Any one taking Cimzia??

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Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Give it time, Kathe. These meds can take anywhere between two to twelve weeks to 'kick in', you are in the very early days of this new treatment. Take care, yes? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Yes I know.
    But so tired of waiting, in pain all day and night. Really having trouble sleeping. My knees and legs aren't good at all. really hope that this cimzia kicks inn and start helping. When I first started enbrel it helpt a loot ,but it took 2-3 months before it started helping. Youst so tired of it all sometimes.taking prednisolon and pain meds now to help whit the pain but really the pain is there all the time. On wendsday I m gone take the 2 dose of cimzia, 2 injections. Really hope if starts helping because I m going to work in the north sea soon.
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    The pain is there all the time, in my case that's thanks to the OA which of course the humira etc don't affect. I sleep with a pillow lengthways between my legs as that keeps my knees and ankles apart, that offers some relief but admittedly not much. I was wondering if your leave was coming to an end and I hope you start to feel better before you head back out to the rig. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you
    I'm going to trie that whit the pillow.
    Have you been on humira long?? Do you feel that it is working four you?
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I've been taking humira since July 09, together with the injected meth. They subdue the worst of my PsA (which I guess is a good thing) but, thanks to the OA in my knees and ankles, I am not really aware of the benefit. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thats a long time, great that it take of the worst of your PsA.

    Hope that your OA get some effect from it too.
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hello Kathe

    So sorry to have come so late into this post but just wanted to say that I hope so much that the Cimzia starts to help you soon. If the injection site reaction bothers you, do check with the doctor. I used to have very bad injection site reactions when I was on Humira and the doc suggested that I took a "loratadine" anti-histamine tablet before the injection and one daily for a couple of days after if needed and that made all the difference.

    Thinking of you.

    Tillyxxx
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you four the answer. Going to see my doctor tomorrow, going to ask about the reaction on the injetion place. Don't have reactions like this whit enbrel. Thank you so mutch.people are so helpful here.
    Not having a great time now, going to take the second 2 injetions of cimzia on wednesday. But henging in there whit prednisolon and pain meds. But don't like the prednisolon at all, but don' have a choice now.
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I'm sorry you're having problems with the injection site, kathe. I hope things go better for you on Wednesday.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank four the support. :-)great having people here that understands..that really help.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Been to my doctor to day. She think that I shall take cimzia one`s more and see if I get an reaction then..So I`ll see at Wednesday ....Took new blood test to day...hope that they are better than last time, get the answer tomorrow.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Not having a great time at the moment. Hate this waiting time intil the cimzia kicks inn. :(:(
    Called my nurse and going to take more prednisolon and pain meds. Don't like this at all. Now taking 20 mg pred. Really feels like nothing is helping, but have to give the cimzia time to work. But get so frustrated ,it is so hard. Sleeping is a nightmare, wake up all the time in pain. Sometimes youst laying in bed crying.
    Really hate this.. The moost pain are in bouth knees and ankles. .and it don't help that I'm going to work on wednesday. But I have to.
    Really having a hard time holding on and puting on a breave face. Really youst feel like crying inside. .
  • Petitesse
    Petitesse Member Posts: 62
    edited 30. Nov -1, 00:00
    Hi Kathe,

    I am very sorry to hear you are in so much pain and can't sleep. Sending you some (((hugs)))

    I will be starting on cimzia too soon. At least if my liver counts return to normal. I was on remicade for 3 months and it started working immediately. Got the meds on friday and felt like I was cured on monday. But it only lasted 1 1/2 month and has messed up my liver counts.

