Pain management for Ankylosing spondylitis
Hi, I’m 21 been diagnosed with AS (Ankylosing spondylitis) since I’m 15 and it’s feels like it’s gotten worse pain and discomfort wise.
I started on some orange coloured pills, then methotrexate (both useless) and then biologics (2 years after diagnosis). First biologics was amgevita and I felt normal with that up until last November and in April I went to doc about the amgevita no longer working so they switched me to cosentyx.
since the switch to cosentyx I feel the exact same as I was on amgevita and I don’t feel my pain is being managed. I went to gp and rheumatologist and got naproxen, steroids and co codimol. I felt good for about a week and I’m back feeling grim again.
Question is, has anyone been in a similar situation and how do I get my pain managed.
Note:
Gp told me painkillers won’t help me because it’s inflammation and rhematology doc doubled my dose of cosentyx.
Comments
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Good morning @niallb04 welcome to the online community. From your post I see you are taking Cosentyx (also known as secukinumab) for your Ankylosing Spondylitis (AS) so far without much effect.
I am so sorry that your Amgevita stopped working for you.
Managing pain is really challenging for most people with Arthritis I will attach this information it's possible you may have already tried a lot of what is mentioned, but it is worth reading:
I did you a quick search for discussions about AS I don't know whether they would be of interest?
If you see any threads which strike a chord do reply to them and hopefully you will get some support back from others with your condition. If you press the @ button before their username it should show up blue and they ought to get an email notification that you have replied to them.
My very best wishes
Ellen.
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