Just looking to introduce myself and say i would be very grateful of any advice or support that anyone can provide me!
My little girl, Karys is 3 and after being unable to walk for 9 whole weeks and numerous visits to our GP, Health visitor and hospital and what seems like a million tests she had been diagnosed with juvenile arthritis. This was a week past on Tuesday so 9 days ago.
The hospital have advised me that physiotherapy would commence this week and that they would be sending me out information about Karys' condition to inform me fully of what it to expect and what happens next. After calling both the physiotherapist and hospital on Monday i am now seeing the physio on Wed next week and still waiting for the information from the hospital!!!
Also the hospital advised we were being referred to Yorkhill (Childrens hospital) who would treat Karys by giving her steriod injections into her legs. They advised hopefully before we go on holiday which we go three weeks on Monday. To date we still havent heard from them.
At the moment i just feel i still do not have a clue whats going on and i have no control what so ever. I seem to be waiting for someone to write or call me with regards to this. Karys is still in a lot of pain and it is just such a shame. She has been on naproxen for four weeks now which has slightly improved her pain but still only being able to shuffle about our house and cant do any sort of walking outside for any length.
If anyone has similar experiences i would be gratefully appreciative.