OA is not a second class one!

skezier

Legs oh flower that made me laugh an today's thats no mean fete

your right though it is painful and debilitating and it has done huge damage to a lot of us for a very long time.

I firmly think all the arthritis's are equal and don't understand why oa seems to get so much sidelining..... never really got an answer except the fact they come up with now... 'we can't replace your spine and neck' thats the new cope out now

You can hear the palliative care rant just bubbling along nicely eh Hugs and hopes, with tea and love xx

Chris as ever really good to see you! Yep the hawthorn is half done... will send you some pics but the ladder beat me today.... far too wobbly to go up it no matter how soft the landing :roll:

its only got the icicles left to go and possibly another set of coloured lights cus they are a bit too bright for indoors I can't believe I have said that

Brewed up some major payback though cus sat here feeling cut in half and dread lying flat.... will have to though else the legs will not de-swell :roll:

I hate the fact you are having to crawl flower..... could ot help and get you a stair lift? See I am lucky to not have stairs cus I don't think I could do them too well either. I struggle with the block steps into here.....

You shouldn't have to beg for the treatment you need either! I get mad over this one I really do! Chris is there any way you could see someone else? I know the answer my friend and they are letting you down so badly just now.

I really hope it will get easier for you and please my friend drop in more often. hugs, tea and since its you I might even share the bestest fudge xx

Clare yep your right it is starting to creep in here as well..... that's not right and really we can't let oa become the are and tare one cus its so not what causes it.. You didn't ask for it, and I so hope you get some help from the guy in London. Hugs and tea and a hope you got a decent night. xx

Hileena i think I might owe you a pm :oops: I am all behind and all over the place just now :roll:

You weren't gabbled my friend and your right it really is surgery and the gp's unless your very lucky...... I was so lucky to strike gold with the pain doc... 14 or more years too late she still bends over backwards to keep me mobile though the 'gibbet' she might no be so keen on......

I get see next month for them to come up with something to help get the eight off the spine and neck... some ware and tare eh?! Right with you over getting angry...... I hid it so well :oops:

People do need more education and well your right again if thats what folks with it think no wonder them without it haven't got a clue.....

Well done though for maning the stalls and trying to help get folk to understand what they have and how to get help. Hugs and tea in the special stay warm cup xx

Scozzie I think its a different type of inflammation, more a reaction to the rubbing and destruction causing localized inflammation less in the blood though now there is a lot of idea that its equally autoimmune I bleive....not 100% on how much has changed since I stopped reading up on it..... I took the palative hard and well its the oa that stops them treating the pa aggressively cus the joint seem to have both in them and so stop one the other will still go on with its relentless destruction....

Oh I do find the palative thing so hard to swallow

Its not ware and tare and they should move with the times.... saying that oa seems to have so many different terms thrown at it but they should call it hat it is I feel.

Hope the joints will ease off for you soon and hang in there. xx

Rose its so hard to be told the get used to it thing... I also think its wrong an they should be helping you a dam site more. Its a life trasher, as are they all. I hate how much it took from me when i was a basically a kid!

They don;t always listen to us and they seem to have preconceived ideas.... I ember once being told I couldn't have the pain and lack of movement to the left hen the discs had gone to the right.... they don;t that now cus its progressed to this horrible disfigurement and neck swelling ... to the left more than the right... is that psychosomatic!

I really wish I had the cure for you. Even a way to get you some real help to break the stake mate..... Rose hang in there and know you are not alone and you have folk who care about you and you do matter as a person. hugs, tea and a chew stick for my mate. xx

Lynn oh have I got some ideas now about sheep and hats

I think Sue has indeed described it well with the rotten boat.... just wish we hadn't all booked a passage in the said boat.

I so agree with you that the ware and tare should go in legs's bin! It is misleading and belittles oa so much. I think that might be why someone wanted to swap...... You know i have 2 types and the one I wont have snapping at my heels and I think they are very different (as Rose said the one I don;t have and the oa pain are very different as is the pa pain) but ll are well able to take a body to bits.

