Kayleigh (who is 4) is totally unaware of what awaits her once we get back home off holiday. But I've just had a call and they are def starting Enbrel. Just waiting for the last blood test to come back then it's all go.
I'm dreading what this drug will/could do and how careful we are going to have to be on top of that she will probs start this drug just as she starts school as the nurse said 3 weeks to get everything in place.
She is only back for a week then will have to be off for 3 days to go Bristol for intensive physiotherapy. Then back for a bit then more time off for yet another appointment at Bristol which is 2 hours away by train.