Sooooo blooming tired

tjt6768

Since this recent flare with mi knees I have noticed that I have been even more tired than usual... To the point where I have been logging out of here before the early hours of the morning for the past few days :shock:
It just keeps hitting me in waves.. :roll:
At least I know it's not psycho-sematic due to anything that the physio fella said about it being possibly RA as I have been logging out early for a few days now.. I mean, I did used to get shattered before, pain, lack of sleep, not eating well etc, but these past few days I have just been sat here ok one minute then really needing to go to sleep the next :roll:

Oh ain't this life a rollercoaster of fun at the carnival of whoop-di-whoop

Poppyg1rl

Hey Tony,
I know how much your knees have been bothering you, (you've been a great support to me btw with my poorly knee recently) I'm also mid flare and my shoulder is now joining the party! And I think that's the key Tony, when you have a flare your poor body takes a bashing, plus you've had the worry of what the heck is going on re sero neg/OA so I think it's fair to say you've had a lot on! The tiredness will settle down as will the flare eventually, as DD says "it will pass all things do".
Hang in there Tony, only got till 18th and we'll both see our Rheumy nurses and hopefully you will have some answers and positive treatment and I'll start my Humira journey.
Thinking of you Poppy X

tjt6768

Aw bless ya... It's nice to hear that my inane ramblings have helped someone in some way
Guess I am a tad frustrated lately, not like me, don't do fed up.. Must slap myself around the mush with a mucky hammer and snap out of it..



Cheers hun



Roll on the 18th eh?

rugbygirl

Sometimes it is just your body's way of saying you need to rest. You might not think you are over doing things but your body has other ideas.

I have to battle with OA and an underactive thyroid which makes me sleepy. If I didnt force myself to get up some days I would still be in bed when it is time to go back. I have been known to sleep for 22 hours because of the thyroid.

Things will sort themselves out for you and you will feel better soon. As Poppy has said once you have your appointment on 18th you will probably have the answers to your questions.

I can sympathise with worrying about what is going on , I have my appointment on 15th for my official diagnosis and because of that I have been worrying, not sleeping properly, feeling tired etc. I am hoping that once I have the answers things will settle down completely.

There is a lot of pocket duty next week and we will all be there to help each other through it all.

Listen to your body and go to sleep when you feel tired. Dont fight it because you think its too early to go to bed. My dad has RA and most nights he is in bed by 8.30 and he has a nap during the day about 2.00- 4.00pm.

Hope you feel better soon

Poppyg1rl

Hi Jaki, (sorry Tony for hi jacking thread!)
Will be in your pocket for 15th! I've been diagnosed with PA a year now and been on meth, Sulfa, steroid jabs etc all that time but that's not been enough, so will now start on the anti TNF road, first jab of Humira on 18/03/11. Hope your appt goes well and you can start treatment as soon as possible. Thinking of you Poppy X

tjt6768

Don't worry Poppy, I was going to say the same re: pocket duties on the 15th..

bubbles

I can sympathise with you completely - it is horrid and I liken it to being hit by a train, as you say, ok one moment, then gone the next. I often click on the forum, then stare at the screen and I am sure I am asleep for a while, with my eyes open. I have to get up and move, not just because of pain and such, but, I am one who almost tortures themselves, thinking that I must keep pottering, as long as I can potter, I am ok. It goes back a long way, to my previous heart attacks, which altered my state of mind in no uncertain terms, left me with a legacy of having to be told to go to bed.
Anyway, I am rambling on. I know the Rheummy and GP said Fybromyalgia, with all its add on's that go with it.
Constant pain, be it acute, dull, or chronic, is debilitating, depressing and leaves you utterly drained, even with all the drugs in the cabinet, sometimes, nothing seems to work.
I have had such knee pain too, for months now, going from one stick, to one crutch, to two crutches and now a wheelchair for any pottering over about 30 yards.
I know you have been in a lot of pain and I send abundant hugs to you. I had noticed that you have been leaving the forum early, we often had a natter till the wee small hours and the pair of us have not made the grade.
Jaki, you are right, you have to do what your body is telling you, my greatest undoing of all. I have to be chemically clobbered to go to sleep, despite the fybro and everything else.
Oh Bubbles, you are going on and on and on. In a nut shell Tony, we are with you, know how you feel, send all our well wishes to each other and go day by day, steady away. XXX Bubbles

tjt6768

thanks Bubbles. I did manage a few hours sleep last night. Only woke a couple of times.. Am bloody shattered this morning.
Going to get up to take Janet to work as the weather is dreadful here, winds are very wild..

A return to my bed is well on the cards this morning...

Hope everyone is ok..

julie47

Morning tony
I am sorry that you are struggling with both your knees and fatigue.
I think you have to listen to your body and sleep when you feel tired and don't fight it.
I for the past few days have been the same and had to crawl to the bed for 20mins blasts of sleep.It is so annoying I know.

Hope you feel a little better today
Take care
Juliepf x

tjt6768

Morning Julie... How are you today hun?
Bit bloomin windy out there :shock: :shock:
I took Janet to work and have returned to my bed.. I am shattered so think some more sleep is in order... That is if I can get Ra to stop crying in mi lughole :roll:
My left hip has decided to join in the 'kick the crap out of Tony' party :roll: Haven't had trouble with that one for a while, seems they are all crawling out of the woodwork lately.... Word on the street must be that Tony's bones are the place to be seen hanging around

Be well hun..

julie47

oh tony I bet the 15th cant come quick enough for you eh?

(you are going on the 15th same as poppy)
I was speaking to a friend I made in hospital over 15 yrs ago the other day(phone) she used to be under the same proff as myself at chapel allerton, but because he has retired she has been removed to jimmys.
I always thought jimmys was a childrens hospital..
I went to dewsbury......looks like all the proffs patients have been dispersed to different hospitals......I thought chapel allerton was the main one after we left lgi.

