in severe pain again

jordansmum
jordansmum Member Posts: 316
edited 3. Apr 2010, 05:05 in Living with Arthritis archive
hi everyone been a while since going on the forum but have had sooo much on my plate but enough about me . Poor old jordan he is in so much pain again with his hip and knee i don't know what to do for him i phoned the rhummy nurse and she got him an appointment to see the consultant last friday but they cannot fit him in for another injection into the joint until 26th april .He is in so much pain i had to help him in and out of the bath yesterday he couldn't sit on the chairs at school either as it caused him so much discomfirt [sp] i feel so useless :cry::cry: i hate to see him like this,has anyone got any advise for me i would be so grateful cheers jenny.

Comments

  • frogmorton
    frogmorton Member Posts: 27,376
    edited 30. Nov -1, 00:00
    Hi Jenny

    The poor lad :(

    My heart goes out to him and to you too - as a mum I know how awful it is to see them suffer and be so helpless :(

    26th April is such a long way off :shock:

    Would you be able to try oral steroids from the GP?? Or is he already on them? If he is sorry for being so forgetful :oops:

    As for the seats at school he should be able to take a cushion surely? They must want him there so surely they will allow this at least.

    Does he brak up this week too? I hope so - you can make him more comfortable at home with ice packs and wheaties etc and easier to distract with computer games if you need to.

    Dont apologise for not posting - you have clearly been having a rough time of it :(

    Take care of you both

    Love

    Toni xx
  • maria09
    maria09 Member Posts: 1,905
    edited 30. Nov -1, 00:00
    Hi
    I agree with Toni see if your GP can do the steriod coz its a long time for him to be in pain
    Try contacting Rheumy Docs again see if they can see him in an emergency
    Best of luck
    Ita alwful watching them suffer when you cant help
    take care
    Maria x
  • jordansmum
    jordansmum Member Posts: 316
    edited 30. Nov -1, 00:00
    wish my gp was so helpful he was reluctant to give him a repeat prescription for diclofenic last time i sore him saying that the consultant shouldn't prescribe anything to strong i just wish it was him in pain then maybe he would be more sympathetic i will also be glad when he breaks up this weekend but looks like our plans to take him to thorpe park are on hold for abit but may phone the rhummy nurse to see what she can suggest wheat bags and hot water bottles are ok but only for a short time i just hate to see him like this.
  • jenzie06
    jenzie06 Member Posts: 708
    edited 30. Nov -1, 00:00
    Sorry to hear he is suffering. Has Jordan tried a TENS machine? Its a non-medical form of pain relief and can be bought from chemists or through the hospital physio department (not sure if they still offer this, bought mine a long time ago).
    I use mine when I'm bad and I'm restricted with meds at the mo due to pregnancy. I've even slept with it on (although I've taped the pads so they don't wander off in the night). It also offers something positive to do that won't have side effects. There's also no time limit to wearing it and Jordan can wear it under his clothes so it doesn't stand out at school.

    Might be worth asking your GP if he/she thinks its a suitable option?

    Hope he's feeling better soon.
  • dorcas
    dorcas Member Posts: 3,538
    edited 30. Nov -1, 00:00
    Hi Jenny,

    so sorry to read that Jordan is having so much pain. :( this must be such a worrying time for you as his mum......

    As Toni and Maria said ...phone rheummy again about bringing Jordan in sooner for treatment...
    don't they have arrangements for urgent requests for treatment? my hosp has a rheumatology day ward that I can phone if I need to be seen urgently, so might be worth finding out if your has something similar.
    or...
    You could phone the consultant's secretary...again I have always found them to be very helpful and they have direct contact with their consultant...so would that be worth trying?
    or...
    If all else fails and Jordan continues in such awful pain you could consider presenting him at A&E....he would have to be seen then. I know it's a bit radical but maybe that's what's necessary.

    I do hope that you get some help..we are all here for you any time so please keep posting.x

    You could also phone our helpline peeps in case they have other suggestions...and also for some support for you.

