Hi, I've been suffering from chronic pain in my neck which causes severe migraines. I was diagnosed with klippel feil syndrome last year in C4/5 with degeneration in C6/7 and no disc material in C3. Also bone spurs. Steroid injection last year in C6/7 but made no improvement. I struggle daily with pain and use a scarf to…
Hi I’m new to the community, but was hoping some of you may be able offer some advice re. a situation I am in. I am currently taking methotrexate & hydroxychloroquine for my RA and in January this year my consultant recommended that I should be treated with biologic therapy if this combination of treatment proved…
After a long day, my operation took place at 5 pm. I was a nervous wreck all day but the op was amazing. The theatre team were fab. I even saw my old hip bone and the reason I was suffering so much with it. Exposed bone and extra bone growth. How I wasn't in more constant pain I really don't know. Back in my room now ,…
Hi all, I was diagnosed with PsA at around 16/17, I’m now 34 and am currently in the process of getting a diagnosis of fibromyalgia. I’ve had a blood test to rule out lupus, just waiting on the results for that but going off symptoms I think it’s more likely to be fibro. I'm used to the swelling and pain of PsA but I’m…
Have read comments that little is reported of this procedure from 'inside experience' so will share mine if anyone is interested. Had 3 fractures to head of humerus late September 2017. These became displaced so were plated, screwed and pinned two weeks later with the surgeon warning that his handiwork might not provide a…
Hi Everyone, Just thought I would say Hello. I have Osteoarthritis in my spine and it is giving me lots of pain. Not a good way to start a conversation when you have just joined. I’m wondering if there is anyone on here who lives in Plymouth, as it would be good to get together sometime. Let me know if you live in Plymouth…
Hi, I’m 21 been diagnosed with AS (Ankylosing spondylitis) since I’m 15 and it’s feels like it’s gotten worse pain and discomfort wise. I started on some orange coloured pills, then methotrexate (both useless) and then biologics (2 years after diagnosis). First biologics was amgevita and I felt normal with that up until…
This is an account of my experience of being a rheumatoid and having my shoulder replaced. It’s not really for comment but just meant as a guide for anyone else with RA looking at having the same procedure. I will write in installments and add a couple of photos of the scar as we go along. This is just my experience. We’re…
Has anyone noticed an increase in pain and inflammation whilst we have this lovely weather. My Knee feels swollen and tight, but with work and a busy home not much rest time.
For a year I have been told that my neck pain was simply an age related wear and tear issue and the local clinic simply offered standard pain relief suggestions. Research now shows it is not just an 'age' issue but also a distinct disease often related to metabolic issues. There is very little about this on most…
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