Being listened to

Hello @GailBelinda

Welcome to the online community and thank you for joining us. I hope that you will find this a friendly and safe space to continue sharing with us all.

So you recently had an xray on your hands and was told by your doctor that you have degenerative arthritis and that nothing could be done and that diet won't help. You also have Ehlers Danlos Syndrome and Fibromyalgia. You are feeling very frustrated with the doctors.

I can understand how frustrating it feels to be told you have yet something else to contend with, when you already have so much going on. When the dr said that diet wouldn't help, was he referring to a change of diet or your existing diet?

I've included a couple of links below with information that I think may be of interest to you. I'm sure when other members read your post though, they will be able to offer more advice and support.

Please do let us know how you are getting on and please do continue to get involved.

Take care

Anne (Moderator)

Hi, I can empathise, similar conditions, osteoarthritis in spine and knees, currently seeing physio chronic inflamation of sacroilliac joints and suspect fibromyalgia, I have Ehlers Danlos and m.e. too. Ive suspected I have had fibromyalgia before but dismissed by physios and gp as everything due to Ehlers Danlos. Pain at mo is off scale physio is referring me to GP to request an appointment with a Rheumatologist. So I understand your pain and frustrations, I have found cutting out wheat and sugar to be of benefit but I guess food intelorences are an individual thing, I read about diet for fibromyalgia yesterday and similarly cut out refined sugar, also dairy and gluten. I love dairy but have done this before and did not feel any difference. Pain management is the thing for me too, physio has advised hot water bottle and hot baths help but to limit painkillers which I do anyway. I wish you all the best, happy to chat further if it helps