Biologic Suspension and Deliveries

jamieA
jamieA Member Posts: 859
edited 23. Apr 2025, 08:34 in Living with arthritis

I've had a prolonged suspension of injecting my Amgevita due as I was off it for 5 weeks due to a tooth infection and extraction. This occurred just after my last delivery of Amgevita. My deliveries are of 4 pens so effectively 8 weeks supply and they are timed around when I am due to take the 2nd last pen I have in my fridge. It's done like that so I always have a back up pen in the event the one I use is faulty. My biologic supplier has gone online and so I have to log into their portal to select a date on their calendar for a delivery. However it always only offers a 10 day window to do so - based around my 2nd last pen injection date. Since I missed 3 injections due to the tooth extraction I still have 5 pens in my fridge. I don't think it's a good idea to stockpile the pens in my fridge so I called the supplier to discuss moving the delivery 5 weeks later. Well that's where the fun started - the agent I spoke to repeatedly asked if I was wanting to stop the deliveries completely and I hastily repeated I simply wanted to move the delivery window on their website by 5 weeks. I was then told that since their contract is with the NHS they would have to contact my consultant before making any changes to my deliveries. I'm a bit uneasy about the whole conversation and her repeating her thought I wanted to cancel the deliveries. I'm going to call my consultants secretary next Tuesday and explain the situation before I'm possibly erroniously cut off my biologic - fingers crossed.

Comments

  • claudsl
    claudsl Moderator Posts: 161

    Hi @jamieA it gives me the option to change my delivery date on my app but it could be different to yours, the one I have it Sciensus. I think it would be a good idea to contact your consultant for further advice though.

    Need more help? - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • frogmorton
    frogmorton Member Posts: 30,297

    Did you sort it @jamieA ???

    Honestly it shouldn't be this difficult should it?🙄

    Toni x

  • jamieA
    jamieA Member Posts: 859
    edited 22. Apr 2025, 14:50

    Hi @frogmorton and @claudsl

    I spoke to my rheumatology clinic this morning - having left a message for them last week. The nurse didn't see it as a problem as it happens regularly. I called LloydsClinical this afternoon and spoke to a different agent. They cannot change the online calendar window so I've just to ignore the request for me to book online for my next delivery. They've put a note on my account to call me in early June to book a delivery and hopefully the online portal will synchronise with that. These are early days in their change to an online delivery booking schedule - previously I didn't need do anything they would call me when I was down to my 2nd last pen. I wonder whether this is progress or just money savings in that if the patient books online they need less agents.

    If I'd taken the online dates I'd have had 7 or 8 pens in my fridge at the peak point. Since they are about £150 per pen that would be an expensive issue if I had a power cut.

    Hopefully all sorted now.

  • frogmorton
    frogmorton Member Posts: 30,297

    Well let's hope that works the @jamieA you'll have to confirm if it does.

    Definitely cost cutting, but at the same time with agents like the first one maybe not such a bad thing🙄

    Totally agree those things are expensive and you just simply didn't need any this time.

    Fingers crossed all is sorted

    Toni x