Inflammatory Arthritis, Sometimes i wish i wasn't alive!

13

Comments

  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    good to see you - you sound a bit more cheerful today. l am so very glad.

    If l need to l lie my foot on a pillow and sometimes have one between my knees tooo which lifts the other foot 'off' it if you know what l mean.

    If your foot is very swollen it might help to have a pillow UNDER your foot to raise it up?

    Love

    Toni xx
  • annajd
    annajd Member Posts: 27
    edited 30. Nov -1, 00:00
    Hi Rhys

    i have only just logged on today after a little spell away from the forum, i just wanted to say hi and welcome.

    after reading your first post, it is so sad to hear what you have gone through but glad to see that you appear to be coping better.

    as for the foot tip, i really do not know as i dont suffer with my feet, but i would suggest, like others, pop your foot on a pillow and try sleeping with your foot up and then to the side to see if the pain eases. it is all about trial and error and i am trying to find the best postition when i lie own so that my back doesnt hurt.

    have yu tried seeing a chiropractor as they sometimes can suggest alternatives methods?

    stick with it, theres always someone to talk to on here

    a x
    x Anna x
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Although I have R.A in many joints I have OA in my ankle. I find I need to rest it throughout the day, if I do lots of standing my ankle is dreadful at night so I try to limit it as much as possible. I stick a hot water bottle on mine at night as heat does help. And a pillow is great under the ankle does help as pressure on a painful ankle can be agony.
    I can't move my ankle left and right either.

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Thank you very much for your tips, Really praying that i get a rhumy appointment soon, want to get on the medication, the pain and swelling is unbelievable :(, hope your all ok today x

    Rhys x
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    Rhyscous wrote:
    Thank you very much for your tips, Really praying that i get a rhumy appointment soon, want to get on the medication, the pain and swelling is unbelievable :(, hope your all ok today x

    Rhys x


    we know the pain and feel for you do hope rhummy does not take long and gets you on meds straight away good luck do not forget we are here. a couple of years ago met a young lady she was in so much pain could not go out with her mates was due to go uni but did not feel she would cope with it life looked so black for her . well she got on meds went to uni got great boy friend and is enjoying life to the full so do not give up there can be light at the end of the tunnel hugs val
    val
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    l am not so bad today thank you fro asking.

    I am crossing my fingers for you to get your appointment as soon as possible....every day l am checking this thread in the hope you have sonem good news for us.

    What are you doing today?

    Love

    Toni xx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi Rhys

    I am so sorry that I am only just dropping into your thread. I want to welcome you to the forum and from what I have read I am glad all these lovely people are helping to lift your spirtis.

    I am really sorry that at 16 you have to put up with this disease. I was horrifed when i developed it at 25. (48 now)
    I have read all your posts and i believe you are feeling a little better and that the steroid is helping with the pain. I am sooo glad. I have had a few stabs in the bum and they have helped me in the past.
    I hope you rheumatology appointment comes quickly and they can put you on the best medication for your condition.

    Good luck with your gcse results

    Take care (nearly forgot.....a tip for your foot.....If you cant stand the duvet on it cause they are heavy.....if you look up a sheet raiser for the bottom of the bed in a mobility catalogue you could get your parents to make one from an old clothes airer. This is a much cheaper option...My OH did it for me.)

    juliepf x
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Rhys

    How's you today?

    Take care
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hi Elna,

    Im not to bad today, in abit of pain but that dosent change. How are you anyway? :)

    Rhys x
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Do any of you know if i will be able to join the Army as a Infantry Soldier? (Frontline)

    Rhys x
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Rhyscous wrote:
    Hi Elna,

    Im not to bad today, in abit of pain but that dosent change. How are you anyway? :)

    Rhys x

    Hi Rhys

    Thank you for asking, I am not too bad but my foot is still very swollen after an operation on three toes. I see the consultant tomorrow for my three month check. I think he will say that the swelling may take a year or so to go down, :roll: he initially said three months but there is not much improvement although I have hardly any pain now so that is a bonus. I only have one pair of sandals that fit me atm. Gonna get a bit wet in the rain :lol: Even my uggs are too tight on that foot.

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Rhyscous wrote:
    Do any of you know if i will be able to join the Army as a Infantry Soldier? (Frontline)

    Rhys x

    Hi Rhys

    I did a quick google and some conditions can stop you from joining the army: chronic joint diseases such as ankylosing spondylitis, psoriatic arthritis, rheumatoid arthritis or gout

    Your gp must fill in a medical questionnaire and you will have to pass a fully army medical but I expect you know that.

    Have you looked at the British Army website?

