Inflammatory Arthritis, Sometimes i wish i wasn't alive!

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Comments

  • Ankyspond
    Ankyspond Member Posts: 626
    edited 30. Nov -1, 00:00
    Hi,

    Coming in late on this post, only found this site a week ago but it is so good and so much support.

    We all understand the way you are feeling and the frusteration but one of the key things with this is getting the right treatment. Hopefully once you have got that things should start to improve, please speak to people including your family and friends its so important to have a good support network around you. I am 43 with AS and have three teenagers (I also have a Reece) and teach in a secondary so can imagine what you must feel like at your age, but things will get better (I promise).

    Thinking of you and wishing you the best of luck, here if you need to let off some steam.
    AS Sufferer
    Live, love and enjoy life, live each day as though it's your last!
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Hi rhys . . Not been on for while, just thought i'd check in and see how you are. . X
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    I do hope you are ok Rhys????

    Have you had your appointment yet?

    Love

    Toni xx
  • TheOnlyKey
    TheOnlyKey Member Posts: 24
    edited 30. Nov -1, 00:00
    I went to my Gp the other day after being on new anti inflams for 2 weeks and them still not working. He made me an appointment with the rhumy and said there is a new system they are using now where you can book into a slot right away. So i got given the day and time of my appointment their and then. It is 5 weeks after my GP Appointment but i know when it is atleast. They should be using this system All over Gb now.

    Toc
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Hi TOC,

    We have just changed FROM this system into one where they send you an appointment 6 or so months later, you have to phone to arrange an appointment supposedly for 2 weeks further on. When I got my letter and rang in mid May they gave me an appt for end July. I much prefered the old system!

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hey guys :D,

    Firstly id like to apologise, i haven't been on this forum for a very long time and have lost track of things, My rheumy appointment was originally for 9th september, but my nan payed for me to go private and i had my appointment TODAY!, I spent about an hour with him doing diffrent examinations and questions and it was confirmed that i definetly have Rheumatoid Arthritis in my ankle/foot. I have been given a steroid jab which im praying will work, if not i am doing on a drug called methaxonide or something along those lines :D, Can anyone tell me about the tablets? Hope you are all ok :D
  • Ankyspond
    Ankyspond Member Posts: 626
    edited 30. Nov -1, 00:00
    Hi Rhys,

    Great that you been seen and you can now start to deal with it and get the help you need. I have been on methotrexate in the past (I am on anti TNF now cos I have AS) but I got on ok with them. Normally start off with low dose and work up, you will have to have regular blood tests and possibly have to take folic acid, the leaflet will tell you about loads of side effects and although I am sure some people get some I was lucky not to have any and I hope you won't either. You sometimes have to decide what you need to take to give you the quality of life you deserve if you know what I mean. You will need to be careful to stay away from infection as they lower your immune system but i teach in secondary school and i was always ok with it so you will hopefully be ok. It's very much trial and error until you find the best medication that will help you but fingers crossed this will be good for you.

    God luck with it and try to be positive and use the forum if you need any help, to let steam off or just for a laugh! Xx. :smile:
    AS Sufferer
    Live, love and enjoy life, live each day as though it's your last!
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    hi welcome it is awfull trying to find what going on but when they find the meds that suit you it will be so much better . there was a young lass i met on another site she had just taken her a levels and wanted to go to uni she had stopped hanging out with her friends as it to painfull and did not feel she would cope with uni. after getting the right meds she went off to uni and is having a ball of a time i not saying it all plain sailing but life changed so much for her and it can for you val
    val
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hey everyone.

