He's been on a high dose of steroids and anti-inflammatories for the last five weeks and will be weaned off all medication over next four weeks to see what happens. Am feeling very anxious and lonely to be honest. I'm not sure what to expect. So pleased to have found this forum. Nic x
hi, need some advice please. applied for blue badge for thomas, went for assessment which lasted half an hour, consisted of a stair climb, 80 metre walk on the corridor, and questions about family dynamics and facilities in the home. Nice lady (an occupational therapist designated by leeds city council to assess all leeds…
Hello everyone! Hope you all had a lovely christmas... Pain free and quiet x Tom is not very well, he was in hospital yesterday with suspected DVD in his left calf. No rheummy available, docs knew nothing of JIA or embrel. Anyway after much chat, Tom was sent for US, negative for blood clot thank goodness. Spoke with…
Hi My name is Maria and my 5yr old has been diagnosed with JIA and it has been the hardest 3 mnths of our lives. I would like to chat/meet other parents as I feel alone. Many thanks Maria
Nobody has added anything new for a while which i hope, means that your little people are doing ok right now. I really hope so. I wanted to wish a merry christmas to all those kids, mums and dads who have been suffering this year and to wish a happy and healthy new year to you all. Lots of love from Sam & freya. Xxx x:-D
Ok not suer where to start so here goes and I will apologise now if it runs on forever lol 2 years ago when Kayleigh was first diagnosed with JIA she was due to have grommets but the surgeon at the time who also happened to be head of department decided her hearing wasn't bad enough and discharged her from ENT. It got…
My daughter is is nearly 17 has had JIA since she was 2 but was not diagnosed until she was about 7. She is back on treatment again since last nov but is struggling with lots of things at the moment. My dilemma is do we stay with childrens services which are not good where we live (though she is shared care with LGI) or do…
Hi everyone, Just wanted to give you a heads up on a strange reaction P had to the flu shot. A few hours after the shot P lost strength in her hands. She kept dropping things - after 2 broken bowls and dinner all over the floor, I checked her hands and discovered she had no strength in her fingers at all. It came back…
Just in case anyone else goes through this but got told yesterday that if your child is having an op (not steroid injections) then they are to stop taking enbrel for two weeks prior. Kayleigh was supposed to have her adenoids out and grommets in today but happened to bump into her consultant yesterday when we picked up her…
Eithne has had some massive mood swings over the past week it's unbelievable - it's honestly like she's possessed at times! She had steroid injections on Monday in her foot, and since Friday has been saying that her leg hurts up where it joins the hip. We've looked and there's no swelling, but is it possible her mood…
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