Hi everyone, been to gp to get results of ANA, as showing symptoms of lupus. Came back negative, but she will write to try to get an earlier appt at the rheumy clinic.
She said my ESR very high, and seems I am in permanant flare, I have pain in my feet and legs and hands every day. The MXT not working so far, am on 12.5 mg now. She thinks they need to add something, I am so fed up. The tramadol and paracetemol dont work, she wont let me have anti inflamatory due to asthma.
So exhausted all the time, and today went out for a while, came back and slept for 3 hours, this is not on, as I work full time with 2 babies, so dont get the chance to rest. She asked if the clinic knows what I do, I told her yes, and she said she is surprised they havent said to cut down. They never seem to listen anyway, she says I have to be more forceful and insisit on sorting out the meds.
Right now I have had enough, cant deal with the constant pain and tiredness, and just carry on as normal. Also have a friend to says I must keep working as I will be bored, and cant be in that much pain. This makes me feel lazy. I now have to wait for a nearer appt, the last one was 4th Sept, and the next was 22nd Jan. GP says it cant be left that long, but clinic says "give it time". I feel like giving up and staying in bed and hiding from everyone and everything. Sorry everyone, but you all understand.