Hi all. I'm Ldyalb, I'm 23 and have suspected Psoriatic Arthritis.
I have diagnoses of Dyspraxia, Joint Hypermobility Syndrome, Fibromyalgia, Restless Legs Syndrome, Eczema and Rosacea.
I've had Fibro for almost 2 years now. Since last summer I've been noticing that my fingers often feel swollen in the mornings. I was on Diclofenac at the time and no-one else agreed they were swollen. Slowly over time they started to look a bit swollen.
I saw my 2nd Rheumy (for Fibro) in November and she told me I needed my fingers scanning if they still felt swollen in early December. My GP refused to do the scans although he did run the bloods she requested. My inflammation markers were in the highest range they can be before being out of the 'normal' range. I stopped taking the Diclofenac in Jan as I suffer from Acid Reflux and it was getting worse.
After this my joints became increasingly swollen and my little fingers middle joints became swollen and changed shape slightly. GP felt them and still refused a scan as he said my joints were too flexible to be arthritic. Bearing in mind I have HMS - of course my joints are mobile most of the time. They've very stiff in the morning for a few hours after waking up. Also stiff if I've not used them much for a few hours.
Both my parents have osteoarthritis, Mum also has Spondylosis in her spine. She was diagnosed with OA at 28 but she'd had symptoms since she was 24. I'm 24 in June. I also have an Uncle with Ankylosing Spondylitis, he's had it from a young age. My parents are both Hypermobile and I know HMS can increase people's risk of getting arthritis.
Shortly after my GP refused the scan I took the nail varnish off which I'd had on since Christmas. I was shocked to notice my nails were full of indentations (pitting) which I hadn't seen in anyone's nails before, let alone my own. I decided to try a different GP at my surgery, I had to wait 3 weeks to see him as he's the most popular one there. My Counsellor recommended him to me.
I showed him my nail pits and he agreed that my joints are swollen. He asked about Psoriasis and I said I don't have it, but do have Eczema. He examined my main patch of Eczema on my ankle which I've had about 8-10 years now. He said it might actually be Psoriasis and that he thinks my symptoms point to Psoriatic arthritis. He's referred me to Rheumy number 3. I have to wait aaaages for an appointment. Am 4 weeks into a 10 week wait. In London when I first got Fibro I only had to wait 3 weeks!
The pain is mainly in the bottom two finger joints but has started to spread to the joints nearest my nails. I'm also getting a lot of pain in my ankles and heels and in my toe joints, especially in my big toe joints nearest the nail.
I'm seeing my new GP tomorrow as my jaw is in agony, it hurts to talk, laugh and eat. I also have ear pains and tinnitus so I suspect TMJ. Or if I do have an inflammatory arthritis then perhaps it's spread to my jaw. I want to ask my GP to do some bloods and scans before I see the Rheumy as I've got such a long wait to see them. I'm concerned that by the time I get an appointment the new Rheumy will need to run the tests and then I'll have to wait months to see them again for the results and diagnosis. Not knowing what's wrong is driving me crazy