Takayasu arteritis

Suzueq47
Suzueq47 Member Posts: 3
edited 12. Jun 2025, 07:07 in Living with arthritis

Hi there just wondering if anyone out there has takayasu that can share their experience with the condion with me. I was diagnosed in Nov 24 with it but just a week or so of being diagnosed I took another bad stroke that has affected my sight. I've had at least 4 strokes within a year of my first one Jan 24. Any feedback would be so much appreciated. Thankyou x

Comments

  • olivia_b
    olivia_b Moderator Posts: 103

    Hi @Suzueq47,

    Welcome to the Online Community, we are so happy to have you hear and I hope you find the platform a welcoming space.

    Hope you are doing well and I am sorry to hear about the issues you’ve been experiencing with this condition.

    While I have not had personal experience with takayasu, those who work for our helpline may have more experience or resources to assist you.

    You can contact our helpline on 0800 5200 520 or helpline@versusarthritis .org

    I truly hope this route can assist you and give you the support you need.

    Take care, Olivia x

    Need more help? - call our Helpline on 0800 5200 520 Monday to Friday 9am to 6pm

  • Suzueq47
    Suzueq47 Member Posts: 3

    Thankyou very much for replying. I will give the number you gave me a call.

  • Poppyjane
    Poppyjane Moderator Posts: 926

    Hi @Suzueq47

    I found this link I hope it might be interesting for you

    https://www.versusarthritis.org/about-arthritis/conditions/takayasu-arteritis/

    Best wishes

    Poppyjane

    If it would be helpful to talk to someone ring the Helpline 0800 5200 520

    Monday - Friday 9.00a.m. - 6.00p.m.

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