    Im on my second week of 10mg of Methotrexate then folic acid 2 days after, im also taking 7.5mg of Steroid tablets per day as the steroid injection was absolutely useless. Im in alot of pain still but the rhuemy said that the steroids could take up to 6 weeks to work, i had to be taken of Diclofenac as they made me feel abit sick and a achey stomach. Im starting college in a few weeks and my next appointment isnt until 9th of september, so im praying that these steroid tablets will get working soon as im really going to struggle otherwise. The steroids have made me alot spottier and i seem to be eating a heck of a lot but i do weights to keep myself fit and tonned :)

    hope your all well

    Rhys xx
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    hi rhyscous,glad you are at last getting somewhere,i was on meth for a while ,it did the trick with my ra but didnt like me in other ways.
    good luck with college,what are you studying?Mig
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Im going to be doing Business and Management, got big plans for the future which i guess is good :D, im seeing alot of posts about methotrexate injections, can anyone tell me how this works? Hopefully i wont have to take that route :(

    Rhys xx
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Rhys

    Good to hear from you and all the best with your studies. :grin: I have heard that steroids can give you an appetite but if you are sensible with this and are able to continue with doing weights, then you should be ok.

    You sound so much more positive than you did when you first posted and that is such good news. Chin up, you are doing well.

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    RHYS!!!!!!!!!!

    So sorry l missed your post :oops:

    But may l say how fantastic is is to see how positive you are and how well you are doing now.

    Looks like the future's back on b020.gif

    fantastic.

    Love

    Toni xx
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    Hi Rhys,I was on meth tablets but making me feel sick all the time so tried injections ,nurse came and showed me how to do it,its just a small needle with a small amount of meth in it,you inject in a circle ie right abdomen then left,left thigh and then right,its so easy to do ,its just another way of taking the meth,once you have done it you wonder what you worried about.good luck with the tablets.Have you got all your gear ready for college.Mig
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 26. Aug 2011, 16:07
    Thank you all for your replies, just a quick question, for people who are taking steroids and methotrexate, do you take a stomach protector whilst on both of these drugs?

    rhys x
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    I take one but not for those meds rather for things like anti-inflamatories which can upset my stomach.

    Are you feeling queasy or in some discomfort???

    If you are it iS worth contacting your GP as there are meds they could give you to help???

    Love

    toni xx
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hey toni,

    Ahh thank you, my doctor is putting me back in diclofenac aswell and given me the stomach protector anyway :)!, and im on my third week of steroids and Methotrexate and im feeling fine tbh, today ive been a little bit off my food but i feel generally well :) Hope your ok x
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Rhys,

    Glad you got the protector and hope you continue to feel fine. You are doing so well and its nice to rd your feeling a lot better. Cris x
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    Methotrexate gave me back my appetitie. It is worse on the day I take them and the day after. I don't have stomach protecters and I have a terrible stomach issues.If you can get them that is good.

    Bless your Nan for getting you that appointment. You'd still be suffering otherwise. The sooner R.A is treated the better.

    If you have any problems with anything do come back on the forum.We are an experienced bunch !

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Ah that explains it Rhys it will definitely be for the diclos.

    Glad you are doing so well and as Elizabeth says please do come back anytime....mind l am hoping you are getting out with your mates again now?

    Love

    Toni xx
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Hello toni,

    No im still not getting out much, I do try my best but im in so much pain if i do :(

    Rhys x
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    morning rhys,hope you feeling a little better today, i have stomach protectors for when im on anti flams they are good and work well,we have all been there with not going out,hopefully it will get better soon when all the meds kick in.have a good day.Mig
  • Rhyscous
    Rhyscous Member Posts: 50
    edited 30. Nov -1, 00:00
    Had an awful day today! Tryed going out with some friends and every step was agonising, These steroids are absolutely rubbish!! been on them nearly a month and no improvement at all! is 7.5mg a very low dose??

    Rhys x
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi Rhys

    the dose is definitely higher for some people, but being 16 maybe they daren't give you too much???? (My daughter has hemiplegic migraine and is 16 a lot of meds which might help are not available to her....???) Is it worth asking your GP if it can be increased. I take it the MTX is not kicking in yet? That dose may yet need to be tweaked too.

    LOve

    Toni xx

    Ps don't give up going out...it's so important and school restarts next week :shock: You be doing A levels this time round sorry if you said and l forgot :oops:

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