    Iris x
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Is his seat too low. I know that used to aggravate my hips and knees ( before my R.A was more under control and hip replaced). Also the school might have those soft chairs for the secretary that moves about on wheels. They also get that out especially for me when I go to school asssemblies.
    I know he wont want to stand out or get noticeably different/special treatment but a slightly higher chair would help...I know.

    Can you put in a shower?Have you space/money for that?Sorry i know these things arent easy but if you can it will allow him some independence as I am sure he wont like mum helping him in and out of the bath.

    Elizabeth
  • elnafinn
    elnafinn Member Posts: 8,043
    edited 30. Nov -1, 00:00
    Dear Jenny

    I am so very sorry to read your posting. I would take Jordan to A&E if you get no joy elsewhere. He needs to be seen now. It will not be doing your health and spirits any good either to be under such huge distress of seeing your child suffering. I think that is what I would do, if I got no help offered elsewhere before the end of April. Defies belief!

    Luv
    Elna x
  • bubbles
    bubbles Member Posts: 6,508
    edited 30. Nov -1, 00:00
    Sorry to hear this Jenny. I would give the GP nd rheumatolagy once last try, then follow the good advice already given - ending up at A & E if necessary, that is usually a fast track to getting something done. Make sure you mention the fact that the rheumy appointment is for another months time and the GP could not offer any further help.
    ((((())))) Bubbles
  • speedalong
    speedalong Member Posts: 3,347
    edited 30. Nov -1, 00:00
    Hi
    This is terrible - poor Jordan and poor you - us mums hate being powerless don't we.

    A month is too long to wait. That is ridiculous. How long does it take to give a steriod shot? Can only a specialist give it?

    I would push every avenue - GP, ring rhuemy nurse and consulant's secretary.

    Why should the poor thing have the Easter break ruined, by being in pain.
    If all else fails and Jordan continues in such awful pain you could consider presenting him at A&E....he would have to be seen then. I know it's a bit radical but maybe that's what's necessary
    .

    I wholeheartedly agree with this advice. My Dad did this with me once when I was in my early teens - I needed my stitches taking out - and for one reason or another - no one was prepared to do it!! He set me up in A&E waiting room with mags, chocolate and a drink and left me to it. I was soon dealt with. Dad was only in the cafe and we were soon home again!!!

    Keep advocating it is all you can do.

    Speedalong
  • jordansmum
    jordansmum Member Posts: 316
    edited 30. Nov -1, 00:00
    hi thanks guys i have left a message with the rhummy nurse but it was her that made the appointment for jordan to come in and have his injection, they like to do it under sedation and with an xray i agree that i cannot wait until end of april so yes if i get nowhere after speaking to the nurse i will take him to a&e. we are just in the middle of putting in a down stairs shower which is a walk in one so this will be of great benefit i am sure. We only have a childrens clinic once every 6 weeks but if he has to be seen earlier then its in the adults clinic. I have also made an appointment with his school teacher so i can fill her in with the problems jordan is having he is taking a cushion with him tomorrow so hopefully it will help but thanks for all your support it is so nice knowing that there are people out there knowing what i am going though thankyou jenny and jordan.
  • cutieclaire
    cutieclaire Member Posts: 134
    edited 30. Nov -1, 00:00
    Hi Jordans mum

    Oh I really feel for both of you. It sounds orrible. I can really identify with you, hating to see your little on ein such pain. Seeing your child in pain is awlful as we would just like to hug them and take it all away, but we cant.

    I would try and get your GP to call the consultant when you are there as you really need something. My GP was fantastic and called my consultant (actually paiged her) to explain that I was in so much pain and needed something and they prescribed me a better anti inflammatory. Worth a try and if not then I would complain a little as pain is awful to bere (sorry spelling).

    I really felt for him when you said about Thorpe Park and missing out, how horrible is this, pain is so horrible. Not just for him but for you seeing it 2.
    I really hope someone listens to you and maybe the A and E would be a good place if it gets that bad.

    Take care and hopw to chat very soon.

    Love to Jordan.

