Upset where do I go from here

queenfan · 18. Jan 2011, 15:03

I'm sorry that I haven't been around for a while, I have had two appointments this last week, one with the back specialist, the other with my rheumy,
I just feel like I am in limbo, the orthopaedic specialist examined me took xrays of my back & hips, to cut a long story short, he told me I have OA in my neck, shoulders, spine, hips,To top it all up then told me that could not do anything for me because it is in places in my body.
Then my visit to rheumy he told me as well as rest of body also have OA in hands elbows & knees, he told me that it was all OA , booked me an appointment to have hot wax treatment, but other than that nothing else can be done, He said no physio because it's done too much damage & I am not able to take anti inflammatory tablets because of damaged kidney
So feeling very Low & let down at the moment
Sue xx

mp1952 · 18. Jan 2011, 15:07

Hi Sue

I'm really really sorry to hear your bad news.. what a blow.. if you can't take anti-inflammatories you do need some good pain control..

I'm sure there will be some other OA peeps along soon to give you advice (I have RA).. but all I can say that I use the hot wax treatment on my hands and it is really soothing..

Take care

Marion

lavenderlady · 18. Jan 2011, 16:00

hi Sue so sorry to hear about your news I too have OA as well as Sero negative arthritis my rhumey had me do 16 xrays of all my joints which all showed sever degenarative OA in every joint, that along with spondelothesis in my back and SMA Spinal muscular atrophy in my right arm and leg, I also cannot take steroids etc as I suffer with stomach erosions and ulcers along with underactive thyroid type 2 diabetes ( On Insulin ) I know how you feel its taken me a few years to slowly come to terms with my bad health have finally got my BP under control and last Nov I had a TWR the first of many ops I'm told although my wrist is almost painfree my fingers and thumbs toes and knee are all deformed it will take you a while to get used to the idea of being angry upset and generally annoyed at "why me" I used to say I must have been so bad in a previous life and got to be literally scared to see my DR as he kept finding problems lol but now I take ammetriptaline before bed low but annoying pain I take Zapain painful pain I take dehydrocodeine and for really bad screaming pain I take Tramadol, its a matter of finding out what suits you, I take around 23 pills a day I may rattle but am getting good at swollowing quite a few in one go to my kids amazment, if it gets you down come on here one of us if not more will always know what you are going through, my life is full of drs hospital and chiropody appointments, but if it helps thats fine by me , might just start taking bets on which joint is replaced next, good luck keep well michelle

valval · 18. Jan 2011, 16:02

just wanted to say sorry can imagin how bad you feeling i wish i could help in some way but can only be here for you and leave loads of hugs to help you through val

jennylynn · 18. Jan 2011, 16:45

thats a real blow, i cant imagine how you must be feeling. The system is so out of sync with reality sometimes - i dont have OA, but have had the hot wax treatments for my hands (where they think i might have OA but dont really know?!) and i must admit it does provide some relief (and the treatment is really lovely!) possibly not much of a comfort right now, but sending lots of positive vibes to you.

Hoping you feel more positive soon.

Jennyx

dreamdaisy · 19. Jan 2011, 01:25

I was wondering where you were, queenfan, I had a feeling that all was not going well. So, OA basically everywhere? That is rough as there is indeed nothing or very little that can be done. At least us auto-immune types can take foul meds that make little difference but we feel were fighting back with summat: it is much, much harder for you, plus all the other health problems too restricting what you can take to ease the symptoms. Oh it just isn't bloody fair, is it Sue? There is nothing I can say or do to help, but you do know we are here, yes? Come and talk to us, don't bottle it all up, that will just make it all worse. DD

PS How's the stud? Still glinting? (Stop sniggering at the back, I mean her nose stud.)

barbara12 · 19. Jan 2011, 05:57

Hi queenfan
Its nice to have you back, but wish it was under better circumstances/
Like you I was in total shock around 2 years ago when told all the joints I had OA in, I had been going to the gym for at least 20 yrs....and had slight discomfort, any way to cut a long story short I am coming to terms with it...not easy ...I dont get to the gym, but I do continue to do stretching exercises at home.
I wish you well with everything, and you know were we are when you need support.
Love
Barbara x

frogmorton · 19. Jan 2011, 08:19

Oh Sue :sad:

This makes me so very sad :sad:

This must feel like a huge blow - a sort of nothing can be done kind of blow.

Cris (skezier) and Debs (minky) both have had similar appts this year.

At the evry least i do think you should be getting good care fro your pain (I understand the anti-inflams) and think you should go to a pain clinic and have some support to manage your pain. The hot wax sounds good and i am sure will help a little.

Sue don't dissapear - we all care about you.

