Lupus

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katknapp
katknapp Non-active member Posts: 709
edited 19. Jul 2011, 04:13 in Living with Arthritis archive
well have had all the results and my consultant seems to suspect i have SLE.. lupus instead of spondiloarthritis,has anyone else got lupus?as im not really sure what it is and i did briefly look it up but scared myself lol..is it still arthritis or something completely different?

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  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -0001, 00:00
    Hi katnapp

    I am sorry no one has replied to your thread. It has been very quiet on the forum today.

    I found the Lupus UK site which may be of help to you. It says it is "the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis".

    http://www.lupusuk.org.uk/

    Look after yourself,

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • tillytop
    tillytop Non-active member Posts: 3,460
    edited 30. Nov -0001, 00:00
    Morning Katnapp

    I am so sorry about your latest diagnosis.

    I know there are other forum members who have Lupus so hopefully someone will be along soon. As Elna says, it has seemed quite quiet on the forum.

    Thinking of you.

    Love Tilly xxx
  • suzygirl
    suzygirl Non-active member Posts: 2,005
    edited 30. Nov -0001, 00:00
    Hi, I have lupus and a few other things. I know it sounds scary, but don't be afraid. You still have the same symptoms just another name.

    I have lots of helpful sites, but you are not allowed to post links so feel free to PM me if you want help.

    The meds can make a massive difference and most live a near normal life. I am happy to answer any questions that you may have.

    Take care

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