Not sure what they could replace it with though but so agree the ware and tare does diminish it and we certainly should not label our selves with that one... enough that the medics are already doing it for us! They are very misinformed and they need to get with the program!

I so agree with you that all the arthritis's are disabling and destructive and all should be equal. I wish none of you had it mind but there is one thing....

its brought me some of the best friends I have ever had ....... it really has.

Good to see you and leaving a hug, a sheep in a cap and a cram egg I managed to get off Wish while she wasn't looking.....some chance of that one xxx

Elna thank you flower for aying the deffinition cus I couldn;t remebr

What it was :oops: I think your right and we do need to challenge the medics over ware and tare.... I think it is being changed but it will take for ever to get to the grass root level maybe? Here I don’t think it ever will..... Though they are kind enough and help but rumo's don't deal with oa as a general so I am eternally grateful mine did cus no-ne else was bothering to......

Hope that neck is dong well and your foot and knees are being kind to you? Hugs and a cuppa xx

Right now do I go get a ton of payback or try and break the padlock on the gate? I came back earlier and it won’t unlock..... Used a ton of oil in it and if I am lucky I might be able to get the car in and not leave it where it is.....

the payback really is looking for a chance to wipe me again... and in my case the oa causes tempry paralysis and how bad does it need to get to be taken seriously?!

hope you all sleep well. xx

hileena111

Morning petal
How are things this morning? You dont owe me a pm...well not really I havent pm'd you either for a long time......when you were so bad I told Toni to tell you not to dare pm me x:-D to get as much rest as possible so I didnt pm you after that 'cause I knew you would answer
As for manning a stand .....easy because its volunteering for arthritis.
Sit when you want, stand when you want, go walkabout when you want {as long as someone else is there}All volunteers and workers have arthritis so they know all about it. If it was some other group you would probably be standing for hours :shock: if posible {not for me x:shock: }
Hope you dont get this for ages ....that you are still in bed asleep??????
Love
Hileena

elnafinn

collywobble wrote:

My wish is for doctors to see and treat each patient as a whole person, and not to attach some convenient 'one size fits all' label to them. Maybe they should scrap the whole arthritis umbrella term completely, and start afresh. Lynn xxx

Oh, how wonderful, Lynn, if this would ever be possible, because everyone is so different with what cards they have been dealt with. How can the doctors know enough about so many different type of diseases, let alone if there may be a connection between them. We ourselves may come to our own conclusions with time but we are concentrating on ourselves only.

Western medicine and Chinese or Oriental medicine have a very different approach. Same symptoms, same signs, same patient, but very different ways of organizing the information. Perhaps these two different approaches should come together to provide better clinical outcomes than using them separately, in treating a patient as a whole person.

Elna x

kellerman

Great thread Cris,
I'm reasonably new to this. No aches and pains until last December when I took a tumble on ice.I saw my doc but it wasn't until April she took any notice and after an upper back MRI I had a fractured vertabrae.
Scan was just on thoratic part of back.Sent to a OP consultant in October and all other pains ignored.
GP has told me this is OA.wear and tear....how does she know?No bloods taken...no xrays.Is she pyscic?Cocos prescribed and shown the door.
Waited 22 weeks to see a physio...who told me I have Plantar Fasciitis in my feet...which I think is inflammation.She also said all the pain is from my lower back.
So am I to understand that there is nothing else that can be done.OK I am 63...but surely is this going to be my life from now on.
Never painfree...nobody taking any notice.....if this is OA I don't want it.
Hobbling around like a 90 year old.....I want my life back.
Definately about time some-one took more notice and helped us.
We didn't ask for this.We shouldn't be ignored or at best fobbed off.
Why should we be treated as 2nd class,we are in pain and somthing needs to be done.
I feel for you all.Please take care. May

elnafinn

Hi May

Fact:

Unfortunately OA often sets in after injury from trauma.

