Psoriatic arthritis

Revs1
Revs1 Member Posts: 1
edited 10:08AM in Living with arthritis

Good afternoon all, my first time posting on here. Roughy 18 months ago I was diagnosed with Psoriatic arthritis after 20 odd years with being treated for what my GP believed was Gout. Since then I’m on my third different treatment as nothing has worked. I’m currently in the middle of a flare up that’s been ongoing since February and has not responded to my treatment or a strong injection of steroids. My question for fellow sufferers of Psoriatic arthritis is how long do your flare ups typically last and what treatments work for you?

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  • Arciere
    Arciere Member Posts: 118

    Hi @Revs1


    I’m sorry to hear that you've not landed on a suitable medication yet.

    I was diagnosed in 2023. Flare ups come and go but are usually around 12 hours.

    From what I have read, there are many triggers and it’s all very individualised. If it helps I’ll explain where I am with it all.

    Stress plays a huge part for me. Not a heavy workload as such, more like stressful thinking or situations. I left a long term stressful situation and I do think it aided some recovery. Although lately I’ve been through the mill stress wise and I’ve seen more flare ups than usual.

    Additionally, my new mantra is; you are what you eat and, let food be thy medicine. I had a Mediterranean diet. However this “healthy” diet was dominated by gluten and deadly nightshade veg. Bread, pasta, pastry, cereals and peppers, tomatoes and potatoes. I also loved wheat beer and guiness and diet drinks with artificial sweetener. Since dropping gluten, deadly nightshade veg and artificial sweetener (which has all been tough - there is wheat in a huge amount of products - same for sweetener) I literally feel like a new man. I also look after my gut biome with fermented food; kefir, sauerkraut and increased fibre though more veg. (If I go to Wagamama - which has a gluten free menu, I literally have edamame beans for desert !). Note; gluten free alternative products are often full of chemicals so I avoid those too (I’m annoying at friends meal events - but they are getting used to it - or I bring my own stuff)

    Finally, I went through 4? Medications including sulfasalzine and methotrexate before I was given a biologic or adalimumab which I am still taking by injection every two weeks. This seemed also to really help with no side effects apart from maybe feeling car sick for two days post injection.

    I also think hydration helps. Sparkling water is my new pick me up.


    So I hope all this helps. I spent ages looking for a supplement before discovering that removing a food group had more effect and what I thought was a healthy diet per se - was not healthy for me and trying to avoid stressful thinking or scenarios really helps.

    Check out Rheumatoid recipe books. A documentary called hack your health on Netflix and anything to de stress.

    and please do keep talking to your rheumatology team. My first Consultant was not empathetic at all. Then I came across a specialist nurse and different Consultant who seemed to make it their mission to sort me out.

    Good luck and keep posting on here - there are loads of people in the same boat with helpful insight.

    Hope this helps.

  • Ellen
    Ellen Moderator Posts: 1,959
    edited 7:23AM

    Good morning @Revs1 a warm welcome to the online community.

    I am not at all surprised you are struggling having such a long flare. My own maximum has been about 6 weeks tapering off after that. I wonder what medication you are on. To be fair as you'll know they do tend to take roughly 3 months to have any real impact. Have they tried oral steroids I wonder some of us find they really help for temporary relief while a new treatment gets in our systems.

    I don't know whether this might be of interest?

    https://www.versusarthritis.org/news/2025/january/how-to-maintain-movement-during-a-flare-up/

    I did a quick search for old threads on the subject of PsA flares:

    https://community.versusarthritis.org/search?domain=all_content&query=PsA%20flare&scope=site&source=community

    They might be of interest to you. We have a few regular members who have PsA hopefully some of them will see your post and share their own story with you.

    My best wishes

    Ellen.

  • frogmorton
    frogmorton Member Posts: 30,335

    @jamieA is another really helpful person who has PsA like @Arciere, @Revs1 I also am very careful with my diet I am aware just how impritant our gut microbiome is in terms of our immune system and inflammation too. I am a whole food plant based vegan and really am convinced it has helped. If you have time, and diet interests you, reading some of @Arthuritis posts might be useful too.

    @Revs1 I'm glad you finally have a diagnosis and hope that soon things will be a good bit better for you.

    Toni x

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