Sulfasalazine help/guidance
BeckyFlower
Member Posts: 4
Hi everyone, hope you are all well and ready for Christmas?
santa
I'm currently on Sulfasalazine (4 a day) and have fortnightly blood tests. My white blood cells have been low (1.44) on the past few blood tests, and I received a call from the hospital today advising me to completely stop taking them for a week, then start taking them again with just 2 a day instead....
I thought you wasn't suppose to just 'stop', and gradually lower the dose? Wondering if anyone can advise/comment from previous experience?
If blood tests keep showing low white blood cells then I will have to stop taking them and go onto another NSAID
although I've heard methotrexate is more restrictive than Sulfa?
I'm only 27 so quite worried about my options if NSAID's do not work out for me.
Thanks for reading x
santa
I'm currently on Sulfasalazine (4 a day) and have fortnightly blood tests. My white blood cells have been low (1.44) on the past few blood tests, and I received a call from the hospital today advising me to completely stop taking them for a week, then start taking them again with just 2 a day instead....
I thought you wasn't suppose to just 'stop', and gradually lower the dose? Wondering if anyone can advise/comment from previous experience?
If blood tests keep showing low white blood cells then I will have to stop taking them and go onto another NSAID

I'm only 27 so quite worried about my options if NSAID's do not work out for me.
Thanks for reading x
0
Comments
-
Hello,
I was on sulfasalazine for nearly two years, three in the morning and three in the evening. Then I had an infection and I came off everything for about 6 weeks. Not back on sulfa but am on methotrexate and leflunomide.
Sulfasalazine is a Dmard. Dmard drugs get there name from their function. Disease modifying anti rheumatic drugs. Sulfasalazine is supposed to be a milder one. There are many Dmard in many different combinations available. I hope you find what works for you soon.
NSAIDs are your anti inflammatories like naproxen and ibuprofen. They are more used to treat the symptoms, Dmards are targeting the cause.
Best of luck
Mark.0 -
As I understand matters it is perfectly OK to just stop any DMARD - in the past when I had to stop the meds for a while it was immediate. The only thing I had to taper was prednisolone because I had taken a moderate daily dose for three years. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
Categories
- All Categories
- 12.7K Our Community
- 10K Living with arthritis
- 815 Chat to our Helpline Team
- 479 Coffee Lounge
- 3 Exercise Resources - view only
- 29 Food and Diet
- 233 Work and financial support
- 6 Want to Get Involved?
- 193 Hints and Tips
- 409 Young people's community
- 13 Parents of Child with Arthritis
- 43 My Triumphs
- 130 Let's Move
- 37 Sports and Hobbies
- 245 Coronavirus (COVID-19)
- 22 How to use your online community
- 44 Community Feedback and ideas