Elna x

hileena111

Hi Elna
So true......although my hips/spine and neck are "wear and tear" as they so wonderfully put it.....My ankle is a trauma one......accident...car went over my ankle a few years ago and it has now developed into arthritis

Love
Hileena

elnafinn

Oh Hileena I do remember that happening to you. :eek: That was awful.

Love
Elna x

PollySid

I have just read this post from start to finish and found it very interesting and I agree with what you are all saying. I have heard the phrase wear and tear from consultants too. I was told by an OT that I should protect my joints from extra use to prevent further wear, but how does a spine get overused? Surely we all use our spine the same so why has mine deteriated more than my husband's or my work collegues' who are about the same age?
A physio gives us exercises to 'strengthen' the joints. Why do these same exercises not wear the joints out more if it is overuse that causes our OA?
In my case my spinal OA is most definately genetic. My Mum had it, (as did her Dad) my elder sister has it, and my two daughters (36 and 40) and my 50 year old brother are already showing signs of back problems.
My dear old Dad (not wanting to be left out) passed on a disc herniation to me too. Thankfully that has been dormant (or whatever they do) for years now.
This topic has really hit the spot. There is a lot of strong feeling about it. I have always felt that the OA was classed as a lesser disease than the other forms and dismissed more often than not.

suzygirl

Hi Cris, I am late to this, but, boy do I hear you!!!!!!!

I have OA in my neck and lower spine, it has caused nerve pain, the disks to degenerate and scoliosis. I have a horrible bony lump at the base of my neck, that is extremely painful and is pressing on nerves causing numbness and pain. The damage occurred very rapidly, the difference in scans between 12 months was scary. I have just been left to get on with it.

I do think it is treated as a second class citizen next to Inflammatory arhtritis, yet is just as destructive and disabling.

I would like to say a big thank you for raising a very valid point. It is not just 'normal' wear and tear. At 39 I know no one else at my age with it.

I shall follow the thread with interest. I was just saying to someone earlier, if you don't complain, how do things get changed?????

madwestie

Cris, i am glad you started this thread it has definately hitr a nerve with lots of people I have had OA in my neck since i was in my early 20's and was told by the consultant at the time that if i was older he would give me anti inflamatories but as i was so young he could and if i could think of anything that they could do to help let him know.. :shock: well i went home in peices i thought am i destined for a life of pain and horrendous headaches. my saving grace was an osetopath but i did have to go once a month for years (i dread to think of the cost) i wasn't until i moved 7 years ago and got a new doctor that he said of course we can try anti inflamatories you don't want this sort of pain in your 40's i had finally found someone who understood and for the first time in years i felt more like my normal self unfortunately 5 years ago RA decided to take up residence and then the hospital decided to take notice so i have see the sort of treatment you get with OA and with RA and they don't compare it is frustrating to think that some type of arthritis is dismissed and you are left in pain to find ways of dealing with it yourself

Tracey

elnafinn

hileena111 wrote:

Hi Elna
So true......although my hips/spine and neck are "wear and tear" as they so wonderfully put it.....My ankle is a trauma one......accident...car went over my ankle a few years ago and it has now developed into arthritis. Love Hileena

Hi Hileena

We both have a touch of scoliosis don't we and that can lead to arthritis in later life, resulting in backache. :eek: which we both suffer from...... :roll: I have suffered with backache off and on since my teens and later on bouts of sciatica.....

Elna x

CJHunter

Cris, I just wanted to say a HUGE thank you for bringing this to the forfront of A.C Forum Members.

Dear Mods
You have heard the voice of many who have O.A so can A.C please stop derogatory comments and remarks being posted on here about O.A in the future please.

Thanks guys xx

elnafinn

Hi Clare

It is up to a forum member to press the report button if they feel strongly about a posting with an explanation of why they have reported it or a pm to Moderator or Jean123.

