Happy to share body pain map and safe emails! x
Ankyspond
Member Posts: 626
Hi all,
As most of us know if we have this god damn awful disease its always a great idea to write your symptoms down in a pain diary or even do a body pain map. I devised a body pain map (I teach ICT so not trying to show off, he he) and I take it with me to the consultants each time I go, it helped in the beginning to get a diagnosis but I still use it everytime I go now so the consultant can see if there is any improvement or where the pain has changed to. It is very visual it has a front and back view and three sections for the pain which are colour coded everyday, most days and sometimes and you then indicate on the outline of the body in the relevant colour. I then leave the copy of it at the hospital and they put it in my file. If anyone would like a copy of it (have already sent it to some on here) I am happy to share it, I will send an example of one completed and a blank one in both Word format so you can change on computer and a PDF so you can just print off and do it manually.
The only thing is that you need to send me an email address that can accept attachments as the forum one doesn't , if you email me your address to my forum address I will forward it from an email account I have (it would stay confidential and would delete after using it)
Another thing while on the topic of email is that it is a great idea to create an email account (free one like Hotmail, Gmail, Yahoo) which you use just to shop, play games, money off vouchers, pay bills etc so you don't get loads of spam and rubbish emails to your personal account and it then keeps your identity and privacy secret. I am sorry cos I am now in teacher mode and I hope this bit doesn't offend anyone or you think I being rude but just a thouhgt (I sometimes have good one sometimes have bad ones) :oops: !!!!
Anyway if anyone wants the pain map let me know, hope your all having a good day, love and hugs. xxx
As most of us know if we have this god damn awful disease its always a great idea to write your symptoms down in a pain diary or even do a body pain map. I devised a body pain map (I teach ICT so not trying to show off, he he) and I take it with me to the consultants each time I go, it helped in the beginning to get a diagnosis but I still use it everytime I go now so the consultant can see if there is any improvement or where the pain has changed to. It is very visual it has a front and back view and three sections for the pain which are colour coded everyday, most days and sometimes and you then indicate on the outline of the body in the relevant colour. I then leave the copy of it at the hospital and they put it in my file. If anyone would like a copy of it (have already sent it to some on here) I am happy to share it, I will send an example of one completed and a blank one in both Word format so you can change on computer and a PDF so you can just print off and do it manually.
The only thing is that you need to send me an email address that can accept attachments as the forum one doesn't , if you email me your address to my forum address I will forward it from an email account I have (it would stay confidential and would delete after using it)
Another thing while on the topic of email is that it is a great idea to create an email account (free one like Hotmail, Gmail, Yahoo) which you use just to shop, play games, money off vouchers, pay bills etc so you don't get loads of spam and rubbish emails to your personal account and it then keeps your identity and privacy secret. I am sorry cos I am now in teacher mode and I hope this bit doesn't offend anyone or you think I being rude but just a thouhgt (I sometimes have good one sometimes have bad ones) :oops: !!!!
Anyway if anyone wants the pain map let me know, hope your all having a good day, love and hugs. xxx
AS Sufferer
Live, love and enjoy life, live each day as though it's your last!
Live, love and enjoy life, live each day as though it's your last!
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Comments
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i do tend to run two emails more by default than decision it great advice though will pm you my email thanks valval0
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Hi Anky,
Tis a good idea and will pm you i think.. mind mine is constantly from the top of my head to the end of my toes..... But there are bits with far more pain than other bits....
Thanks for sharing it and will pm you. Hope your having a reasonable day and keep doing those exercises! Cris xx0 -
skezier wrote:Hi Anky,
Tis a good idea and will pm you i think.. mind mine is constantly from the top of my head to the end of my toes..... But there are bits with far more pain than other bits....
Thanks for sharing it and will pm you. Hope your having a reasonable day and keep doing those exercises! Cris xx
Have got mine thanks Anky
and Cris there is the facility to colour code the dgree of hurt too so it's GOOD.
Love
toni xx0 -
Hi Cris,
Will send when get your email with pleasure, my chart often is red all over!!!!
