feeling rough, killer knees.
Comments
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Thank you Iris and DD. I slept well last night and feel a bit better today. However my knees are still bad and they will take some time to improve. I have not had trouble with my ankle but that is because I have been resting so much. I feel under pressure to get back to being a mum and concerned about tomorrows course.
One good thing, my appetite has been subdued.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Elizabeth,
Oh flower just read all the things here ... went AWOL again sorry. I really do understand the tiredness thing too well.. hope it will soon ease off for you and that things get better.
i hate this bone stuff and wish so much none of us had it.
Leaving you a (((( ))))) and a bucket of energy and fortitude... I nicked the stamina :oops: Cris xx0 -
Hi Elizabeth, hope the germs are fading fast and that the meds start to kick in soon. No wonder you have felt so tired. Hope you have a better week. Make sure you use a taxi for college and insist on door to door transport!
SpeedyI have had OA since mid twenties. It affects my hips and knees. I had a THR on the left aged 30 and now have a resurface-replacement on the right - done May 2010.0 -
Thanks Cris it seems to have worked. I have had a good day today and not overwhelmed by tiredness. This enabled me to pay some bills which have been gathering and sort out a few things I have had to leave. My knees still hurt but not collapsing in bed and feeling all foggy has been a real bonus.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Speedy,
They require pre-supplied car registrations to enter the uni campus so might have to be dropped off at the appropriate gate and walk a little way. Having been so independent for years I am now out of practice and a little lost! I have not caught a train or bus in years.
Thankfully I feel so much better today so hope I feel the same tomorrow,
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Elizabeth,
Overwhelming tiredness is such a problem flower I am glad its not as bad now.
Bills..... hate them
Leaving some stamina this time... i might have nicked the extra strength energy though ((((( ))))) and more hopes Cris xx0 -
Hi Elizabeth
Sorry only just catching up and see you have been struggling for a long time what with the chest infection and missing your meds. Do hope your goodish day today continues tomorrow. Take care ((( )))
love
Chris0 -
Hi Elizabeth
Just catching up with your thread...
Hope the MTX and Humira will give you some improvement shortly and that you enjoy the first day of the course tomorrow..
Marion x0 -
Hi Elizabeth,
Don't forget to let us know how the art course is going .....when you have time.Love, Legs x
'Make a life out of what you have, not what you're missing'0 -
I hope you enjoy your course! DDHave you got the despatches? No, I always walk like this. Eddie Braben0
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Hi. I feel so much better. Still having trouble with my knees but they are slightly less painful but still difficult when standing up. I had a great time today and the course was so interesting. I had to catch a bus for a short distance to a train station ... an experience as I haven't caught a bus for 20 odd years. That's life I suppose. OH was waiting for me out at the front entrance as a surprise as he finished early but I left by another route so I missed him.
Right time to catch up with housework.
Cheers for now
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Oh well done Elizabeth. That was disappointing that you missed each other for your lift home. You will have a lot to think about now you have started the course. It’s nice to just get out and about and meet new people.
Try and not over do the housework. I bet I am too late with that advice.
Lv, Ix0 -
What an adventure Elizabeth although a pity you missed your OH .....he was the one who got a surprise in the end when you went out the different entrance :roll: ....but lovely of him to turn up for you
Glad you're enjoying the course and as Ironic says forget the housework, save your energy for tomorrowLove, Legs x
'Make a life out of what you have, not what you're missing'0 -
Well I have taken my 2nd Humira today and my 3rd MTX since stopping for a break. I have to say I am not a lot better,in fact my right knee is now swollen and my right shoulder pain started up today so that I can barely move my arm. My knees and shoulder were the two most painful joints from my R.A prior to starting anti TNF treatment in Oct 2008. The hip and ankle are partly OA so they are not too bad as I am resting as much as possible
my cold is better although i had a barbed wire throat last night but not during the day.Probably all that snoring.
One good thing is that over whelming tiredness has gone and i am very pleased about that. However i think i have left the door open and arthur has crept back in.
Thanks for your support.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Elizabeth, you should have locked that closed door.... Lol
If only it was that easy eh?
Sorry, I must have missed this thread.. Sorry to hear you are having a rough time hun...
Best wishes...
Me-Tony
Ra-1996 -2013 RIP...
Cleo - 1996 to 2011. RIP0 -
Elizabeth
you are such a positive person! So very glad that you are not so absolutely shattered. That is so hard to cope with isn't it? and with kids too.
Shame the humira hasn't solved everything else though....
Tony is right....
should have nailed the door shut
Love
Toni xx0 -
Morning tkachev, I am sorry to hear that you have not perked up as much as you hoped - given your history of success with the humira etc I am sure it is just a matter of it all building in your system again - hopefully over the next few days that effect will start to come through. I wish you well. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
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Hi Elizabeth,
Sorry its not so good flower. Is it accumulate the Humira a bit accumulator? If so hopefully that will start to work and your bones will start to feel a bit better?
Its hard flower to hold everything together and well i am glad you have lost the crushing tiredness at least.
Glad also that the cold is receding (I on second week without mtx form my choice but the endless cold is still reinfecting for me and has done now for so long I don't remember not having it) I hope its not going to come back and well hang in there, try and rest a bit if you can and sending you a (((((( )))))) Cris xx0 -
Thankyou Tony, Toni, DD and Cris.
Hi DD I think I left it too long to get back on my meds but I was trying to play safe.It is just weird how my 2 previous joint problems knees and shoulder have come back as I have had no trouble with these for 2 and a bit years.It just shows how well the Humira has been suppressing them up until now and hopefully that will get back into my system.
Cris, i hope your cold doesn't hang in there either as you do need your MTX asap.It is so difficult to know when you have the all clear.I gets to the point you cannot wait any longer.
.
Toni I am positive because I have had the R.A so bad in the past. As long as I don't go back there I am happy.
Tony I've left it too late now to nail the door so now its going to take time to evict him unfortunately.
Okay it is just a waiting game now.
E xNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Dear Elizabeth
I am so sorry to learn that things are not much better with you healthwise. No wonder I have not heard from you on FB. I so hope that things look up for you soon. It has been months.
Love and gentle hugs
Elna xThe happiest people don't have the best of everything. They just make the best of everything.
If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.0 -
Hi Elna,
I am really sorry I have not been in touch.Will be soonish...
E xNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Hi Elizabeth
I am so sorry you are still suffering, It must be such a struggle knowing when to go back on your meds, like you say at least you know how well they were working.
You take care of yourself, and fingers crossed that it wont belong now before you feel better.
Love
Barbara xxLove
Barbara0 -
Hi Barbara,
I am very glad I started taking them again otherwise I would be a lot worse.I hope you are managing okay with your hip?Mine has been okay surprisingly. I would have expected lots more pain.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
I am certain the knee swelling has gone down. I was able to walk about campus much better today. The shoulder pain has completely gone after last night I had to put a hot water bottle on it to ease the pain. I only took the injection on Saturday I wonder if I will make it through the entire fortnight this time.
ElizabethNever be bullied into silence.
Never allow yourself to be made a victim.
Accept no ones definition of your life
Define yourself........
Harvey Fierstein0 -
Oh that is good news, tkachev, I am so pleased for you. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
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