Elna x

scozzie

Just realised I missed an example/point in my previous post ... I have OA in my knees (amongst other joints), now I'll definitely accept, with no hesitations, that I have "wear and tear" in my right knee ... you only need to hear me walking upstairs to understand, but with little pain. Yet my left knee is totally silent when I'm climbing stairs, so I don't necessarily accept the "w&t" label for it ... but boy can it hurt at times! lol

Scozzie

hileena111

Hi Elna
Yes we both have a bit of scoliosis......and I suppose thats what caused my OA in the spine....its not the same is it??? Scoliosis is the actual curve as far as I know....That right??? Its only fairly recently that scoliosis was mentioned to me.....when I asked did I have one leg shorter than the other?...there was always a slight differenct in my trouser legs
Love
Hileena

elnafinn

Hi Hileena

Yes, scoliosis it the actual curve. If one leg is slightly shorter than the other, one adapts one's walking to compensate so in time put more weight on one side of the body than the other. This will more than likely cause problems later on because of walking unevenly.

Elna x

skezier

Hi Hileena, Elna, May, Polly, Suzy, Tracey, Clare and Scozzie,

I just answered this, long post as ever :oops: and for some reason it logged me out when I tried to post it! This one won't be half as good for which I apologize in advance....

Its been a long old day and the pain kept me awake most of last night (for a change ) Mind if anyone had a flip they could have got some footage good enough to 'earn' money with the see how silly you can be type program climbing the gate was not that easy

I got the right leg over but the left just wouldn't come up high enough..... i had to get in so it had to come high enough but it must have looked some funny..... specially as I was getting so frustrated

I got a couple of elderly sheeps and sometimes next doors sheep come over. i don;t mind and they now just look at me as if they have consent they done it so often).

Anyway young Bre broke out and went and joined the flock.... I went to get her back and saw a ram in the field...... she had mud on her back ..... if she is anyone up for some shepherding duties the end of February Kinda hope she has been eating well and just putting on weight....

Will soon know for sure cus she will start to balloon any day if she is.....

I kinda feel I should say sorry for gong off on a rant but clearly there are a lot of us that do feel oa is sidelined.... I think (for me at least) it has always been the Cinderella one and needs more high profile recognition. I think thats what Jo was saying she was actively trying to do, bless her.

Your answers also shows we do have a problem with the ware and tare label... pleased at that really cus I think if we except the label we are not helping oa's profile if that makes sense?

I think I have a bee in the bonnet abut it but its cus I do think its the Cinderella and somehow W&T (Scozzie thanks for the abbreviation... tis so much easier) it belittles and diminishes what it does to those unlucky enough to have it.

It also, perhaps unintentionally, makes me think somehow it as my fault and I asked for it......

Hileena I remember that as well flower, you were just so unlucky! I think if you have the tendency for oa any way in it will use.... You have to have the tendency though I think else everyone would have it and they clearly don't. I am glad they are now looking at it differently and are saying about some form of control may help in the future.

I so hope the next generation do get better and more helpful treatment.

I will get round to pminmg you soon flower i promise. I don't want anyone to think I stopped caring about them. I just have had a very bad neck and shoulder. Hey look 2 handed though so somethings are improving Tea in the special mug up on the shelf and a hug. xx

Elna I hear what your saying about the oriental treatments. Have tried a few as well before my reflexes got so bad. There was an elderly cas consultant who had trained for a lot of the 'alternatives' as they were back then in China its self.

I used to limp in (usually on nights when it as a bit quieter) and she would pounce and do a bit of acupuncture and I walked out much better. Actually it was one of the perks of the job.... you got a lot of help from the cas consultants if you needed it an they were quiet. They drained my knee one night and sent me out with a load of bute before it was taken off the market.... it was a good drug but I think there were big problems with it

Those were the days eh?! I was useful back then as well.....

Since my reflexes got so bad and the nerve damage revealed its self the alternative people wont touch it.... except one very bad Chiro and boy did he do some damage so you do have to be a bit careful who you see.

Got to agree with you as well about the damage the bones can sustain if for some reason your not able to use the joints in the way they are designed to be used, though I still think you have to have a tendency for some reason for oa.....

