Very upset

Heather65

Well i went for my results today and wished i hadnt bothered,the lady told me that there wasnt significant damage to my neck and she thinks i can manage the pain with exercise and tablets !,so i asked what will happen next aqnd they are going to discharge me for now
Well thats when i burst into tears ive got no further she even said perhaps i could change my job! yes in a ressesion and my oh out of work .Iwas so upset dont know what to think do they think im making it all up ?,she is going to write to my doctor dont know why ,ive made a appointment to see him and see where i go from here so i just have to put up with it .
Im just so fed up

dreamdaisy

Oh dear, of course you are fed up, that is totally understandable and I am so sorry that things have turned out this way. She has to write to your GP, that is par for the course and I hope that this will make him/her think a little deeper about what may be happening with you. It could well be that this nurse is right but that does not make it any easier for you, I appreciate that. Learning to 'live' with a problem is far from easy, all of us on here know that. DD

barbara12

Oh Heather I am so sorry, I can feel how upset you are, this seems to be so common that people come away from appointments were they make them think it is all in there head, if they had the blinking pain it wouldnt be like this.
Can you not ask to see someone else, it really can be hard to get a good consultant, I got a fantastic one then he retied...I was devastated, and since then it has been downhill.
You try and get across to your GP how much pain you are in and how upset you are, I really do wish you well with everything, and dont forget we are always here xxx

Heather65

Ive made a appointment to see my doctor and he should get the letter from the hospital i didnt see a consultant just some one else ,im going to ask if there are any other tests he can do i know im low in vit B12 and always tired .
Ive had a x-ray and that shows bone spurs in several places so i know ive got cv in my neck im also seeing my chiropractor next week so see what he says he was the one who refered me to the hospital!,im just a bit upset at the prospect of being in pain forever with no help

dreamdaisy

Pain becomes a fact of life for so many of us, I for one am very happy that I had no idea what was awaiting me when, sixteen years ago now, I began my arthritis. You do adjust but that does take time: this is not easy, my lovely, but we will be here to help and support as much as we can. I think that injections of B12 are common in America but not so much over here. I am not sure what can be done - bone growths are the body's cack-handed way of trying to help itself - but you have more strength and steel than you currently realise. DD

Heather65

Doesnt feel like it ,i feel like a pyramid of cards and some one has taken out the bottom row i cant stop crying and my oh asks me whats wrong !

dreamdaisy

Of course it feels like that now - this is a time for feeling lost, bereft and helpless and the OH should be proferring cuddles and cups of tea (but if he's like mine he's currently lost in the wonders of indifferent footie on foreign shores). You keep crying because it does help, believe you me. There is a core of inner strength but some of the outer layers have to be stripped first - crying helps with that. DD

earthspirit

oh heather i know just how you are feeling.
i took so long to be dx with ra as i have very litte joint damage.
i agree with the other posters about crying/ the tears do allow the release of chemicals into your body which helps with pain - honest!
with you oh well you might want cuddles so ask, or you may be like me and unable to stand any touch.
if you get a soft pillow and make the middle a hole for your neck and then put one end on your shoulder, then rest your neck on that bit it might help with the pain a bit and let you have a comfy position to sit or lie in. it needs to be a feather pillow as i think it would be harder to get the sponge out of the centre to make a groove.
if you arent on any doctor prescribed meds try ibuprofen and paracetamol together. if there is any reason why you cant take either drug on its own donte take them together obviously!

Heather65

Thank you all ,
i am on some meds at the mo 30/500mg coco 2 four times a day and 500mg naproxn 1 twice a day but i find they only last for a few hours before the pain kicks in again,also the pins and needles have been getting worse in my hands and feet so something is going on ,just which i knew what ! :?

mellman01

Don't let them grind you down, your doing the right thing by seeking other adivce and being pro-active with regards treatment etc, sadly you'll come across people who have no bloody idea of how things are some people just don't get it, been there got the flippin T shirt etc, finding this site is a really handy tool for you, there's loads of people who can help you and they/we have total empathy with you, the most important thing is your not alone anymore, so welcome to the forum me dear!.

Heather65

Thanks mellman,
im feeling a little better now going to have a good chat with the doc,im going to ask him about fibromyalgia as i have all the symptoms but never thought about the conection before might be worth mentioning especially as i have a low B12 count ,it really does help coming on here and talking to people who are going through the same ,i dont know what i would do with out you all x

dreamdaisy

Fibro could be another possibility for you. There is no doubt that the arthritis waters can be very murky, it can take a deal of time to sort out exactly what might be happening. I am seeing someone next week about the numbness in my hands, it's getting worse and it's very tiresome on top of everything else. Grrrrrrrrrrr. Take care and I wish you well. DD

