humira

scorpio
scorpio Member Posts: 159
edited 23. Nov 2010, 06:31 in Living with Arthritis archive
woohoo

my 1st batch of humira is getting delivered next friday (26th)

i am very nervous....but, very excited

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Have you had your training and/or first dose? There is nothing to be nervous about, it is all very straightforward. I hate to sound a right grump but please, for your own sake, try to rein in the excitement: it is far better to be pleasantly surprised than bitterly disappointed (says one who knows much about the latter but not much about the former.) I sincerely hope it works for you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • fester
    fester Member Posts: 98
    edited 30. Nov -0001, 00:00
    dreamdaisy wrote:
    Have you had your training and/or first dose? There is nothing to be nervous about, it is all very straightforward. I hate to sound a right grump but please, for your own sake, try to rein in the excitement: it is far better to be pleasantly surprised than bitterly disappointed (says one who knows much about the latter but not much about the former.) I sincerely hope it works for you. DD

    Totally agree DD often think i got abit too much hope up with my humira and it looks like its not the holy grail i was hoping for and that i'll be trying adalimumab next month for six month before agreeing with my consultant to concede defeat. All the same Scorpio i sincerely hope it works for you.
    Steve
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    fester, I sympathise. Humira is my third and probably final anti TNF - none of them have done what is promised on the tin. I no longer expect anything from these meds - and guess what? I am not disapppointed! :D I hope you are as well today as you can be. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • c4thyg
    c4thyg Member Posts: 542
    edited 30. Nov -0001, 00:00
    For me the anti-TNF (Enbrel and Humira) are great. BUT, in my case humira takes about 6-8 weeks to really get into my system so if the same is true for you please don't feel disappointed, in my case it was worth the wait. We're all different though and maybe you'll feel a more immediate benefit.

    Good luck and really, there's no need to be nervous. :)
  • mp1952
    mp1952 Member Posts: 425
    edited 30. Nov -0001, 00:00
    Hi Scorpio

    I have been told today that I may start my first anti-tnf drug on 8th December (all being well). I am going to start on Humira too..

    I am also nervous and would welcome some advice from past/current users..

    eg

    Did you get a headache or dizziness after injecting?
    Did you get a lot of infections in the first 90 days or 6 months on the treatment?
    If so, what kind of infections and did you have to stop the drug until the infection cleared?

    Thanks very much

    Marion
  • scorpio
    scorpio Member Posts: 159
    edited 30. Nov -0001, 00:00
    my 1st package arrives 26th november and my training is the following thursday (3/12/10)......so, fingers crossed

    thanks for the well wishing
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -0001, 00:00
    Hi Chris,
    Sorry I cannot give you any advice with your new meds but I just wanted to wish you well with it.

    Hope work is going ok for you.
    Lv, Ix
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Hi mp1952, 'tis I, DD. I have been on humira since July 09 and I can truthfully say no headaches, no infections, no itching, no redness but some twinges and bruising: the former due to the preservative, the latter simply because I do not know where all my capilleries are, inject on/over one of them and you end up with a lovely bruise. Side effects? Nil. ESR and CPR results? Single figures. Sounds good, yes?

    I'll leave it there. DD

    fester: I thought adalimumab was/is humira.
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • scorpio
    scorpio Member Posts: 159
    edited 30. Nov -0001, 00:00
    cheers

    and thanks for the posts, it has raised my spirits (bells and bombay saphire gin......LOL)

    i am just pleased to finally be moving forward
  • fester
    fester Member Posts: 98
    edited 30. Nov -0001, 00:00
    dreamdaisy wrote:

    fester: I thought adalimumab was/is humira.

    Doh! trust me to get it wrong i meant Enbrel,knew i should have checked put it down to lack of sleep :lol:
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -0001, 00:00
    I have said before it worked straight away for me and has been great. I am not going to hide this information because it didn't work for others. If nobody had a positive response from Humira then nobody would bother taking it.

    Good luck Scorpio.