Hope your ok and leaving tea and a hug xx

May I think it would be totally fair if you were to ask for an xray of at least the lower end of your spine! I think you need to know what is gong on cus that helps and also they might be able to come up with something to help you pain and movement wise.

i so get what your saying flower. I can promise you it does get easier the longer you have it..... I think I am lucky cus I have so long and don;t remember not having constant pain. Its never been this bad though!

There is a lot of help out there but we don't seem to be offered it too easily. For me now I am in my twilight time they are at last trying to help control the pain so much better than they ever have. Its 30 years late but at least at last i don;t feel so lone and ignored as I did.

I hope that doesn't make me sound smug?

One thing this thread has kinda proved is we need to fight our corner to get the help they could joust give us!

PF is inflammation I think same as you, but its a localised type, effecting the tendon (is it the flexor tendon? May I have forgotten so much!) and not an inflammatory one I believe? It takes time May and is very painful but it will get better and I really hope the physio is helping with it?

If I were you I would really push to find out about the lower back. I had useless doctors (and they were) was stuck with them for 12 years. They would not get my neck xrayed cus they said it was bound to be more arthritis so why bother..... by the time it was mri's it was too far gone for surgery so I should have fought my corner and failed to do so...... see where that got me May as I age i am becoming more likely to make a stand but its all too late for me now

Constant pain isn't good and that they also should be able to help with..... I think if you can a double appointment with a decent gp might help you get some real help. It does depend on how good the gp is of course.

Thetas the problem as well with oa. we are wholly dependent on seeing a decent gp!

May there is a lot can do so please get a bit of exploratory tests etc to see what its up to. They can see from an examination what it might be but as you say they need to make sure they are right. I so hope you get a bit of better treatment. Hugs and a cuppa xx

Polly I am so sorry your kids seem to be having trouble as well. I hope they can get to the bottom of whats going on. It must be a worry to you. The disc thing have they done a MRI on it all Polly? I have some that have 'gone' but don;t hurt too bad as they are now fully dehydrated though that means bone to bone so its got pain just not as bad as it used to be if that makes sense?

The exercise thing does sound confusing but I think they mean no high impact stuff that would be harder on your joints. he exercises they give you are meant to keep everything straight and tighten up the muscles but do it evenly. I have some gentle ones they gave me years ago and it helps to free it up in the mornings when it is so stiff and painful.

The muscle tone thing is so important and does help to keep the joints in with a chance. Oh Polly they used to tell me I overused my spine but now they tell me I have only got this far cus I have kept the muscles strong..... Sometimes I just wonder what I should or shouldn't have done then!

I also feel the same way as you and to me it is the Cinderella one! It so shouldn't be cus it trashes us so badly and not all things can be replaced, though they have made huge strides in that direction now a days. Will they ever be able to do backs and necks do you think? Those are the ones that seem most neglected. I guess cus there is no way round the spinal cord but so often the backs and necks are the 'get on with it' one!

I now have help with pain, I have drugs that bring the pain down to a copeable level with the occasional break through that makes me just want to sit and cry. For me the hep is 30 years late but its out there and we shouldn't have to wait for a palliative care sticker to get it actually. Its an evil, evil thing to have and I hope so much that you can get some decent help. Leaving a cuppa if you'd like one and a hug and hope. xx

Suzy flower you must fight your corner. I have a lump as well so know how much it hurts..... Mine is sometimes kind enough to shut up a bit but just now the whole neck is on fire and the lump so hurts, even the t-shirt is hurting it. I so wish I knew how to help you.

I only know help is out there cus they are dong so much more for the pain control now a days for me! It is too late but it does help.

I know you said your on the gabs for the nerve pain and just wanted to say the pregabs are their big brother and are much more effective. they can mess with your had though... or they did mine but they have bee so good I ill forgive them anything. After 3 years they are still fairly good and still help.... It might help you more? Suzy I don;t know the answer just wish you hadn't got it and leaving a hug, a hope and a sachet fr my little mate. xx

Tracey hey good to see you Hope things get less hectic for you soon as well.

Your so right... we are totally at the mercy of a doctor... they don't all understand either pain or oa! Its impacts on your life physically and mentally... its evil. I am glad you got a decent one though cus they are worth their weight in gold!

