Pain management for Ankylosing spondylitis

niallb04

Hi, I’m 21 been diagnosed with AS (Ankylosing spondylitis) since I’m 15 and it’s feels like it’s gotten worse pain and discomfort wise.

I started on some orange coloured pills, then methotrexate (both useless) and then biologics (2 years after diagnosis). First biologics was amgevita and I felt normal with that up until last November and in April I went to doc about the amgevita no longer working so they switched me to cosentyx.

since the switch to cosentyx I feel the exact same as I was on amgevita and I don’t feel my pain is being managed. I went to gp and rheumatologist and got naproxen, steroids and co codimol. I felt good for about a week and I’m back feeling grim again.

Question is, has anyone been in a similar situation and how do I get my pain managed.

Note:

Gp told me painkillers won’t help me because it’s inflammation and rhematology doc doubled my dose of cosentyx.

Ellen

Good morning @niallb04 welcome to the online community. From your post I see you are taking Cosentyx (also known as secukinumab) for your Ankylosing Spondylitis (AS) so far without much effect.

I am so sorry that your Amgevita stopped working for you.

Managing pain is really challenging for most people with Arthritis I will attach this information it's possible you may have already tried a lot of what is mentioned, but it is worth reading:

https://www.versusarthritis.org/about-arthritis/managing-symptoms/managing-your-pain/

I did you a quick search for discussions about AS I don't know whether they would be of interest?

https://community.versusarthritis.org/search?domain=all_content&query=ankylosing%20&scope=site&source=community

If you see any threads which strike a chord do reply to them and hopefully you will get some support back from others with your condition. If you press the @ button before their username it should show up blue and they ought to get an email notification that you have replied to them.

My very best wishes

Ellen.