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hi elna

    I really appreciate you doing that for me, Least there is some hope eh :D. ive also been reading that inflammatory arthritis is very diet dependant, Looks like im going to be on alot of fruit and veggie, which i dont mind, Hoping you are well :)

    Rhys x
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    Just checking in to see how you are doing? Any better at all and hoping maybe you have some news about an appointment.

    Good to see you are thinking about your future career :smile:

    We got rain rain and more rain - how is it with you?

    Love

    Toni xx
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hello :)

    Still no news about my rhumy appointment, hoping it will come in the next week, im not too bad today thank you, what about you? And yes its raining here aswell :(

    Rhys
    xx
  • dopeykit
    dopeykit Member Posts: 107
    edited 30. Nov -1, 00:00
    Hi Rhys,

    Glad to hear its a bit better today, even with the rubbish weather. Not much of a summer..grrr :x

    Hope the appointment comes through for you soon - keep us posted. Ask your Mum or Dad to keep hassling the GP and hospital, it does pay off.

    All the best,

    Kit
    www.cookingwitharthur.com
    Healthy, tasty recipes for living well with arthritis
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Rhyscous wrote:
    Hi elna

    I really appreciate you doing that for me, Least there is some hope eh :D. ive also been reading that inflammatory arthritis is very diet dependant, Looks like im going to be on alot of fruit and veggie, which i dont mind, Hoping you are well :)

    Rhys x

    Hi Rhys

    A pleasure :grin: Yep there is hope, do not lose sight of that. :smile:

    It will not do you any harm to tuck into a lot of fruit and veg but for some with arthritis certain fruits and vegs do not suit - it is all a bit of trial and error and what may affect one person another may be able to eat it by the ton! Some find it makes no difference what they eat.

    Seen the foot consultant today and he has moved the goal posts by saying that by the end of the year the swelling will have gone away. :roll: I knew he would. He assures me it will go :wink: He is very pleased with the work he did on my three toes and reminds me yet again it was a major op. :roll:

    I hope today has gone to plan for you, :smile:

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    I am not so bad today thanks Rhys...been busy today out first thing then had some furniture being delivered this afternoon so had to wait in :roll:

    l will keep my fingers crossed for you as well that your appointment comes next week too.

    Can't be too long now.

    As Elna says more fruit and veg is good for all of us isn't it?

    Love

    Toni xx
  • carola
    carola Member Posts: 786
    edited 30. Nov -1, 00:00
    Hello

    Just cottoned on to your thread and wanted to say hello.

    When I was 15yrs migraines took a right hold of me. I would be laid up in a dark room for days on end a few times a month. So I kind of know how you will feel - isolated and wondering will you ever me able to have a normal life?

    You hang on in there. It will get better. You and the specialists will figure out what medications will work for you. Maybe a wee bit trial and error to begin with but then you will work it out and everything will look a whole lot better and you will feel just like a 16 yr old should.

    Regarding food - yep, I am a firm believer of this. Everyone is different ie alot of folks find the nightshade foods like tomatoes and peppers are a trigger but I am fine on them. Another trial and error I am afraid! I have found avoiding stress helps to keep symptoms calm. Once my meds kicked in I started yoga classes and couldn't believe what my body was capable of doing once again.

    Just to give you light at the end of the tunnel ...... this time last year my boyfriend had to dress me, take me to the loo etc and a year later I can do all sorts of yoga positions so hope that helps to show you that it can and usually does get lots better given time.

    I wish you well and send you lots of positive healing thoughts.

    Carol
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Just checking in Rhys

    hope you are doing ok today?

    What a lovely message from carol there and so optomistic....sooner you get that appointment so much the better!

    Love and hugs

    Toni xx
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    I hope your weekend goes well, Rhys. Weather is meant to be good, hope we both share that. We are off to Gloucestershire on Saturday for a boosy lunch :lol: with my bruv and partner. Our wedding anniversary the following day, (won't bore you with how many years :lol:) so another excuse to clink glasses :wink::lol:

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    hope you are having a good weekend and are busy and enjoying yourself.

    Still got fingers crossed that you hear from rheumy soon.

    Love

    Toni xx
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hello,

    Sorry i haven't replied recently, Still no appointment from my rhuemy, ive been taking ibuprofren and doing exercises and walking, and honestly my foot feels alot better, as it was so stiff before and that might be whats causing the pain, hope you are all ok :)

    Rhys x
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Rhys

    The start of another week. :smile: Great to hear that your foot is not quite so painful. Keep up the good work. :wink::smile::lol: They say, " use it or lose it" :wink::smile:

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    Good to hear such very GOOD news...well done you taking control - let's hope it was a flare which is now settling down. I will cross fingers.....mind you they were already crossed for a rheumy appt so l will have to knot them instead :roll:

    I am not so bad today thank-you just been to the docs for a meds review...things to stay the same.

    Love

    Toni xx