Happy to share body pain map and safe emails! x

Ankyspond

jilly wrote:

Hi Anky , I have PM you about the chart , I would love one it is so difficult to get it over to the doctors how much pain i am in and where it is . jillyxx

Sent it about an hour ago, hope it helps. xx

skezier

Hi Anky,#

Good to see you back ..... but..... where is the sun you was meant to be bringing?!

Hope you all had a good time flower. Cris xx

niecsey

Brillaint idea saves having to rush to cram everything in during an appointment and forgetting things!! I took one with me to the physio must of saved time she knew exactly what to ask me after that x

mig

thanks anky will try it out on my next visit to clinic.Mig

Rosycheeks

Thank you very much for the pain map
I have an app with rheumy nurse next week, so I will put it to good use then.

valval

just bumping this up for some one val

Ankyspond

valval wrote:

just bumping this up for some one val

Good, still have it all ready to pass on. Xx

magenta

Hi Anky,

Would you please send me a copy? I'll PM you-thanks,

Magenta x

Ankyspond

magenta wrote:

Hi Anky,

Would you please send me a copy? I'll PM you-thanks,

Magenta x

No problem will do it half hour. X

magenta

Thanks,

Hope you are well,

Magenta x

Ankyspond

magenta wrote:

Thanks,

Hope you are well,

Magenta x

Sent it hope it helps, tired after today gonna hit the sack now. xx

magenta

Hi Anky,

I got it,

Thanks,

Magenta xx

elnafinn

Would this be useful for you to have, Diane, regarding your forthcoming appointment?

Elna x

Ankyspond

Well have shared this pain map with lots now my turn to use it in Monday. Xx

ironic

Hi Anky,
What time is your appointment on Monday as I would like to volunteer for pocket duties.

I do hope you get some answers when you go.
fingers crossed for you.

Lv, I x

Ankyspond

Ironic,

Thank you so much that brought a tear to my eye, it's 10am and I will feel better knowing you are in my pocket.

With the nurse about meth prob increase dose cos in so much pain constantly, with consultant end if month like a never ending merry go round. Xx

margareth64

Hi How do I get another email? Im wanting to do some online shopping and think it would be a good idea to have a seperate one . Is this a good idea?

Ankyspond

margareth64 wrote:

Hi How do I get another email? Im wanting to do some online shopping and think it would be a good idea to have a seperate one . Is this a good idea?

Morning,

That's a great idea just what I do and much safer. Sign up for a free email account I use gmail, you could use yahoo, hotmail any of them really. Type in gmail and you will see where you can sign up for free email account, don't put all your real info on there either remember you only using the email address not the rest of the info. Hope this helps, if not ask again. Xx

ironic

Hi Anky,

Will be with you for 10am. I find the nurse appointments are best for me, they have more time for you and less 'formal', I hope she will be able to get the ok from your consultant for the increase in mtx for you.

I’ll give you a little poke in the back to spur you on, ok.

Lv, Ix

valval

i will be there as well good luck val

Ankyspond

Thanks Ironic and Val,

Well went and had a good chat and did the silly tests to stay on Enbrel, have to go back on 28th to see consultant cos she worried about the amount of pain I am in constantly, the fact I had a blubber prob didn't help. Anyway will see what goes on the 28th but knowing you were there made it easier.

Just been told that I will see the nurse once a year and the consultant once a year from now on cos new thing they have brought in and the silly tests you have to do to stay on Enbrel will be sent you to at home!!!!!!!! xx :roll:

vonski

Hi Anky,
Am I too late to ask you to send me a pain chart? must have been to sleep and only just seen your post.
Love
Vonski x

Ankyspond

vonski wrote:

Hi Anky,
Am I too late to ask you to send me a pain chart? must have been to sleep and only just seen your post.
Love
Vonski x

Never too late, just PM me with an email address I can send it to and will do it straight away. I used mine today and they said again how useful it is. xx

vonski

Hi Anky
Thanks it came through this morning and seems very good. I will take my time to fill it in though so hopefully I'll get it all right.
Love
Vonski x

valval

hi anky that strange about them sending them to you at home at least you only see them once a year unless things get bad it good to know they always there val