Anyway you probably need a sleep now after reading this.
I do ramble on and about nothing.

take care
juliepf x

tkachev

We are all different but a common theme is tiredness is a result of fighting this pain and inflammation. Some people suggest it is the medication and others the battle that is raging inside our bodies.

I am currently very tired and wishy washy too so I know how you feel.But for the days after I take anti-tnf's I am raring to go and the pain has subsided to just my OA pain(which is sill bad by the way).

Elizabeth

tjt6768

julie47 wrote:

oh tony I bet the 15th cant come quick enough for you eh?

(you are going on the 15th same as poppy)
I was speaking to a friend I made in hospital over 15 yrs ago the other day(phone) she used to be under the same proff as myself at chapel allerton, but because he has retired she has been removed to jimmys.
I always thought jimmys was a childrens hospital..
I went to dewsbury......looks like all the proffs patients have been dispersed to different hospitals......I thought chapel allerton was the main one after we left lgi.

Anyway you probably need a sleep now after reading this.
I do ramble on and about nothing.

take care
juliepf x[/quote

I go on the 18th, but will be pocketing for Poppy on the 15th, lol..

When I was a teenager and started with Osteochondritis I was under Prof Abberton at the LGI, giant of a fellow, always very stearn looking, but he used to chuckle every time he saw me because I would have changed the colour of my hair.. He never knew what to expect..
I have been under Venkatesh a Chapel Allerton, last time I saw him was a few yrs ago when I had my last arthroscopy..
Was under a couple of different ones in between but gosh, surprise surprise... I can't remember their names :shock: :shock:
You were right by the way, I was fast asleep.. Just could not stay awake again.. Pain has woke me up now though, woohoo, what a joyous world of incredible fun we all live in

Hi Elizabeth, I know one thing, I am going to be mentioning the tiredness to the rheumy nurse on the 18th, lol..

dreamdaisy

Tireedness is part of the arthrtis package with whatever form of this pestilience one has. Don't fight it, it's pointless and in the end just makes things worse. Rest as much as you need, when you need - in some ways you and I are lucky as we can ignore the clock: I don't give a damn if the clock says 11.30am, if I need to sleep I need to sleep and I do. The constraints of a 'normal' human timetable no longer apply as far as I am concerned. It's not easy to let go of the guilt feelings about sleeping during the day, but I no longer give a damn. It is what is and I have to do what I have to do to manage/cope/get by. So be it. Sleep well when you need and I hope you feel a little better for it. DD

tkachev

Tony i never get around to mentioning the tiredness. I have an ever growing
List stuck to my kitchen wall of questions to ask. The list is long cos it is 7 months since I last saw the Rheummy nurse and a lot happens in 7 months.

Elizabeth

tjt6768

I know you are right my dear friend... As you say, the guilt is still abound for me, tiz early days though.. Things may turn out ok, maybe they can sort some regime of meds that will settle things down a tad, just enough to put me back to where I was last year will do for new, I'm not greedy.. Lol
I'm not going to build my hopes up though, but also not going to worry about what is going to be.. I know there is no point, you know my philosophy.... Bugger it.. Lol

I had a good deep sleep when I went back to bed this morning. I then got myself dressed and went to moggisons for the neighbours who are both quite ill today.. Took it very steady, and now back to positionous horizontalis...

traluvie

Hi Tony...

It's a horrible feeling fatigue..Makes my whole body feel heavy..
I try not to sleep in the day i worry too much that i won't sleep at night..lol
Maybe i should listen to DD's advice and listen to what my body is telling me..
I hope you get some well deserved rest and feel a bit more livelier soon..

suzygirl

The fatigue is just awful, silent but deadly. I am having a sofa day today, just feel I can't even stand.

You have my sympathy, rest up, your body is telling you to!!!!

tjt6768

Thanks ladies... Don't think I'll be doing much of anything now.Resting is on the cards.. Might get up to make a tetleys and I suppose some kind of food should be had at some point :roll:
I will have to go pick Janet up though, the wind is terrible outside.. The trees out back are near to falling over.

tkachev

You have got me singing that Beatles song now. I often find I get a tune stuck in my head after reading a thread title on AC.


Elizabeth

tjt6768

Don't remember them singing 'so blooming tired'... Lol
Must have been a hit with a name like that..

tillytop

Hello Tony and all

Tony I know from your posts that you have a lot going on at the moment and, like the other peeps, I too can empathise with the fatigue. I call it "walking through treacle" but I think Suzygirl's "silent but deadly" description is a good one.

Anyhoo, hope you can continue to rest up as much as you can - and try not to feel guilty cos it don't help - and as my OH is always telling me, it uses up precious energy.

Thinking of you.

Tilly xxx

tjt6768

Thanks Tilly.. I do appreciate everyone's comments..
You are indeed a caring bunch of Arthurites

barbara12

HI Tony
I think we all understand the tiredness...I sometimes blame the meds but suppose its a mixture of everything....I am in bed some nights for 8.30...dont even get into the cafe much.. you make sure you mention it...at least it will put your mind at rest if not yu body...
I will be in pocket duties on the 18th...then you can all come with me on the 20th to B&Q car park...so if you have any diy to do...you can make it one trip..
Take care Tony hope it all goes well for you.
Love
Barbara x

tjt6768

Oooh, Janet wanted a trip to B&Q to look at some wallpaper for the dining room :shock: Dunno who she thinks will be papering though, them days are well over for me :roll:

dachshund

Hi Tony.
i hope you feel better soon and you get a good nights sleep tonight.
you have had a lot on your mind lately.
take care. joan xx