ill and need help and you are not alone either. Most of us on here have felt how you are at times during this horrible illness.

Take care, love Sue xx

Success -brain is working a bit

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