EXERCISE OMG having bad flare up so can't even say the word let alone do it!!! xxxx
Toni, glad you got it hope it helps. xxAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
got it thankyou looks great idea valval0
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Hi Anky
As you know I've got mine but i just wanted to say I agree with the extra e.mail....I have a couple but one in particular {yahoo} that i use to do surveys and things like that. Tend not to play games but loads of surveys
Love
Hileena0 -
hileena111 wrote:Hi Anky
As you know I've got mine but i just wanted to say I agree with the extra e.mail....I have a couple but one in particular {yahoo} that i use to do surveys and things like that. Tend not to play games but loads of surveys
Love
Hileena
Glad to hear it so much safer. XAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
hi Anky will Pm you if you dont mind
ColinWHEN GOD GIVES YOU LEMONS MAKE LEMONADE0 -
Thanks for the PM anky
seems i drift back hear when i'm not well but lets hope i wont be here to long.
ColinWHEN GOD GIVES YOU LEMONS MAKE LEMONADE0 -
Hi Colin,
Why dont you stay when you feel better......give some of us answers and encouragement
Love
Hileena0 -
This is a great idea!!!!! Thank you x0
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this prob a stuip question but how do you do the coloured dots on it ???? saved it under wordval0
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Not a stupid question at all!
If you have the blank one in word you can use the circle in the drawing toolbar to draw them and change the colour. Go to view, toolbars, put a tick next to drawing. You will see a toolbar come up with shapes on it choose the circle and draw it where you want, then use the paint bucket to change the colour. You may have to click on the image of the body right click and choose order, then choose send behind text.
Hope you can follow this let me if not will send you some instructions as an image no problem. XxAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
thanks that helped had found most of it just not last bit have not played with this version of word much yet must get around to it lol valval0
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Hi Anky thaks for the body map its really good, However i dont think i could keep a streight face if i had to hand it to my Rheumy.
You see I'm a man LOL
got any man ones please.
ColinWHEN GOD GIVES YOU LEMONS MAKE LEMONADE0 -
Colin1 wrote:Hi Anky thaks for the body map its really good, However i dont think i could keep a streight face if i had to hand it to my Rheumy.
You see I'm a man LOL
got any man ones please.
Colin
Ha ha that made me chuckle, will sort you one out later sorry never thought, send me your email again cos delete them as I promised once sent them. XAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
Your a star Anky
thank you
ColinWHEN GOD GIVES YOU LEMONS MAKE LEMONADE0 -
valval wrote:thanks that helped had found most of it just not last bit have not played with this version of word much yet must get around to it lol val
Hi,
Have sent you the instruction in PDF hope you can follow them. xxAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
Hi all,
To go along with the pain map I have created some instructions for how to draw the small dots on the pain map on a computer in Word, I hope they are easy to follow.
I have sent them to all who I have already sent the pain map too, if I have forgot anyone give me a nudge. If I send it to anyone new will send them the instructions with them. xxxAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
Colin1 wrote:Hi Anky thaks for the body map its really good, However i dont think i could keep a streight face if i had to hand it to my Rheumy.
You see I'm a man LOL
got any man ones please.
Colin
sorry colin this made me laugh out load so glad all the men are out watching football lolval0 -
Hi all,
Am back from holiday and I know some asked for it while I was away, sent to some (I think everyone) but not 100% sure if you are missing either the pain map or instructions just PM me and I will send again.
xxxAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0 -
I had a consultant appointment Monday and he was very impressed with the body map Anky sent me. It saved me going through each ache and pain and feeling like a hypo! Not being very IT minded, I used three different coloured high lighters - it was very theraputic colouring in my aches and pains. Thank you again Anky.
Tracey xxx0 -
Hi Anky , I have PM you about the chart , I would love one it is so difficult to get it over to the doctors how much pain i am in and where it is . jillyxx0
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tj66 wrote:I had a consultant appointment Monday and he was very impressed with the body map Anky sent me. It saved me going through each ache and pain and feeling like a hypo! Not being very IT minded, I used three different coloured high lighters - it was very theraputic colouring in my aches and pains. Thank you again Anky.
Tracey xxx
Just gald it helped and it made it easier for you. xxAS Sufferer
Live, love and enjoy life, live each day as though it's your last!0
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