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PsA Newbie!
Hi guys, I have recently been diagnosed with Psoriatic Arthritis at age 31. As pleased as I am to have an explanation for why I can’t get down the stairs in the morning, I’m struggling to see a day when things will be better ☹️ and that’s what every day is right now, a struggle. I have a young child, a full time job and a…
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Can anyone offer advice?
Hi everyone, I'm brand new here and out of sheer desperation, looking for some advice or guidance. I'll try to be as brief as possible but my journey has been going on for over 12 years, so I'll try to be concise. In February 2012, after a nasty 'flu infection that left me with a lung infection (MRSA), I develped a very…
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Coping with arthritis from a young age
Hello Im new to this so I don’t know how it works, but just thought I would come on here and say a little bit about myself My name is Rosie, I was diagnosed with arthritis and uveitis at the age of 1, I am now 20.I would say when I was younger I didn’t struggle with it as much, but as I have got older has made me for more…
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Biotherapy - Etanercept
Hi, I've just joined this group. I've had Psoriatic Artthritis for around 30 years. In the 1990s my GP tried 3 different tablets. Unfortunately each had a bad side effect (Liver, Eyes, Clinical Depression) So all were stopped.. I lived with it, but over the last year more fingers and other joints have got much worse.…
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Vaccine advice
Hi All, I’m new here and am just wanting some advice to see if anyone can assist. 🤞🏻 I’ve been diagnosed with Psoriatic Arthritis for approximately 2.5 years and am on weekly methotrexate injections (delightful!). My wife and I recently booked a holiday for next year which requires a Yellow Fever Vaccine; however, this is…
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Another Newbie to the Forum
Hi all Just joined the forum. I have had Psoriatic Arthritis for 23 years and started on Methotrexate yesterday. It would be nice to get to know people who understand how hard it is mentally and physically. Going for a nose around. Pls say Hello 👋🏻
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Trouble Sleeping with pain 😴 🥱😫😢
Hi I was diagnosed in 2016 with Osteoarthritis in both knees I now have it in both ankles, feet and hips. I need 2 new knees but they are trying to make me wait till I'm a bit older (im 53). I use a walking stick daily and have a wheelchair as I cant walk for long. I had severe psoriasis since 1992 (currently under control…
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Rinvoq - just received 1st delivery
Hi, I ve received my 1st delivery of Rinvoq ( upadacitinib) & I’m really nervous about starting it. Each time I’ve been given info the side effects seem worse, very worrying and very common. I’ve been very lucky so far with the variety of medications that I’ve been on and only really the last one which was a problem with…
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Recent diagnosis of psoriatic-arthritis
Hello. Im new here. Last week I was diagnosed with psoriatic-arthritis after suffering a sore back, knees and ankles for several months. Now having to come to terms with this diagnosis and what the future will bring. Any suggestions or advice would be appreciated.
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Difference between osteoarthritis and psoriatic arthritis
I have been diagnosed with osteoarthritis but also suffer from psoriasis of the scalp and elbows. How do I know if it is psoriatic arthritis I have and what is the difference?
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Hello
Hi all My name is Sandee I have PsA/ Fibro and have been on MTX well for the last three months, I started so well now I feel as if I am on a downward hill! I have an easy job I LOVE but I am exhausted by home time even if I do nothing taxing. I am an upbeat person and try not to moan and gripe if I can help it but I'm…
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Biologic - Adalimumab
Morning all, After some experience on the Biologic Adalimumab. Really hoping it works for me. Methotrexate - Made me really poorly for 2 days after taking. Leflunomide - Gave me really high blood pressure. Sulfasalazine - Still using but doesn't seem to be very effective. Booked in for bloods and x-rays, hopefully start on…
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Looking for social support
My PsA has found me living quite an isolated life. I struggle just to get through the day at work and there’s not much left to give after that. But I understand that if I continue to isolate I will have more stress and cope less and less with the pain. It’s such a perpetual cycle. So I’m reaching out for a hello, just to…
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Unsure of what to do
hello my name is Deanna I am 28 years old and was diagnosed with psoriatic arthropathy 8 years ago recently my symptoms have worsened and my mental health has declined I am currently taking time off my 3 day a week job because of this I have applied for pip in the past but due to not having a great understanding of my…
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PsA just started Amgevita
hello I’m new on here. Had PsA for many years (34). I’m 52 now. Just started biologics. Did anyone else feel dizzy & tired day after injecting? I’m just wondering how long I’ll feel like this, if it’s a settling in period. cheers Lou
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Struggling to manage frequent flare ups
Hello, my first post! I’m Sandi, a retired nurse, aged nearly 60. I live with psoriatic arthritis and osteoarthritis. Currently taking Benepali injections for the psoriatic arthritis, plus celecoxib and paracetamol for pain. I’ve recently completed the Nuffield joint pain course and joined the gym afterwards but I’m…
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Inflamed back/spine preventing walking
Hi all, I have Psoriatic arthritis which I have suffered with for 24 years, please could I have some advice. I am really struggling to walk more than a few steps at the moment. Every time I begin walking my back imflames in the middle of my spine and my hip hurts. Is there anything I can do or use that will help me walk…
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Anti-TNF
Hi all I'm about to start anti tnf injection (Hyrimoz) is or anyone using these and what are the side affect if any
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Adalimumab and suppressed immune system.
I've had PsA for about 8 years. 2 years ago, I started on Adalimumab injections. Since starting on Adalimumab, it's like a don't have arthritis. Most days I forget I have arthritis, that's how good Adalimumab has been for me. But, I've never quite understood how immune suppressed I am. My PsA is in my toes, feet, ankles…
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Covid Booster and Flares
I had a covid booster on 1st May - my 9th covid injection and the 4th Moderna in a row. For the first time I had a reaction to it. For 3 days afterwards all my joints were aching - not just those historically affected by my PsA. I then had my recommended 2 weeks off methotrexate after the injection during which things were…
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Hi! New to the forum a little about me
My story begins as a little boy learning to play tennis with his older brother and being taught by our father. My dad was a really good tennis player and did very well on the court throughout his years of playing. My arthritis journey start out in BC with some itchy patches of skin behind my knees and and in front of my…
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Cold sore
I developed a cold sore throughout the day yesterday and I don’t think I’ve ever felt so ill with one. I’ve had a sore face, earache, headache, swollen gland, eyes have felt swollen, extreme fatigue and more pain through my body than usual. I have PsA and osteoarthritis in my thumbs. I don’t think I’ve ever felt so ill…
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Patient education session (biologics)
Hello everyone, this in my first post here. I have a patient education session tomorrow because I'm due to start on adalimumab for PsA. I've got a list of questions, but are there any obvious ones I may be missing?
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Combination Arthritis
I’ve had osteoarthritis since I was 17-55 years ago, I’m 62 now. Since then but over 35 years ago I’ve also been diagnosed with Rheumatoid & Psoriatic Arthritis and I have spondylitis in my neck and lumbar spine. I have 2 full metal joints and had over 25 steroid injections with under 5 working. I’m on maximum medications,…
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Biologics
Hi all, after trying 3 types of dmards, am still on methotrexate but I now have an appointment to start the process with a view of going onto biologics. Can anyone give me any info on what is involved in the process? I know that I’ll need an mri and 4 inflamed joints (I think). Also, what biologics are there to try please?…