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Absolutely not, tkachev, it's GOOD to hear that sometimes this stuff DOES do what is promised. It must be a lovely thing to experience. (I need an emoticon for a wistful sigh!) I do think, however, that the docs present anti TNFs as the greatest thing since sliced bread, and the absolute truth is that they are not. I was so pleased to start infliximab - stupid me thought it would be the end of all my troubles - and the crushing disappointment I felt after it failed was something I was determined never to repeat: and I haven't. I hope you have a good week-end. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • jillyb1
    jillyb1 Member Posts: 1,725
    edited 30. Nov -0001, 00:00
    Just to add to previous comments , I have been on humira for about nine months now . I have had RA for over 30 years now so have a lot of ' deformaties ' , especially in my hands and feet so not much hope of a massive improvement likely in my case ! The change though for me since using humira , and it's a big and positive change ; is that now I SLEEP AT NIGHT ! Not always it's true , not if in flare up , but most of the time . For that reason alone I say - go for it ; you never know what benefits you'll feel until you try it . Good luck , hope it has even better results for you . Jilly
  • c4thyg
    c4thyg Member Posts: 542
    edited 30. Nov -0001, 00:00
    dreamdaisy wrote:
    fester: I thought adalimumab was/is humira.

    They are the same drug. Humira is the trade name, adalimumab is the generic name. Like Enbrel/etanacept are the same.
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -0001, 00:00
    Hi scorpio and mp1952

    I wish you both luck with the humira

    I am not on it so cant give any advice.

    Hope it works for you both

    Juliepf x
  • scorpio
    scorpio Member Posts: 159
    edited 30. Nov -0001, 00:00
    well, at the moment i am taking prednisolone to keep me functional, otherwise i'd be incapacitated to be honest....once i start the humira i will get off it to allow it time to work on its own
  • scorpio
    scorpio Member Posts: 159
    edited 30. Nov -0001, 00:00
    i will be happy if the humira takes away just my psoriasis tbh ........and then i can start tackling the arthritis side of my fun life
  • mp1952
    mp1952 Member Posts: 425
    edited 30. Nov -0001, 00:00
    Thanks everyone for your replies.. I feel a bit less scared now.. I'm pleased to read that you didn't have any infections DD - that's quite a worry of mine.. (call me neurotic, but I do have nightmares about getting a infection in my new hip and having to have it removed and being without a hip for 3 months!!)

    My podiatrist tells me I will need 4 toe nails removed before I start on the anti-tnf (to limit the risk of infections), so I'm not exactly sure if I will start it on 8th December or in January .. but anyway, I am in the 'mind set' now to give it a try..

    Thanks again

    Marion xx
  • scorpio
    scorpio Member Posts: 159
    edited 30. Nov -0001, 00:00
    good luck marion, and PM me throughout the early stages and we can compare notes

    fingers crossed for both of us
  • mp1952
    mp1952 Member Posts: 425
    edited 30. Nov -0001, 00:00
    Will do Scorpio

    Marion
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    Why on earth would I call you neurotic, mp1952? Am I really such a dragon? It's a valid worry I think, you know that your immune system is being reduced to virtually nil, you have had extensive surgery and made a good recovery so far so of course you don't want anything to jeopardise that. As I said, I have had no problems on the injecting front at all. I always wash my hands before and after, and I use the skin wipe they provide with the pen to clean my skin before the jab. Simples. Good luck with it and I hope it does what it promises. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • mp1952
    mp1952 Member Posts: 425
    edited 30. Nov -0001, 00:00
    Hi DD

    I'm convinced I sent this reply at lunchtime today but can't find it on the thread!

    No - you're not a dragon at all. I really AM completely neurotic when it comes to my new hip through..!

    Take care

    Marion
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -0001, 00:00
    That is completely understandable, marion, but I honestly think your fears on this one are unfounded. The humira is meant to help, not hinder! You must have had other injections since your THR, and they haven't done any harm. I am certain it will all be fine. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben

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