I have a 4 year old boy diagnosed 6 months ago- joints affected left knee and both ankles. after 6 months of steroids and a corticosteroid injection to the knee, he started on methotrexate about 8 weeks ago. we are told it could take up to 6 months before meds make him pain free but for now, his knee (infact entire leg) is…
My extremely active and athletic 10 year old daughter was recently diagnosed with polyarticular JIA. This is her first year she has to deal with this illness in school. The first few days were difficult, writing was very painful. I was able to discuss with her school early on and they have made accommodations for her,…
Hi, Our daughter is two and a half, and is currently being seen at Great Ormond Street Hospital due to reduced movement in her neck which was noticed when she was around a year old. We were originally seen by our local health services and her physio referred her to GOSH as he thought the sternocleidomastoid muscle in her…
Hi i am new to this site - my 14 year old daughter has just been diagnosed with jia - it has come as such a shock as she has never been really ill at all in those 14 years - we had hoped it was just restricted to one joint but over the last weekend her knee has become infected and she has to attend hospital tomorrow for…
Hi, I'm new to this so forgive me if I get things wrong!! My 15 year old son has had a possible diagnosis of poly JIA yesterday, he has had problems from being a baby but nobody could ever find anything wrong and then in 2011 my GP noticed a limp so we were referred to orthopaedics and had X-rays, MRI scan and bone scans…
I hope you have had the best Christmas possible and that 2015 brings far better times for everyone who has to post on here. I wish you all very well indeed. DD
Hi, My son is now 17. He was diagnosed with systemic JIA (stills disease) when he was 13. I thought his condition had stabilised with various medication and treatments but he is having a bad flare up at the moment. It has really upset me and I need to talk to other parents who understand this type of JIA (various other…
There is a free event being held for young people (aged 12-25) called 'Too Young for Arthritis' in London. Saturday 22nd November, 1-4pm At Wellcome Collection Euston Road NW1 2BE (Very close to Euston Station) For more details and to register visit: http://www.arthritiscare.org.uk/InyourA ... urInterest Hope to see you…
Morning all, After six weeks of the usual MRIs, x-rays etc my daughter was diagnosed with poly JIA. She had steriod injections and fluid removal a couple of weeks back and has started her first does of methotrexate. I have a few questions that I wonder if any of you may be able to help me with: (1) The steriod injections…
My 2 yr old son after 8 weeks of limping, plaster casts, MRI's, scans, etc, etc has finally been diagnosed with JIA. I was feeling actually quite calm about the whole thing and trying not to jump the gun and get carried away with worrying about the unknown. Today I met with someone at the hospital who basically just…
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