hi everybody.havent posted for a while,but i have got my dreaded dla appeal on thurs,went to speak with welfare rights officer last week,and she told me she cant or wont represent me,due to very brief consultant medical back up letter,i do admit they describe laurens condition briefly but what she said was because it said (which may limit mobility at times) in the letter ,she doesnt think it is a very good letter,so isnt going to help me,so.dont want to go myself,but i have came this far now,think i need some moral support.i got last week another letter from consultant saying that lauren has now got significant problems with her hands now,dont know if that is a better letter,i suppose it is up to me to fill the gaps in about her condition.she is due back in hospital anytome now for more steroids into her hands i hope the letter comes before thurs so i can take it with me.any help would be great. thanks lorraine and lauren
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Comments
I would take all the letters and appointments with you. I guess they make a judgement based on all that you put in the form. So I think you have your say on Thursday, so the more evidence you have then the better.
I don't think it is right the the advisor as said that she won't support you, isn't that their job? She seems that she has already made her mind up, but she is not the judge in this situation.
Also consultants are very busy people and probably did not even write the letter, just gave notes to his secretary and he signed it.
I would go, take all your letters and appointments, write down how the condition affects your daughter on a day to day basis, explain how it affects her mobility specifically. Explain her bad day as the norm, I know you know all this but when you get in there you might be so nervous you forget. This is your chance to put forward your case.
I would phone the organisation again and tell them that you are unhappy with the way the advisor helped you, surely she should of given you advice about the type of evidence and letters that needed to be submitted. (It might make you feel better)
Thinking of you for Thursday and let us know what happens.
Fayann x
I have not applied for DLA, so I do not know everything about the process, but have managed my own medical problems, so giving you advice based on that.
I would take your daughter with you if she is happy to go and show them. She could go in for part of it and not sit through the whole thing if it is not appropriate. Is there also someone who could go with you to support you?
Why did they stop your DLA in Dec?
You doing all you can, writing everything will help you to organise it in your head and be organised for thurs (it works for me)
I am sorry that you have to fight, but that is what you have to do to get anything. The system is so unfair.
I would concentrate on all the normal everyday situations that it affects your daughters mobility - spell it out.
Getting to school, going to hospital appts, going to the shops, etc.
I think also if you post this on the Living With Arthritis thread, you will get a lot more responses as it is much busier than this part of the forum.
Fayann xxx