Heather65

Iknow what you mean DD you just want to know what is wrong with you instead of someone telling you one thing and then getting told something else its frustrating
Im going to try and relax this weekend and see what happens next week ,you take care to x

mouseymousey

It probably doesn't feel like it at the moment, but you are going to get through this. Try not to panic, and slow it all down, oneday at a time and all that. Take care of yourself x

stickywicket

I'm sorry, Heather, I can't help at all but I do feel for you. I hope something can be done though it's true that one does just get used to pain and not feel it so acutely. ((()))

hileena111

Hi
I'm so sorry you are in such pain.
If you havent already been told I dont think any more Anti-inflamms {Ibroprufon etc} are a good idea........sounds like you are on the maximum dose of anti inflamms {Naproxen} already. Thats what I'm on and have been told not even to use cream {anti inflamm. cream I mean}
It sounds an awful appt.
One of the things i do is ask to be copied into all the letters the consultant/or whoever....... sends to your GP then you can see what they are saying the the GP. I find sometimes it can be slightly different to what they are telling you. :shock:
Love
Hileena

julie47

Heather I am so sorry to read this.
Just popped in to see how you were

Sending hugs((((()))) and say try to have a nice weekend and I wish you well with your doctors appointment.

Love Juliepf x

mellman01

Heather can I ask you what types of pain meds are you on and how effective do you find them?. also do you get different and distinctive types of pain at different times and do you find the worst type of pain doesn't respond to any pain meds you use on it?.

pinkbritishstars

Sending you huge hugs Heather.

xxx

Heather65

Hi all ,
feeling better today had time to mull things over spoke to my chiropractor today he was very suprised at what was said so he is going to write to my doctor (who he knows )and get my results he is going to try and get another refural so theres hope yet
Ihad a good day visiting my granddaughter (3) who is endless fun and makes me smile and im just going to stay positive and see what happens

Heather65

Hi mellman,
Im o coco 2x 4 a day and napraxn 2x1 a day they are ok for a while but tend to wear of aftter a few hours ,i also use a cold jel but its the pins and needles which are getting worse !

stickywicket

Staying positive can only be good for you and having your chiropracter write to your GP can only be good too. I hope it helps.

magenta

Hi Heather,

I'm sorry I've only seen your post. I feel so sorry that the same thing that has happened to me, countless times, has happened to you. I'm due to see a new rheumy on the 22nd-I think that will be my 9th so far. Too long a story for just now so will cut it short. I've got sero -ve arthritis, fibro and OA in several joints.
At my last rheumy appointment, I still had a -ve RF factor. This seemed to be crucial in why they discharged me. The drs words were 'you've got fibro and OA, no RF factor, therefore we can't do anything for you-go away and deal with it. Oh, and by the way, stay off the anti-inflamms for now (dodgy tummy).'
I was devastated, particularly as I knew things had became worse for me.

After a few days of feeling like c**p, and crying alot, I decided to keep fighting (have done for nearly 20yrs) and so every time I felt more pain or noticed a change in any of my joints, I would visit my GP. 2 weeks after being discharged, I was back at my GP and he ordered bloods. Guess what? My first +ve RF!! He believes me when I say I'm in pain and knows I'm not making it up.

I just wanted to say, stay strong and keep fighting your corner. This is what I did when I had problems with my neck. I was the one that told one of my many rheumys that I needed an xray of my neck. Results came back with moderate 'age-related' OA. They didn't seem too bothered. I also kept telling drs about the pins and needles that were getting worse. 2 nerve tests for carpal tunnel had been done and were negative. I then had to push this matter further with my GP. The pins and needles had turned into pain and numbness. I was eventually referred to an orthopaedic surgeon and an MRI was ordered. The result was a bulging disc in my C6 vertebrae. The bulge is pushing onto my spinal cord, hence the numbness etc. My GP now knows that (funnily enough), I know my own body, especially when something isn't right!

I hope I've not bored you but I wanted to let you know that you musn't give up. Keep at em! I hope you're feeling better today?

Chin up girl,

love Magenta x

kathe

So sorry to hear about your problems...
Do you take B12 injetions?? I have low B12 counts to and I take B12 injetions. I olso have low folic acid counts and take tablets for that to..
B12 injetions can really help..I had low blood count for å while to , that can olso make you tired...

Hope you feel better soon...:)

frogmorton

Dear Heather

I am so so sorry I was sure they would find something and be helping you soon

Could you ask your GP whether you could have any sort of nerve tests (sorry brain addled ATM - can't remember what they are called :oops: ), to see if the nerves are ok. This is with reference to the pins and needles you mention.

I am so glad Granddaughter was such a fabulous tonic for you Lovely...you should try to bottle her!!

Love and hugs

Toni xxx

Heather65

Hi thank you so much for your kind words it realy helps ,
as i said before i had a x-ray and MRI and a bone scan now so the full works really the bone scan showed osteophenia (which im not to sure what it is ) in my neck and lumber area didnt know about my back till then ,i think the problem is having a physio looking at my MRI which i think they are not really qualified to do even with a bit of extra training (six weeks ) and a fancy name .
Im lucky to have people on my side who knows that it is something more than posture thats what they said at the hospital ,makes you laugh hey ?its the numbness and pins and needles ,any way im sure there is a very long way to go sio hold on for the next chapter :?

At leas t i know i can come on here and have a moan