Hi I've had JIA since age 2 I'm now 40s have bilateral hip/knee replacements and not had severe flare ups for years, but every now and then I'll get a sudden attack which has always happened in the night, I can go to bed fine and wake up now and then as normal then ill wake up again and my hands, arms will be stiff…
Hi everyone, I am 31 years old and was diagnosed with Adult Onset Stills Disease two years ago, just before I got married. I don't think I have as hard a time as other people with AOSD in terms of the stiff joints, but I do feel pain in my arms and shoulders a lot, which is hard as I had a baby 10 months ago and some days…
Good evening everyone, I was diagnosed in June last year, and have been getting used to routines to keep healthy, however there are still new experiences that I am coming across. A bite on my leg got infected which meant I had to come off my treatment last week. As I lay in bed with my whole body aching, struggling to…
Hello. I don’t know if this is the right forum but I just wondered if anyone can give us some advice. My husband was diagnosed with adult onset stills disease, a type of arthritis. A year since, several bouts of cyclophosphamide and Rituxymab and he’s not much better. Still suffers daily pain and low energy. The doctors…
My partner was diagnosed during the first covid 19 lockdown with Adult Onset Still's Disease and I was just looking for some advice regarding his treatment. I know this disease is very rare, so this may not be able to be answered here, but I'm concerned about the way the hospital is handling his treatment. He's been…
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