young and struggling

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  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi rgentry1989I have read all your post, and what comes through is a lovely young courageous person, that really does love life.
    I am sorry you have had to battle arthur for so long, I think myself lucky that I only started in my 50s.
    I think that being so positive will get you far, I really do hope that the job you want comes along very soon, they will be a very lucky employer.
    And I wish you well with the meds you are on,
    You enjoy paris, and now you have found all us lot, we are always here when you need to talk or have a good rant.
    You take care my love
    Barbara xx
    Love
    Barbara
  • jenzie06
    jenzie06 Member Posts: 708
    edited 30. Nov -1, 00:00
    Hiya
    I just wanted to say that having arthritis at a young age can really suck. I've had RA and Fibro since I was 15yrs old and I'm now at the grand old age of 28.
    Keeping a sense of humour is really important (when I'm having a bad day my hubbie often makes me laugh, usually when I'm in my wheelchair and we are out shopping he shouts 'its a miracle!' if I try and stand).
    I found that giving up work and doing volunteering work when I'm feeling ok has made a great difference. It's not always practical financially but I'd rather have no money and be in less pain than struggle on (it was a decision I wrestled with though). I just had to get my head round it. Now I've got a 9 month old baby boy to look after and there is no way I could work and even if I'm having a bad day I still have to get up and sort him out which is really really really hard.

    Having arthritis doesn't mean the end of your life, there are lots of things you can do. You just might have to do it at a slower rate than others or in a different way.

    P.s contact CAB or try and find a welfare rights worker (possibly through your council) to help with DLA. Good luck!!
  • tillypink
    tillypink Member Posts: 212
    edited 30. Nov -1, 00:00
    Hi rgentry1989

    I've just read through ur post's and I take my hat off to u for still working. its not easy! I don't blame u thought for trying for DLA either, I tried the direct gov website really helpful and also this arthritis site too, had lots of info!

    I myself am 33 with Severe OA in my hip and also feel simular to u , and hate it when u go out with your friends and ur the only one who does't drink and feel as though u've aged before ur time!

    This site is a lifesaver for me, for when I'm having a really crappy day I come on here and feel better to see how other people cope and share there problems and there's always support and help!

    I wish u well and good luck!

    x

    Lisa
  • madwestie
    madwestie Member Posts: 383
    edited 30. Nov -1, 00:00
    rgentry1989

    I am not sure if you have one locally but have a look at DIAL for help with DLA.
    You sound as though you are working your way through the bad days you just need the support of others in the same situation which you have found here. Everyone is going through similar things even though the ages maybe different. We will all support you and try to pick you up on your down days that is what the lovely people on this forum do help each other.
    I am also on Methotrexate i used to enjoy a nice gin and tonic so now i have the tonic with ice and lemon apart from the person buying the drink no-one else knows the difference and i am a very popular taxi service. when you go out can you try to stand near the bar or a window sill and lean on it to take some of the strain off of your knee.
    Have a lovely time in Paris and just tell the RA it is not welcome (it hasn't got a passport) so can't come with you...

    Tracey
  • rgentry1989
    rgentry1989 Member Posts: 52
    edited 30. Nov -1, 00:00
    Hello lisa! Yess still working thou it all and its nt easy sometimes I think it wud be easier just nt to bother lol, sorry to here bout ur hip ur so yung to get it I kinda came to terms with mine getting it at the age off 5 and unfort thinking I'd grown out off it and it came back :(

    Yhh drinking is a bummer but the pub I quite often goto I knw a couple off barman that work there and they always make my water or lemonade look a bit spec with fruit umbrealla etc makes me feel better, and yes tracy funny enough ppl seem to treat me like a taxi I've just started putting my foot dwn act if they aint on my way or brought me a drink or offered sum petrol money I think u knw wat get a taxi price off fuel these days! And hello!

    I'm gna try my hardest to get some help with dla I ordred the forms today and have found some one at citzens adivice as its all I reli got for help round my way! Cause unfort I love my little corsa so much but I'm starting to feel a urgent need for a automatic! And cud do with some help paying a loan for it!

    I also have spoken to my gp about depression meds and am seeing her thurs to try and sort one that doesn't react with my mirgines or methrotrexate so fingers crossed as I'm deff worse in mood than wen the depression started soo I reli hope this will all start to work it self out :)

    And paris will be awesome and I'm telling the ja to do one for 4 days :) like u said its not invited :) thanks for ur surrport x
    rachel

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