hiya,
my son tom has JA, newly diagnosed and so he cant play out -
i told his friends about his illness, i now have a houseful of teenage boys!!! 6 in total, how noisey are a bunch of boys? lol
he clearly has great friends who have all taken onboard the illness and adjusted so tom still sees his friends.
i am sat downstairs with a tear in my eye because he is obviously cared about but mostly because i can hear laughter and its ace after all the sadness we've had lately.
Comments
Good to meet you
I ahve a houseful of teenage girls here and it's mad isn't it?
One of their teachers said to me when they were little - have em round your house - then you know where they are who they are with and when they will be home.
Good advice eh?
Lovely boys they sound give em a treat tomorrow - fOOD -testamment to your lads character and I am so happy for you.
Oh
I have a tear too
Love
Toni xx
Toni xxx
Just popped in to say a warm welcome to the Forums.
This is a great place to be and there are mother's whose children have that too. You will get a lot of support from them but us as well.
That is juat what your son needs his friends to help him and the laughter.
Hope to see you around the Forums
Trish xx
How lovely, kids dont get enough praise in my eyes, I am so glad your son has such good freinds.
I am like you , I have grandchildren now, but I love to have there friends around and hear them laughing, better them any medicine.
Love
Barbara x
Barbara
Mine are nearly all gone now.
Hope he sleeps well and you will all the better for such a lovely day
Love
Toni xx
Toni xxx
peace here now, they've all gone, but will be back so i've been informed :shock:
its a nice feeling that through a challenge like this his friends came through for him, he's a good boy, and just to see his smile and hear his laugh again is priceless.
we have rheumatologist in the morning so hope that goes well.
just need to know what adjustments we need to make to ensure tom is happy and as painfree as possible.
glad i found you all
clare x
Welcome again from me. You sound a bit more positive. Good luck for tomorrow.
Great that his friends are so supportive.
Glad you got some information
Lv, Ix
So pleased to hear that your son had a great visit from his friends and just to say I hope he has a good appointment with the rheumatologist this week.
Keep in touch.
Marion
glad you found us too
Hope the apt is a success and goes well for Tom too.
You off the hook for today then??
Me too mine are in and out riding with their friends.
Look forward to hearing your updates.
Love
Toni xx
Toni xxx
Speedy
housefull again :shock:
went to the rheumatologist this morning, tom is doing ok, he still has some fluid still on the joints and gets a few pains but very much improved, he has to go for a one-off eye test at the hospital but likely to be negative so good news there.
the doctor could not tell us what type of arthritis he has as still awaiting blood results.
tom is to have physio as his muscles have shortened during his flare up, so hopefully will help ease the stiffness and get all the muscles going again.
he was also prescribed a medicine for his tummy as the anti-inflammotary's give him tummy ache.
going back to clinic in 6 weeks for results and review, the doctor said he may need more steroids and methotrexate.
hope everyone is well today and houses are not as noisey as mine! i took advice from here and stocked up with snacks for all the boys.
toms mum, clare x
well that all sunds really positive
hope Tom is feeling ok about it all.
It will be hard for him - not just the pain, but 'being different' from his friends, (I know this as my 12 year old has epilepsy). It will certainly help if he has a sound Mum with plenty of lads food
Mine have been all over the place today - horse riding, but at the mo I have a few who are about to go it being tea time.
This is my summer and yours too I reckon
Hey it could be worse
Love and hugs
Toni xx
Toni xxx
busy here, with baby and teenagers, i must be mad :shock:
anyway, tom isnt so good today, got pain in his neck, think hes overdone it, its hard for him to strike a balance bless him, ive told him to listen to his body, and when it hurts to slow down a bit, hes paying for it now.
think a resful day is on order tomorrow :?
c x
Now if you had girls....
they could be teenagers looking after baby
Two problems solved in one hit
Hope Tom took it staedier yesterday and that he feels a bit recovered today? Necks are a sickening kind of pain you know
Two of mine camped in the neigbours garden last night :shock: - rather them than me eh?
Hope today is good for you
Love
Toni xx
Toni xxx
Julie x
just got in from work (im a theatre nurse at at james, leeds) busy day!
tom was stiff this morning but came round at lunch time and had a good afternoon, he is staying at his friends tonight, i was reluctant to let him go but feel we should try stay positive and normal whatever that is :roll: i have spoke to his mum so hopefully all will go well.
a forum whip round sounds good
well, bath and bed for me another work day tomorrow, only do 2 days a week so not too bad.
clare x
ps. my baby oliver is cutting 2 teeth (hes ten months old) tom is 13 on sunday, so busy busy busy nite x
so Tom is going back into year 9??
Lucy is going back into year 8 and the other two year 11.
You are right to let him go - so right. Enjoying himself will take his mind of some of it wont it??
An the wee one is 10 months?? ah!!! and you are busy working too :roll:
Take the whip round Clare I would
Hope Tom has a great night.
love
Toni xx
Who needs to do some ironing ASAP before the onslaught :shock:
Or maybe i can send it to ELna again???
(see the new forum club thread)
Toni xxx
its tom's birthday today, 13! he's had a rough weekend, but think he's trying hard to enjoy his day.
he's playing with his ipod touch.
hope everyone is having a happy sunday