My daughter is 4 and was diagnosed with oligo articular jia in April 2011 after many trips to the doctor and being refered to the wrong department at the hospital. This was an awful time as she was in a great deal of pain and could not walk what i would have given to talk it all away from her. She had her first steroid…
Hi, My boys left knee had suffered 3 big swelling events in the last 8 months that has left him hobbling for 2 weeks at a time. Today we saw a consultant who has assessed it as almost certainly arthritis and referred him for a MRI and taken blood tests. A few things were said but we were that shocked it all seems a bit of…
Hi everyone. My little girl is 6yrs old & has been diagnosed with JIA. She was admitted into hospital on 12.09.2012 & was given 17 steriod injections. She is about to start Methotrexate. After the injections she had a flare up in all the joints in her hands so they made her splints to sleep in. This is all new to us &…
Hi, Three months ago my 14 year old son became suddenly unwell with a spiking fever, swollen glands, loss of appetite, rash all over his body and stiff painful joints. Initially I thought he had glandular fever and treated him with ibuprofen and paracetamol. After 5 days of not eating our GP admitted him to hospital. It…
I have just had my claim for DLA turned down after waiting 4 months. I would not have applied but my sons consultant told me to. I have had a very stressful year. Alfie has had 3 sets of joint injections including his tendons. I have had so much time off work & really dont know what my next avenue is. Can anyone advice me?…
My 7 year old daughter is feeling as if she is the only child suffering with JIA and if I'm totally honest, I'm feeling very alone too.. Does anyone know of a good way to get to know other people with the same condition? I thought joining this, might help.. I think it would be great if both my daughter and I came into…
Hi.. My 7 year old daughter was diagnosed with poly JIA in Aug and its all been very full on! She's had infusions twice and is now on Methotrexate inj weekly, folic acid, tummy settler and is just coming to the end of a 10 wk course of steroids! Her joints are still not fully under control, and there is talk of her going…
Hello everyone. i was hoping someone would read my post and respond if they have any information that may help. At beginging of june my 14 yr daughter complained that her hips were hurting. in the past she has at times complained that her knees hurt. After a week she was still complaining so i took her to the gp. he…
Any one got any experience of them? My nearly two year old is having one in her knee next week.
Hi all not been on for a while. I'm in need of some advice sent forms in to claim for Dla again for Phoebe, wrote everything down but not allowed it on the basis of the letter I sent that said she had no active arthiritis at the moment. Do I dispute the decision or leave it? She is due to see Dr wood next week where I am…
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