    Love Claire
    xxxxxxx
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    jordansmum wrote:
    wish my gp was so helpful he was reluctant to give him a repeat prescription for diclofenic last time i sore him saying that the consultant shouldn't prescribe anything to strong i just wish it was him in pain then maybe he would be more sympathetic i will also be glad when he breaks up this weekend but looks like our plans to take him to thorpe park are on hold for abit but may phone the rhummy nurse to see what she can suggest wheat bags and hot water bottles are ok but only for a short time i just hate to see him like this.

    Hi Jordans mum. We are planning to go to Thorpe Park too! There is a lot of walking unfortunately.

    Elizabeth
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    jordansmum wrote:
    hi thanks guys i have left a message with the rhummy nurse but it was her that made the appointment for jordan to come in and have his injection, they like to do it under sedation and with an xray i agree that i cannot wait until end of april so yes if i get nowhere after speaking to the nurse i will take him to a&e. we are just in the middle of putting in a down stairs shower which is a walk in one so this will be of great benefit i am sure. We only have a childrens clinic once every 6 weeks but if he has to be seen earlier then its in the adults clinic. I have also made an appointment with his school teacher so i can fill her in with the problems jordan is having he is taking a cushion with him tomorrow so hopefully it will help but thanks for all your support it is so nice knowing that there are people out there knowing what i am going though thankyou jenny and jordan.

    Glad about the shower. It will really help him. I was lucky as we were building an extension when I had a massive flare so put in a double shower.I have not used a bath since because of the difficulty and pain getting in and out.Get a shower tray that is not slippy.Mine is textured so I never feel unsafe and have a grab rail on the wall and a shelf for all my smellies as cant bend down and pick things up.
    Elizabeth
  • jordansmum
    jordansmum Member Posts: 316
    edited 30. Nov -1, 00:00
    hi guy's just to fill you in jordan has been put on some oral steroids for the next couple of weeks so hopefully they will kick in and he will feel better soon .Hope you are all keeping well and enjoying the pouring rain it just hasn't stopped here all day.
  • valval
    valval Member Posts: 15,897
    edited 30. Nov -1, 00:00
    jordansmum wrote:
    hi guy's just to fill you in jordan has been put on some oral steroids for the next couple of weeks so hopefully they will kick in and he will feel better soon .Hope you are all keeping well and enjoying the pouring rain it just hasn't stopped here all day.

    thanks for letting us know so glad they have given him something to help. enjoy the day put will do you both the world of good. i do hope the school allows a cushion as sitting on hard chairs is a no no they cause so much pain
  • speedalong
    speedalong Member Posts: 3,347
    edited 30. Nov -1, 00:00
    Hope the oral steriods kick in soon. At least with the rubbish weather it is an excuse to do indoor activities, which are less physically demanding until the meds start to work. Hopefully the weather and Jordan will improve at the same time!!

    Speedalong
  • dorcas
    dorcas Member Posts: 3,538
    edited 30. Nov -1, 00:00
    Hi Jenny and Jordan,

    glad to hear that you've been given something to help and will keep my fingers crossed for you that it brings relief and freedom from the painful symptoms. keep us posted.

    love and (((hugs))) to both of you.

    and sending Jordan a cyber chocolate Easter egg.....Iris x
  • frogmorton
    frogmorton Member Posts: 27,376
    edited 30. Nov -1, 00:00
    hI jENNY
    Sorry kitten put caps lock on :roll:

    I am so pleased you got something that SHOULD help him a lot till you get more help.

    I do hope you all have a lovely easter break and that he feels a million times better.

    Love

    toni xx
  • suziev
    suziev Member Posts: 252
    edited 30. Nov -1, 00:00
    hi

    i hope the school hols bring some relief for you all, not having to get up and be somewhere on a morning.
    as for hips i coudn't sit on a school chair for maybe more then 10 mins without wanting to get up and move, hope the pillow helped.
    also when the pain is very bad i shove a hot wheat bag between my groin and that does help.
    i have found the hip pain the worse of any joints and my normal pain relief doesn't touch it and i've had to go back for more stronger drugs.
    i agree if pain is bad go to a and e.

    good luck
    suzie

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