It's a big week for Tillytop!

dreamdaisy

Our lovely girl begins a week of intensive physio and hydrotherapay on Monday and she is looking forward to it very much indeed. She has been having a really rough time of it now for far too long: the rituximab is wearing off, she cannot have another infusion until her chest trouble has cleared, the flushes and shivers are still a major problem but, as doughty as ever, she is planning on doing the full week. She was given the choice to stay in but has instead opted for daily trips there and back, which, when I think about it, makes sense: if there is one thing worse than removing a cold wet cossie then it's putting ON a cold wet cossie. At least she will be able to dry it overnight!

Good luck, tilly, I hope that in 168 hours time you will be looking back at a good, positive and helpful week of treatment. ((())) and a smidge of love. DD

traluvie

Thinking of you Tilly, hope all goes well..xx

joanlawson

Sorry to hear that you've been having a bad time, Tilly, and I hope that all will go well for you this week.

Joan

julie47

Thankyou dd for letting us know about tilly

Hi Tilly.
I am sorry that you are still suffering from the flushes and that you have had to stop the infusion due to your chest. I really do hope your chest clears soon.
Good Idea I think to go to physio everyday rather than staying in the hospital, atleast you have a better chance of a good sleep each night.
I hope the physio and the pool helps.
Take good care
Love and Hugs Julie pf xxxx ((((((()))))))))))))

tillytop

Thank you so much DD for starting this thread - and thank you to Tracy, Joanlawson and Juliepf for your kind replies.

As DD says, I am very much looking forward to it and I feel much happier now that I am going in each day. And that has only been made possible by my wonderful husband who is going to drive me there each day (at least an hour each way) and work from the hospital coffee shop.

Thanks all.

Love Tillyxxx

barbara12

Hi Tilly
I will be thinking about you, and hopefully you will get loads of benefit from the treatment.
What a lovely hubby you have....and please let us know how you are getting on xx

suzygirl

(((Tilly))), I am pleased you have this week sorted and I really hope that it helps you in the way you want and need. Take it easy afterwards as it will be exhausting.

Love & hugs to you x x x

Poppyg1rl

Hi Tilly,
I'm so glad you're having this treatment, I hope it makes the world of difference Tilly, I know it's been tough for you and you deserve a break from it. Will be thinking of you this week, love and hugs (((()))) Xxx

resusjan

oh good luck Tilly,

Hope it all goes well, what a wonderful option to come home each day, nothing like your own bed

Hope it goes well
Jan x

ironic

Hi Tilly,


I am sorry the continuing sweats are still coming at you thick and fast. I can really sympathise with that one. Thank goodness you will be able to get there and back every day and your lovely hubby will be with you.

Fingers crossed for you but I am sure it will be of great benefit for you. They may be able to pass some other information to you while you are there to help you with the other problems, I do hope so anyway.

Gentle hugs,

Lv, I x

CJHunter

Hi Tilly,
Realy hope all goes well, Hopefully it will help u loads.

Take care. Xx
x

dreamdaisy

I am thinking of you. ((())) DD

dreamdaisy

Right, I've done a checklist for you, ready?

Wet suit.
Snorkel.
Mask.
Oxygen tank(s).
Flippers.
Diver's watch.
Diving knife (in case you get entangled in trawler netting).

That's for the physio, now the hydro needs:

Pants.
Shorts.
Bra.
T shirt.
Socks.
Trainers.
Energy bar.
Bottle of water.

julie47

Hi Tilly

I am right here ready to jump in your pocket
I hope the day goes well

Love & hugs ((((((())))))) juliepf x

suzygirl

Tilly, wishing you well for today x

valval

will sit on side of pool and watch can not be bothered getting changed lol val

dreamdaisy

I've heard from Tilly - she has had a mixed bag of a day, but it was mostly good. Today was the exploratory day - for both her and those working with her. The physio nurse was wonderful, very kind and careful, and as for the hydro, well, Tilly did not want to leave the pool! As a result of today's efforts dormant muscles are making their presence known (which is probably not a bad thing, especially with the osteoporosis to be considered) but she is happily going back for more tomorrow: and next week too!

She also discovered today that there has been a great deal of help available to her but somehow no-one had told her. My thinking was that everyone else was assuming that everyone else had told her what was there but in fact no-one had: 'tis easily done I suppose, even though it should not be. After phsyio and hydro tomorrow she will be seeing an OT and this can only be a good thing.

Tilly? You wanted it, you've done it and I for one am very proud of you. The unkown is always daunting but, by crikey girl, you've tackled it and won. I shall be thinking of you tomorrow and I hope it all goes equally well. (Just don't overdo things, OK?) DD

frogmorton

Hoorah Tilly!!!!!!!!!!!!

l am so very very proud of you



You are a star!!

Lots of love

Toni xxx

CJHunter

Well done Tilly.
Keep you going gal

skezier

hi Tilly,

well done!!!! good on you and so hope it will help you so much. (((((((((( )))))))))) Cris xxx

hi Auntie Tilly,

and here.... nudges and custard creams with tea... and for some reason this dam owl box is caught on my antlers xxxx

roses1

Hi Tilly,

Hope it helps and good luck with it all

Rose x

tillytop

Thank you kind peeps - and thank you DD for updating the thread. Really really appreciate the kind words and support. Too tired to post properly now but will update in due course.

Thanks again.

Love Tillyxxx

kellerman

Hi Tilly,
Hope you had a reasonable night.It is exhausting....but boy the hydro is great.
I was there yesterday....now gym for 4 weeks and no hydro until after christmas.So relaxing and glad you enjoyed it.
You take care now. May

dreamdaisy

Ooooh! I love the pictures! I must dig mine out again.

Right, good luck for today my lovely, I hope today goes swimmingly well ( ) and that the OT can give you some further help. DD

PS No need for thanks, 'tis what friends do for each other, yes?

suzygirl

Tilly, that is fab news, I am thrilled for you. Lets hope that all the therapy and the help make a world of difference to you

julie47

Morning Tilly

I am pleased to read from DD (and thankyou for that dd) that the day went well.
I hope today is even better
Thinking of you
Love & Hugs
Juliepf xx