I was lucky in that respect and was able to have anti-inflammatories even in my teens. Started on distalgesic then the lovely dff118's that spaced you out big time. They also used to make me so sick now I think about it. The useless ones gave me morphine and all that did was make me throw up, the diclos gave me an ulcer cus they didn't give you stomach protectors till you had the problem back then!

If I had known then what I know now..... well i would have been rodded and have so less much pain.

I agree with you they do treat the inflammatories better than the oa! They really do at grass root levels what ever the modern thinking is it hasn't made it to many gp's. I wish it would for folks like you for sure. My pa isn't being treated now cus there is no point the oa being so bad..... its evil Tracey it really is and even that hurts!

I don;t begrudge people anything I really don;t but its just not fair folks get so much help with trying to control their inflammatory ones and me... I am left to rot cus thats what they have done and predominantly cus I have the oa and pa collectively are n every single joint. The oa is untreatable so the pa is being ignored basically..... i know i have mtx but that failed to work from the beginning....

Sorry Flower the palative rant is never far away.

You try and get a bit of time for you and sending a hug, a hope and a tub of caesar for my mate Maddie. xx

Clare I just leaving you a hug and a hope as well as a promise it does get easier the longer you have it. Hang in there flower. Another hug and a cuppa xx

Scozzie I do thank you for the abbreviation! Its so much easier to type and just now typing isn't as easy as it was.

I agree with you in a way but will still never except the label. By my age you wouldn't be too surprised to have some degenerative changes, especially as I would have carried on with high impact things..... I used to ride intermediate dressage when my knees started.... that kind of riding is heavy on your knees. I was 15, I didn't have time to ware them out. I used to get off unable to stand they were so bad. Still got placed though till the spine got me

See thats the the joy of being so young... you just get on with it and other people said their knees hurt as well mind they weren't half carried to the nearest seat Even the much older ones

It wasn't ware and tare then but by now I would expect degenerative changes... not this much though, not even closely.

It might be the air in the synovial fluid thats clicking in your right knee? That's 'normal' for most folk at times. I hope your left one is being monitored thugh? I'm well behind on the forum so if you have said forgive me for not seeing it.

Stairs hurt knees and I so widh you didn;t have it as well. The one thing you must do is fight your corner and make sure you are getting the help you need. Have you had an ortho opoinion as well? Scozzie again you might have said so forgive me if i should have seen it. I used to find coing down satirs was hard as well, I dn;t have satirs at the mo but if ever i do i would get a stair lift for sure. Someone (and I don;t remebr who) said come down them backwards and a friedn of mine sadi thay really helped. Hang in there and fight your corner. hey that could be out new sloggan tea and a hug with a hope. xx


Right if this one gets lost I shall; get back to you tomorrow...

you all have a decent day and i shall go get a few hours payback..... Cris xx

bertyboy

Cris you are so right about the slogan Hang in there and fight your corner ,because if we dont who will , the words ITS ONLY also dont belong in a conversation where Arther is involved in his many forms , the staff that deal with us all need more understanding of the impact the words they use towards us can have , i believe that if you are one of the unfortunate ones that are having to fight for the benefits that you so rightfully deserve the words W&T will not help nobody likes the word ARTHER in any form but all these forms have a name to call thier selves , i have OA and although i am not proud of the fact i use the term OA when being ask about why i walk with crutches and wobble along , no its not W&T, love and hugs xx

