Monday Pocket duties please ...

tjt6768

I'm sure you'll survive, lol
Now get some sleep, if you're not away yet already

CJHunter wrote:

Woh steady one T a blokey hug, dnno if i can handle one of those ya know, LOL

kellerman

Hi Clare,
Thank goodness a later appointment than last time.
I'll be there and this time will manage to stay awake!!!!!May

CJHunter

I am so bloody nervous its stupid.
Well maybe it isnt, im just so fed up of being pushed from pillar to post.

I found out someone i know who has started getting similar symptoms to me and much less problems with her skin and the severity of pain was diagnosed with PsA, she went private and they diagnosed her within 10mins....
Why does the health system have to be so 2 tierd. its so unfair. Lets just hope this is a good day for me eh.

Sorry to keep going on , it just means more than ive ever let on to anyone. I want my life back. :roll:

jaja

Hi clare
Hope it all goes well...iv never been in a pocket...so i'll sit in the corner quietly cheering you on...

JAJA

suzygirl

Clare, I understand it isn't silly, its normal. Am wishing you all the best for tomorrow.

resusjan

I'll be there

Have booked the day off work, sandwiches already made, flask cleaned out, sweeties in my pocket (will try not to rustle the papers)

Good luck, hope it goes well

valval

you know we will be there to give you strenth good luck val

Star2001

I will be there to support you too

dreamdaisy

Good luck for tomorrow, CJ. I will be thinking of you. DD

hileena111

Thinking about youfor tomorrow Claire

Love
Hileena

tjt6768

the very best of luck for later today hun

georgie66

good luck for you today thinking of you

traluvie

.>.>.>.> Positivity .>.>.>.>

Thinking of you, am with you all the way..xx

julie47

Thinking of you Clare

I hope your appointment is a success

Love Juliepf x

barbara12

Hi Clare
Just to say I will be thinking about you today, and really do hope that your appointment is a good one....xxx

pinkbritishstars

Am thinking about you too hun. Let us know how you get on :-)

Take Care

Bronwyn xx

CJHunter

Hi all , firstly a huge THANKYOU for all your support, you guys have realy helped me through these past few/many months.

I know you would like to hear how it went today so without delay here goes.

Once upon a time.....

My app was an hour late and I thought oh no this doesnt bode well,but on this occassion i was wrong!!

I was pulled about and nerves and reflexes tested, he prodded n poked and i had pain i didnt know i had pain.
He asked me my history and said....
' Although i can only go on recent tests and the last 6mths of history i have I can tell you that at this time you do not have active PA.' he went into lots about whether i had it to begin with, how that the tests dont show it and he is aware that the tests are not always correct , that he thinks at present the PA is lying dormant or controlled.
He believes that the pain is real (it was nice to be told that instead of made to feel it was in my head) and is Fibromyalgia caused by the previous condition. He said although Fibro is a mixture of diagnosis and it covers a vaast array of symptoms that I fit most of the boxes nicely.

He has set up the first fibro clinic in the country and is booking me in to attend that.
He is getting my GP to introduce pregab daily and ami nightly, reduce the patches overtime but keep the naproxem as i helps when the joints swell. I will be having regular phisio, cbt and other stuff and he is gonna arrange things to happen closer to home.

He says i have OA in both knees and may need the patch to keep that pain at bay.

I am happy that i have finally been listened too and that my voice has been heard.

I am happy to give all these things ago as its better than what i had and we will see. I will
remain positive and do as told n see how it goes. It cant hurt to try.

Thanks all.

Huge (((((x)))))

Now need hottie, n cuppa n lie down.
Nearly home : )

JuliaHod12

Hiya
Fabulous, really positive news..........onwards and upwards :-)
Happy that you had such a good appointment x

Julia x

valval

so glad it went well rest now it was a big day val

dreamdaisy

Oh Cj, good news indeed. Rest up now hon, take things as easy as you can for the next 24 hours or so. DD

barbara12

Hi Clare
Im so glad you have got some answers, at least you know what you are up against, and your consultant having a fibro clinic is ....that will make life easier for you.
Now have a good rest...you deserve it xx

mig

So glad you have got some where at last.(((()))) Mig

stickywicket

Good. That sounds much better. Onwards & upwards, eh?

suzygirl

Thats good news Clare, it is so nice to be listened to and taken seriously. I hope his treatment plan helps you. Have you taken pregablin before? Are you on gabapentin now? Just being nosey!!

traluvie

Glad things went well luvie..
Onwards and upwards?? thats sounds like a great plan..xx