Love

Toni xx

queenfan · 19. Jan 2011, 09:58

Thank you all for your support, I wasn't going to write on here to be honest, because I know lots of people on here are a lot worse off than me,It's just been a huge blow to me because I thought that I could just have some reassurance that they could help in some way. I haven't spoken to anyone about this because I don't like people knowing I feel low, I tend to shut myself away. The other night a very dear friend rang to see how I was & how my appointments went & I'm ashamed to say I nearly didn't answer the phone which I have done a lot of recently, but it was lovely to hear her voice I'm quite choked up a bit at the moment.
I'm sorry I haven't wrote on here for a while, but I still pop in now & then. thank you all Sue xx

PS DD stud still sparkling xx

barbara12 · 19. Jan 2011, 10:11

Hi Sue
Please dont apologise for your post, I am a great believer in talking and getting things off your chest, it will help I promise, I know what you mean about not being able to talk to family and friends, thats what so good about this forum, you can ask for help and wont be judged.
Its been a life line for me, please keep in touch its nice to be able to help.
Love
Barbara xx

dorcas · 19. Jan 2011, 10:42

Hi Sue,

just read your post.... such a lot to take in! I'm so sorry that the OA has spread itself to so many joints :sad: ; that must have come as quite a shock. :shock:

It may not sound very helpful to talk about replacements etc just now, but orthopaedic surgery has come a long way and I for one see it as an option rather than a last resort. I've had the same op as Michelle.. a wrist replacement, as well as wrist fusion, elbow and back surgery.... all of which have helped me greatly, reduced the pain dramatically and given me back some of the joint movement. I'm now waiting for an op date for further hand surgery and likely knee surgery after that.

I know it's not the same as a 'miracle cure' but, in the absence of other treatments, surgery can be life changing so please hold onto that thought. You may feel you are at the end of the road but maybe you're at a crossroads....

Keep posting Sue... we are here to support and help if we can.

(((hugs)))

Iris xxx

Airwave! · 19. Jan 2011, 10:50

Well, first thing is get it off your chest, next, be positive, there are so many things to feel good about!

arther is just a pain, nothing more, all the other stuff is stuff that we allow to happen to us. Just a part of life's path, it may seem desperately sad, at present, but its only a habit and one we can change.

8)Its a grin, honest!

dreamdaisy · 19. Jan 2011, 11:00

I did a message, a good 'un, and it bu*****d off into the ether, despite the successful post message popping up. |This is the short version.

I have said it before, and I will say it again, the fact that there are others who may be worse off than you is irrelevant. You are full to YOUR brim with pain, angst, confusion, despair, sadness and a few other bits and bobs, so come and tell us about it. You don't have to confess to just how low you may be feeling, even just type the word 'help' and we will do our best to do just that. How we handle things can vary from day to day, some days we can take on the world, on others we cannot take off our knickers (assuming we have them on in the first place). I think the forum comes into its own on those days - there is always someone about who will listen and try to reassure, send some hugs and love (yes, I know, I am very deficient on that front, it just ain't me but that doesn't mean I ain't concerned). I am not ordering you to talk to us - heaven forbid, I am a bossy mare but not that bossy! - but you can, queenfan, you can. We know what it's like. DD

jacqmun · 19. Jan 2011, 15:59

It does you good to 'spout' off queenfan, and it is a shock when told that so many joints are affected.
I am fortunate in that only the right side of my body is affected :eek: but some days, like today the pain can be so damn trying!!!!
When at work people may comment that I'm walking badly, I respond by telling them that it will be ok as soon as I've 'limbered' up

As if!?!?! But in reality if I confided in them and told them how I really felt, I would cry and feel that if I started I would never stop!!! :sad: I will not shed one tear for arther!!!!!
See.....once you start 'spouting' you can't stop :???:
Anyway I wish you all the best along with all the lovely peeps here
Jacqui x

Wonkylegs · 19. Jan 2011, 18:13

HI Sue

sorry that your appointments were so shift (as toni would say

)

I really hope that you can get your GP to understand how much you need some support and help to deal with the pain. Get them on your side and maybe they can get a referral to the pain clinic sorted for you?

until then loads of wonky hugs (((((((((((((((((())))))))))))))
WOnky xxx

skezier · 19. Jan 2011, 19:27

Oh Sue,

I honestly know how you feel cus they done it to me as well. Flower its going to be ok and you will be ok as well. I know how hard it is and all I can do is send you a ((((( )))))) and as much strength as you will ever need. Love Cris xxx

Debs I haven't forgotten you, give me 2 and I will make tea. xx

seamonkey · 20. Jan 2011, 15:24

Hi sue,
Im up set at reading your post such horrible news to take in. I have some form of arthritis in my back and think it is also in my shoulders but to hear that news must have been heart breaking. People on this site are really great at giving ideas on how to manage pain, way of life etc they have done wonders for me.
I wish you well and hope you can get somewhere on the pain front very soon.
Sending you best wishes
seamonkey

Upset where do I go from here

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