kellerman

Cris....Decent doctor....been with my lot for years and one of her specialist interests is arthur.My Gran had RA long before I was born...mum used to take her for gold injections during the war...it never got any better and I didn't appreciate how much pain she must have been in.She died in 1985.My daughter has been told she has AS...she is 36.
This doc I see has never examimed me...not a finger.
I nursed for 29 years....tend to forget basics,as I did a midwiferey course when I came out of the forces...and then oncology.I have fought cancer twice but I'm finding this worse....now that does sound stupid!!!
I'm doing my physio like a good girl...but she told me not to do it so much that it causes me to crack...is she kidding...I crack if I move.
Had a car accident...Sept 09. An idiot reversed into the side of my car.My car was a write off and although I wasn't hurt I was in shock yet I was ok until the fall.Will have to put my I WANT hat on next time I see GP and get some tests sorted.
I have just taken her word for it that I have OA.2nd class patient...nothing they can do...keep taking the tablets.NO NO. Need to know for sure whats going on.
Oh and by the way....hubby farmers son so hun if sheep are tresspassing I'll send him...but only on loan mind...cos I need him here.
Got to move now...otherwise be stuck here ceasing up.
Love and hugs May

hileena111

Morning petal
What a long post..you must be shattered
I can get Toni to keep me up to date about you until you are up to pm'ing.
I was officially diagnosed with OA in lower spine and hips about 9 years ago.
For a long time previous to that I had a bad back.....used to "go" every now and then....eg things like holding someones baby whiles I was standing. I would go to my Osteopath and click, clack and that was it sorted ...until the next time. I wonder was that the start of the scoliosis??? I do ask but noone seems to know what started it or when it actually started....Only recently {well couple of years} that the name was mentioned.
Oh well......plod on x:-D I've got myself a rollator now it is great for keeping me straighter and walking a bit further....only use it for medium length distrances......short distance is walk and long distance {carrying things} is the scooter
Love
Hileena

suzygirl

Hileena, I have scoliosis now and mine is new. It developed due to the degeneration in my neck. I have done limited research on it and it appears that can happen. The disks and veterabre degenerate and cause damage.

I find it causes a lot of pain and various annoying problems.

Cris, forgive me for hijacking your thread!!!! Also, I love your replies, but I hope you are not wearing yourself out replying, my dear. You need to take care of your pain and yourself. (((hugs))) Izzy was delighted with the saqchet and wants to come and play again!!

hileena111

Hi Suzygirl
I'm sorry you have scoliosis......it is sore isnt it
Sorry as well Cris for hijacking your thread.
Love
Hileena

salamander

My mum had severe osteoarthritis and was completely disabled by it. It did get progressively worse. She had several joint replacements but it developed in other joints and even with the replacements she couldn't get around and was in tremendous pain. It wasn't until I got RA that I fully understood quite how difficult her life must have been.

When I was being assessed by my OT last year, she said that it is well recognized by them that people with arthritis get worse and more help should be given at an earlier stage. For example, things like blue badges, aids; that people were forced to wait until things were so seriously bad before help was given.

Do organizations like AC lobby the government for recognition of this? I found it hard to get my blue badge yet it is invaluable in giving me independence. I would be much more dependent on the state and cost them far more without it in terms of accessing other services.

Another whinge from me - it really annoys me when I say I have arthritis that many people say 'haven't we all? We are all getting older" (as one of my siblings said to me this week - 'You haven't got what I've got,' I thought to myself!) As you pointed out Cris, many people get this illness early in their lives, and very severely and, of course, we know there are differing types but they are all debilitating.

skezier

Hi Berty, May, Hileena, Suzy, and Sal,

You know I was thinking about this today and I think the W&T upsets me so much because it kinda implies it no big deal..... I think it will be the death of me to be honest...

Sorry I am very down and so tired but can't sleep cus I feel like I am being cut in half. This is so much more than ware and bloody tare If I were an animal they would put me out of the misery...... well today they would but under my on rules I haven't quite made it I always work on the theory that 3 bad days a week are ok, 4 is pushing it and 5 its time......

Got one more day to go to qualify then That's, I think, why I get so upset at the ware and tare cus its taking me out . It was bit by bit bit bu its got more ambitious just now...... Hey they lied when they said it would hurt less in years to come

30 years don the line its throwing the worst pain I have ever had

Will take some more tablets in a min and hope that and the warmth of the blanket will ease it off enough to get some sleep cus I am becoming a 3 head monster just now.... the employers (except the girls who never do anything wrong ) will verify... ind they have been hellers!

