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Hello all.
I am new to this community and wanted to say hello and introduce myself. My name is Dale and I have been diagnosed with Mixed Connective Tissue Disease (MTCD). This condition consists of Systemic Lupus Erythematosus (SLE), Rheumatoid Arthritis (RA) and Raynaud's Syndrome. I have Covid to thank for this. The doctors told me…
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Covid Booster and Flares
I had a covid booster on 1st May - my 9th covid injection and the 4th Moderna in a row. For the first time I had a reaction to it. For 3 days afterwards all my joints were aching - not just those historically affected by my PsA. I then had my recommended 2 weeks off methotrexate after the injection during which things were…
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Refused Spring 2023 Covid booster/anyone had a text from NHS England?
Been refused a Spring 2023 Covid vaccination as the pharmacist says I am not on a high enough dose of methotrexate and they say that all eligible patients for the Spring 2023 booster should have received an email, text and/or letter from NHS England stating their eligibility. Without sight of this communication they will…
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Stills Disease, Treatment and now Covid
Hi Just wondering if anybody has had any of these treatments for covid? I've recently been diagnosed with adult onset stills disease, been on high dose oral steroids for about 2 months now, last week had 3 pulse IV infusions of steroids and was about to start methotrexate this week when I've now tested positive for covid…
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5th Covid Vaccination due/advice is now to stop MTX for 2 weeks
Hello Just had my latest appointment with my Rheumatologist and the recent findings when having a Covid Vaccination and taking Methotrexate is to stop taking the medication one week before the Vaccination and one week when you have the Vaccination. Out of my four Vaccinations, I have suffered two bad reactions, one after…
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Covid 19 jab
Hello to all! I have rheumatoid arthritis and taking hydroxychloroquine. I had my 3rd Covid jab in December and I am wondering if I should have another jab now. Any ideas?? Thanks!
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Covid and Tocilizumab
Hello, I am day 6 positive for Covid and have stopped my Toc (11 days since last dose) but can feel I'm starting to get to achy and flare-like. Does anyone know when it can be resumed? Is it once I test negative? I'm confused as Toc was being used to treat Covid. I'm waiting for Rheumo team to contact me but that takes…
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Latest News, Links and Updates for Coronavirus
We will be posting the latest information and links in this thread at the top of our dedicated Discussion board. Check here for regular updates on the Corona Virus. We know that many of you will be impacted by the coronavirus (COVID -19) in the UK. Working with the NHS, health professional organisations and charities, we…
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news update on the third dose of the vaccine
In September 2021, the JCVI (Joint Committee on Vaccination and Immunisation) announced that people who have severely suppressed immune systems at the time of their first and second doses of the vaccine would be able to get a third dose. This is not a booster dose, but an additional ‘top-up’ dose to increase protection…
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NSAID and Covid.
So on Saturday I got the dreaded positive test result from the lab (despite having both jabs). And I also had a steroid joint injection 3 days before my positive result so hope that doesn’t complicate things. Now on day 3 of Covid and so far it is just like a head cold with sore head, stuffy nose, sneezing. Hopefully it…
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No Covid antibodies after vaccination
Hello, I have rheumatoid arthritis and am on methotrexate 25mg per week. I had my first vaccination jab (Astra Zeneca) over 3 weeks ago at the beginning of March. I am in the Biobank study group and I was offered a blood test to check for Covid antibodies. I did my test yesterday and it was negative for antibodies. I've…
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LFT results
When the government started offering free LFTs to anyone who wanted them - and encouraged us to use them twice weekly in order to keep ourselves and others safe - I thought this was a good idea and got some for husband and self. Unfortunately, they’re causing me big problems because I keep getting false positives. The LFT…
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Coping Mechanisms during Covid-19
Hi guys, I hope you are finding ways to cope in these strange times and I would love to hear about them if anyone is willing to share. I just wanted to say hello as I have just signed up to Versus Arthritis, my name is Niall I’m 31 and I was diagnosed with PSA when I was 26. As many (if not all) can relate, it has…
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STORE CUPBOARD
I am very naughty often using the supermarkets as my 'larder' and am fairly sure I am not the only person who does so Given that our lives are going to be (if they aren't already) seriously restricted due to the COVID-19 virus I thought maybe we could swap ideas to help each other get by...… what sort of items are…
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Biologics treatment and coronavirus
Hi, im getting slightly concerned, I’ve been on biologics for nearly 20 years, I was part of the pre NICE trial group. But now I’m getting a bit worried about coronavirus because of the fact the treatment seriously suppresses the immune system, is it a bit of a death sentence to have it if I was then to catch the virus?…
