Hello, my name is Sue. I would like to reach out to parents/carers and their children who are at school in the UK who feel they are being pressurised by the school to send their child in when they feel they are still unwell. Every year since nursery, my child is now in Year 4, I have a showdown with the headteacher. We…
Hi all, I’m so glad to have found you – have never posted and am hoping for some wise words! My daughter was first diagnosed with JIA aged 5 after first flare up at 3. We then had many years of one flare up every other year max (controlled w ibuprofen) until she was 9 when both knees swelled up. Since then one knee in…
Hi, my daughter was admitted to hospital in September with reactive arthritis following tonsillitus. Scans etc showed fluid on her hips. However since then she continues to suffer from joint pain. She complains of pain in her hip, knees and fingers. Shes often complains of being stiff, has had episodes of joint swelling…
I was hoping someone could maybe help! My 4 year old daughter has had her methotrexate upped and since then she has been a different girl. She is very, very moody and angry most of the time and I wondered if it had anything to do with her methotrexate. Thanks for your help in advance Michelle
my daughter was diagnosed with pjia when she was 2 she is now 11 years old she started off on steroids through a drip and was put on to methatroxate by tablets then injections by her father she used to get bloods tests once a week also the medicine worked wonders for her and you couldnt tell she had it so was taken off the…
Hi All, First time poster who himself has psoriatic arthiritis and unfortunately our 2 year old was diagnosed with IJA recently. I have taken methotrexate myself with manageable sides but my daughter has started on the injection a few days ago. She has been suffering with really bad diarrhoea today and was wondering if…
18 months ago I was diagnosed with Arthritis in both knees. I have recently been temporarily been signed off work and my employer has asked if I am now classed as disabled.
Having a really tough time with my 11 year old. Was on ibuprofen on and off since the age of 6 but couldn't tolerate. Put on meloxicam a few weeks ago but really struggled so now on arcoxia. Any ideas? Advice? Thanks
Does anyone have a child participating in the clinical trial of Tofacitinib? I'm keen to hear how it's going as it has been suggested as a possibility for my son.
Hi my daughter came off the metoject pen in February. She had been having metho for a year. For her JIA. Now we are in August just after her 5th birthday and she has started having stiff neck pain. Doctors say it torticollis. Which occurs in young children. But it has been going on now for nearly 4 weeks on and off. Out of…
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