Mind this not being able to sleep is good training for the foals and the possible lambs All i can say is if they need help they best stand up

Berty You just need one good consultant or physio to help fight your corner. I don;t get why there help is out there yet we don;t get offered it either!

If Wilf wants some mud..... I have never seen it this bad and if I don nothing this next year I will get a few tons of concrete so send him down.... Love and hugs my friend xx

May you would have used your back a lot during the nursing.... your brave to do midwifery :shock: It was the 2nd thing i was scared of on the waggons and cus I am female anytime it as likely to happen i would be in the back.... Its also quite amazing .........but very scary

You know I honestly think you would be entitled to ask for an orthopedic opinion..... I honestly thing you should and with that kind of family history I am wondering it it should be a rumo's opinion.... May you need something to determine exactly what you have and what its up to!

You do need at least an xray. Given the gp is saying its oa... ask for an ortho's opinion cus they will know if its oa or one of the others the same as rumo's know. I wouldn't leave it and there is a lot they can do to help you. I have had so many things tried to help with the pain over the years and May even now the pain doc is trying to think of something else we could try... I kinda thinking RT..... not really sure there is much more left but she promised me she will support my neck as best she and that (hopefully) will help to slow it down a bit.

I really have got the help too late to do any good but it was there all that time and they didn't tell me.... don't make that mistake flower.

Hey could I borrow your oh for a few hours please got some fencing to repair and can;t lift the pounder too well.... i love the way i say that and you might ask me to define too well You hang in there and May you honestly do need to have that looked at flower. Hugs and Tea and a possible in lamb sheep xx

Hileena/b] I will be better soon... You know what its like cus sadly you have it recently but the pain is even effecting the breathing again.... Oh I so hate this bone shift! I loath and detest it with so much venom.....

Glad you got the wheels..... sorry I haven't been on your post flower it not that I don;t think of you I just so hurt and only got so much in me...... sounds like a cop out but it does so hurt......

Leaving tea in the special cup on the shelf and a hug xx

Suzy you hi-jack away anything you need or want to. Hope your ok today and so wish you could get some pain intervention like I do..... shame my pain doc is down here and out of reach cus she really is spot on in what she does.. just we are running out of ideas

When I get that contraption.. will let you know what its like cus it might help.... They need to take the weight off a few of the vertebrae and its hard to work out how they will do it..... Be interesting eh? ( forgive me back to one handed) leaving a sachet and a hug with the side dish of hopes xx

Sal thats an interesting question... i know they are involved in some of the planing side but are they political... guess it would depend on their charter.

I feel for your mum cus I do know what its like, Sal i really do. its hell and its so painful and debilitating.....

Your ot is right. very right actually but things might be getting better cus the nurse that is so good at getting a line in me went on a course run but a woman who actually has not got arthritis but boy does she know a lot about it! Ruth someone I think she was. any way the nurse had a book written by the woman who was running the courses and last drip i borrowed it expecting it to be cold and unaware of what it actually does to us as people....

Sal she was spot on about the emotional side, the pain side the lot. She covered a few of the main ones and actually didn't say oa as W&T

maybe thats what will filter through to the grass root folks in time... at least they are at last trying.

I so agree with you that everyone has it! no they don;t they have a bit of ache and pain ....... i hate the ones that tell you how to cure it :roll:

you are so right though all of the arthritis's hurt! hang in there and leaving a hug and a hope xx

Right I shall have a quick wonder about and pull my weight a bit on the forum. i am sorry i haven't been i just haven't been too good.

you all sleep well. Cris xx

skezier

forgot to Say....

spoke to the blind association again today.... gong to join the talking book thing and then will be able to get books i can 'read' and also they are going to try and hep with who actually 'owns' the optic nerves......

sorry just some of you know the biggest brick wall i have ever found is the eye problem... now that makes the lack of care given to the oa seem like top notch... yep its that bad!

also the thing you put in a cup and a kettle to fill..... i have trouble looking down if the neck is being a pain .... we thing they might help in 2 ways eh?

off for some pay back and you all take care and have a decent day. Cris xx