-
Help and advice with diagnosis and medication
Hi, I'm new here and wondered if I could ask for some advice and support. I am 34 years old and was diagnosed with Psoriatic arthritis and Ankylosing Spondylitis around 5 months ago and started on the biologic drug Cimzia 5 weeks ago. Although I have been advised to give it up to 6 months to really have an effect, I…
-
Claiming pip
Hi i was diagnosed with RA and psoriatic arthritis 3 yrs ago since then it's got worse and working full time is getting much harder so I thought I would try and apply for pip i did and it was denied, I have appealed this and am now waiting for a tribunal date. Since applying though things have gotten worse I now walk in…
-
Hi there, I'm new!
Hi there, I'm new here but have been reading up on various threads since I was first diagnosed back in October. I found the community really useful: thank you for sharing your personal experiences, it has been a real help for me. A little bit about me: I was diagnosed with PsA and psoriatic spondylitis 12 weeks ago and…
-
Flare-up symptoms
Hi there, I was diagnosed back in October and I’m still trying to understand all the ins and outs of my condition, seronegative PsA and psoriatic spondylitis. especially flareups I’m unsure what they look like or should look like. I understand they are different for everybody. I’m in the middle of a flareup now and was…
-
Psoriatic arthritis
Hi All . I was diagnosed with psoriasis at 19 mainly affecting my feet which lead to psoriatic arthritis at 23 just before the pandemic affecting 16 joints between the pair of my feet witch caused me significant pain walking was almost unbearable, I didn't have any support so I continued to work. I already had already a…
-
Benepali injection & being taken seriously
Hi all I have been diagnosed with Rheumatoid arthritis since 9 months old. My recent diagnosis is psoriatic arthritis. I have been on Humira / Adalimumab for around 7 years but had constant flare ups in my ankles knees and elbows leading to endless amounts of steroid injections. I have now been on Benepali for around 5…
-
Poem, just a poem on psoriatic arthritis
Finger Up She’s got her swollen middle finger Extended, she can’t bend it back Into her palm, because it hurts too much, And stiff, And she doesn’t know why She’s been afflicted with a disease Called psoriatic arthritis She doesn’t think she deserves This tortured path, This throbbing red mess Is so annoying And sometimes…
-
Deleted
.
-
Pain management
Hi I'm new to this but I'm really at loss with my pain i have psoratic arthritis in my feet and osteoarthritis in both knees and spine and a bakers cyst behind my knee. I'm struggling with pain relief as I have health anxiety and emetophobia so I can't take new medications cos I worry about the side effects. I take…
-
A rock and a hard place
I’ve recently started treatment (methotrexate) for PsA and I’m struggling… badly. I’ve had awful side effects and dropping out the anti inflammatories has had a monumentos impact on my physical abilities. I’ve not been at work for the past week following a trip to hospital and physically I know in reality I’m going to…
-
Another Newbie to the Forum
Hi all Just joined the forum. I have had Psoriatic Arthritis for 23 years and started on Methotrexate yesterday. It would be nice to get to know people who understand how hard it is mentally and physically. Going for a nose around. Pls say Hello 👋🏻
-
Hello, partner of a new PsA sufferer and I have many questions...
Hi, My partner was diagnosed with psoriatic arthritis earlier this year (after going round in a few circles of being treated for gout and other things for a while!) After a few months of taking methotrexate and Lefluonmide, it feels like the pain and inflammation is getting under control. This morning though, he woke up in…
-
PsA Newbie!
Hi guys, I have recently been diagnosed with Psoriatic Arthritis at age 31. As pleased as I am to have an explanation for why I can’t get down the stairs in the morning, I’m struggling to see a day when things will be better ☹️ and that’s what every day is right now, a struggle. I have a young child, a full time job and a…
-
Can anyone offer advice?
Hi everyone, I'm brand new here and out of sheer desperation, looking for some advice or guidance. I'll try to be as brief as possible but my journey has been going on for over 12 years, so I'll try to be concise. In February 2012, after a nasty 'flu infection that left me with a lung infection (MRSA), I develped a very…
-
Coping with arthritis from a young age
Hello Im new to this so I don’t know how it works, but just thought I would come on here and say a little bit about myself My name is Rosie, I was diagnosed with arthritis and uveitis at the age of 1, I am now 20.I would say when I was younger I didn’t struggle with it as much, but as I have got older has made me for more…
-
Biotherapy - Etanercept
Hi, I've just joined this group. I've had Psoriatic Artthritis for around 30 years. In the 1990s my GP tried 3 different tablets. Unfortunately each had a bad side effect (Liver, Eyes, Clinical Depression) So all were stopped.. I lived with it, but over the last year more fingers and other joints have got much worse.…
-
Vaccine advice
Hi All, I’m new here and am just wanting some advice to see if anyone can assist. 🤞🏻 I’ve been diagnosed with Psoriatic Arthritis for approximately 2.5 years and am on weekly methotrexate injections (delightful!). My wife and I recently booked a holiday for next year which requires a Yellow Fever Vaccine; however, this is…
-
Trouble Sleeping with pain 😴 🥱😫😢
Hi I was diagnosed in 2016 with Osteoarthritis in both knees I now have it in both ankles, feet and hips. I need 2 new knees but they are trying to make me wait till I'm a bit older (im 53). I use a walking stick daily and have a wheelchair as I cant walk for long. I had severe psoriasis since 1992 (currently under control…
-
Rinvoq - just received 1st delivery
Hi, I ve received my 1st delivery of Rinvoq ( upadacitinib) & I’m really nervous about starting it. Each time I’ve been given info the side effects seem worse, very worrying and very common. I’ve been very lucky so far with the variety of medications that I’ve been on and only really the last one which was a problem with…
-
Recent diagnosis of psoriatic-arthritis
Hello. Im new here. Last week I was diagnosed with psoriatic-arthritis after suffering a sore back, knees and ankles for several months. Now having to come to terms with this diagnosis and what the future will bring. Any suggestions or advice would be appreciated.
-
Difference between osteoarthritis and psoriatic arthritis
I have been diagnosed with osteoarthritis but also suffer from psoriasis of the scalp and elbows. How do I know if it is psoriatic arthritis I have and what is the difference?
-
Hello
Hi all My name is Sandee I have PsA/ Fibro and have been on MTX well for the last three months, I started so well now I feel as if I am on a downward hill! I have an easy job I LOVE but I am exhausted by home time even if I do nothing taxing. I am an upbeat person and try not to moan and gripe if I can help it but I'm…
-
Biologic - Adalimumab
Morning all, After some experience on the Biologic Adalimumab. Really hoping it works for me. Methotrexate - Made me really poorly for 2 days after taking. Leflunomide - Gave me really high blood pressure. Sulfasalazine - Still using but doesn't seem to be very effective. Booked in for bloods and x-rays, hopefully start on…
-
Looking for social support
My PsA has found me living quite an isolated life. I struggle just to get through the day at work and there’s not much left to give after that. But I understand that if I continue to isolate I will have more stress and cope less and less with the pain. It’s such a perpetual cycle. So I’m reaching out for a hello, just to…
-
Unsure of what to do
hello my name is Deanna I am 28 years old and was diagnosed with psoriatic arthropathy 8 years ago recently my symptoms have worsened and my mental health has declined I am currently taking time off my 3 day a week job because of this I have applied for pip in the past but due to not having a great understanding of my…
