It's a big week for Tillytop!

dreamdaisy
dreamdaisy Member Posts: 31,520
edited 24. Dec 2011, 14:10 in Living with Arthritis archive
Our lovely girl begins a week of intensive physio and hydrotherapay on Monday and she is looking forward to it very much indeed. She has been having a really rough time of it now for far too long: the rituximab is wearing off, she cannot have another infusion until her chest trouble has cleared, the flushes and shivers are still a major problem but, as doughty as ever, she is planning on doing the full week. She was given the choice to stay in but has instead opted for daily trips there and back, which, when I think about it, makes sense: if there is one thing worse than removing a cold wet cossie then it's putting ON a cold wet cossie. At least she will be able to dry it overnight!

Good luck, tilly, I hope that in 168 hours time you will be looking back at a good, positive and helpful week of treatment. ((())) and a smidge of love. DD
Have you got the despatches? No, I always walk like this. Eddie Braben
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Comments

  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Thinking of you Tilly, hope all goes well..xx
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • joanlawson
    joanlawson Member Posts: 8,681
    edited 30. Nov -1, 00:00
    Sorry to hear that you've been having a bad time, Tilly, and I hope that all will go well for you this week.

    Joan
    c1b3ebebbad638aa28ad5ab6d40cfe9c.gif
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Thankyou dd for letting us know about tilly

    Hi Tilly.
    I am sorry that you are still suffering from the flushes and that you have had to stop the infusion due to your chest. I really do hope your chest clears soon.
    Good Idea I think to go to physio everyday rather than staying in the hospital, atleast you have a better chance of a good sleep each night.
    I hope the physio and the pool helps.
    Take good care
    Love and Hugs Julie pf xxxx ((((((()))))))))))))
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Thank you so much DD for starting this thread - and thank you to Tracy, Joanlawson and Juliepf for your kind replies.

    As DD says, I am very much looking forward to it and I feel much happier now that I am going in each day. And that has only been made possible by my wonderful husband who is going to drive me there each day (at least an hour each way) and work from the hospital coffee shop.

    Thanks all.

    Love Tillyxxx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Tilly
    I will be thinking about you, and hopefully you will get loads of benefit from the treatment.
    What a lovely hubby you have....and please let us know how you are getting on xx
    Love
    Barbara
  • suzygirl
    suzygirl Member Posts: 2,005
    edited 30. Nov -1, 00:00
    (((Tilly))), I am pleased you have this week sorted and I really hope that it helps you in the way you want and need. Take it easy afterwards as it will be exhausting.

    Love & hugs to you x x x
  • Poppyg1rl
    Poppyg1rl Member Posts: 1,245
    edited 30. Nov -1, 00:00
    Hi Tilly,
    I'm so glad you're having this treatment, I hope it makes the world of difference Tilly, I know it's been tough for you and you deserve a break from it. Will be thinking of you this week, love and hugs (((()))) Xxx
    'grá agus solas'
    'Love and Light' translated from Irish. X
  • resusjan
    resusjan Member Posts: 290
    edited 30. Nov -1, 00:00
    oh good luck Tilly,

    Hope it all goes well, what a wonderful option to come home each day, nothing like your own bed

    Hope it goes well
    Jan x
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Tilly,


    I am sorry the continuing sweats are still coming at you thick and fast. I can really sympathise with that one. Thank goodness you will be able to get there and back every day and your lovely hubby will be with you.

    Fingers crossed for you but I am sure it will be of great benefit for you. They may be able to pass some other information to you while you are there to help you with the other problems, I do hope so anyway.

    Gentle hugs,

    Lv, I x
  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    Hi Tilly,
    Realy hope all goes well, Hopefully it will help u loads.

    Take care. Xx
    x:smile:
    Clare xxeyeore-1.jpg
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I am thinking of you. ((())) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Right, I've done a checklist for you, ready?

    Wet suit.
    Snorkel.
    Mask.
    Oxygen tank(s).
    Flippers.
    Diver's watch.
    Diving knife (in case you get entangled in trawler netting).

    That's for the physio, now the hydro needs:

    Pants.
    Shorts.
    Bra.
    T shirt.
    Socks.
    Trainers.
    Energy bar.
    Bottle of water.

    :grin:
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi Tilly

    I am right here ready to jump in your pocket
    I hope the day goes well

    Love & hugs ((((((())))))) juliepf x
  • suzygirl
    suzygirl Member Posts: 2,005
    edited 30. Nov -1, 00:00
    Tilly, wishing you well for today x
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    will sit on side of pool and watch can not be bothered getting changed lol val
    val
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I've heard from Tilly - she has had a mixed bag of a day, but it was mostly good. Today was the exploratory day - for both her and those working with her. The physio nurse was wonderful, very kind and careful, and as for the hydro, well, Tilly did not want to leave the pool! As a result of today's efforts dormant muscles are making their presence known (which is probably not a bad thing, especially with the osteoporosis to be considered) but she is happily going back for more tomorrow: and next week too!

    She also discovered today that there has been a great deal of help available to her but somehow no-one had told her. My thinking was that everyone else was assuming that everyone else had told her what was there but in fact no-one had: 'tis easily done I suppose, even though it should not be. After phsyio and hydro tomorrow she will be seeing an OT and this can only be a good thing.

    Tilly? You wanted it, you've done it and I for one am very proud of you. The unkown is always daunting but, by crikey girl, you've tackled it and won. I shall be thinking of you tomorrow and I hope it all goes equally well. (Just don't overdo things, OK?) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmorton
    frogmorton Member Posts: 30,027
    edited 30. Nov -1, 00:00
    Hoorah Tilly!!!!!!!!!!!!

    l am so very very proud of you :grin:

    h015.gif

    You are a star!!

    Lots of love

    Toni xxx
  • CJHunter
    CJHunter Member Posts: 1,038
    edited 30. Nov -1, 00:00
    Well done Tilly.
    Keep you going gal :wink:
    Clare xxeyeore-1.jpg
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    hi Tilly,

    well done!!!! good on you and so hope it will help you so much. (((((((((( )))))))))) Cris xxx

    hi Auntie Tilly,

    u035.gif and f034.gif here.... nudges and custard creams with tea... and for some reason this dam owl box is caught on my antlers :wink: xxxx
  • roses1
    roses1 Member Posts: 1,850
    edited 30. Nov -1, 00:00
    Hi Tilly,

    Hope it helps and good luck with it all :grin:

    Rose x
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Thank you kind peeps - and thank you DD for updating the thread. Really really appreciate the kind words and support. Too tired to post properly now but will update in due course.

    Thanks again.

    Love Tillyxxx
  • kellerman
    kellerman Member Posts: 741
    edited 30. Nov -1, 00:00
    Hi Tilly,
    Hope you had a reasonable night.It is exhausting....but boy the hydro is great.
    I was there yesterday....now gym for 4 weeks and no hydro until after christmas.So relaxing and glad you enjoyed it.
    You take care now. May
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Ooooh! I love the pictures! I must dig mine out again.

    Right, good luck for today my lovely, I hope today goes swimmingly well ( :smile: ) and that the OT can give you some further help. DD

    PS No need for thanks, 'tis what friends do for each other, yes?
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • suzygirl
    suzygirl Member Posts: 2,005
    edited 30. Nov -1, 00:00
    Tilly, that is fab news, I am thrilled for you. Lets hope that all the therapy and the help make a world of difference to you :grin:
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Morning Tilly

    I am pleased to read from DD (and thankyou for that dd) that the day went well.
    I hope today is even better
    Thinking of you
    Love & Hugs
    Juliepf xx

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