    The only other thing that has helped me when the pain has been really bad is Tramadol. It makes me feel like I'm on another planet, but it helps me sleep. Have you tried that?
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you,
    you moost ceep my posted about your effect whit cimzia. Hopes your liver counts is good so you can start.
    whit enbrel it took mounts before the effect kicked in,but after a whille it stopt working four me.
    Havent taken tramadol, I'm norwegian, will check next time I see my doctor. I take ibux 600 mg and paracet 1g, to help the pain.
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hello Kathe, oh my word you do sound very fed up. I cannot help in anyway but I do remember those feelings so very well. Over the years I have learned to expect nothing from any drug and that saves me from the disappointment of not a lot happening very slowly. I hope the cimzia soon begins to improve matters but there is no such thing as a long-lasting quick fix in the ghastly world of auto-immune arthritis. Keep your chin up, keep fighting, stay as positive as you can - I am thinking of you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you,
    yes, I am really feed up. Feels youst like before I started biologic meds and thats not great. Now I olso got water in one knee, don't like that at all. It was all going so fine four a while, there was some side effect issues, but feel likes I 'm in the begining again. Sometimes it gets to mutch, great having you people her then. Because not many of my friends understand..
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    kimbo69 wrote:
    right today i feel fantastic alot more flexible im having high hope for this, only injected it yesterday which was 2 doses of cimzia into my stomach for the first 3 times and then after that it will just be 1 injection every two weeks, but god im on a mission today :D actaully got dressed and made an effort with my my appearance which is a big change ,The nurse came to my house to make sure l did it properly and said 2 out of 10 people feel the effects the next day but it normaly takes 2 weeks to get the best out of it ,l have rheumatoid arthritis in most joints & also osteo arthritis in my spine and neck , they are not sure if it will make my osteo much better but should make a huge improvement to the rheum , l know the sleeping is the worst and all the drugs just make you feel like a space cadet which i cannt take as i drive for a living l still have to take diclofenac 75mg and sulfasalazine 500mg for another 3 months but hopefully that will stop once the cimzia is right into my system along with pain killers dihydrocd which l take only when i cannt bare it as they are highly addictive


    Haven`t heard from you and youst wondering ho you are doing??
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Petitesse wrote:
    Hi Kathe,

    I am very sorry to hear you are in so much pain and can't sleep. Sending you some (((hugs)))

    I will be starting on cimzia too soon. At least if my liver counts return to normal. I was on remicade for 3 months and it started working immediately. Got the meds on friday and felt like I was cured on monday. But it only lasted 1 1/2 month and has messed up my liver counts.

    The only other thing that has helped me when the pain has been really bad is Tramadol. It makes me feel like I'm on another planet, but it helps me sleep. Have you tried that?

    Have you started cimzia now??
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Kathe, these meds can take a while to get going but if even 20mg of pred isn't helping then that is not good. Be patient, even though the humira had a rapid effect on my inflammation markers it hasn't helped much in any other way but I do know it is helping to suppress the disease. Is there any way you could take some time off work so that you can rest properly? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Thank you, have tought the same thing. And it is not sure I`m beeing out here four the hol 14 days I`m supost to...But I see on monday /tuesday if the antibiotic has help. Because if it hasen`t I have to go home and get some other antibiotic...but I`ll see...
  • Petitesse
    Petitesse Member Posts: 62
    edited 30. Nov -1, 00:00
    kathe wrote:

    Have you started cimzia now??

    Hi Kathe,

    No I still haven't started. I had the blood tests 2 weeks ago to see if my liver is better, but I haven't heard anything from the hospital.

    Is there still no improvement for you?

    And what about the antibiotics - have they worked yet?

    Usually they work in about 1 or 2 days. That's why the doctors always remind you to take the whole course, even though you feel better.
    Idealy they should culture the bacteria and test different types of pennicilin to see what will help and chose the mildest kind.
  • kathe
    kathe Member Posts: 183
    edited 30. Nov -1, 00:00
    Oki..hope you can starts soon then.
    I haven`t had an effect of the cimzia yet, but haven youst taken it 2 times. And hade one time whit to injetions let that I will take on wednesday. Then the periode of 2 injetions is over and it is youst 1 injetions every 2 weeks...The reuma sad that it take from 12 weeks to 3 months before it kick in...So I have youst been on it 5 weeks now, 6 on wednesday...

    The infection is not clared , but have 3 days left on antibiotic..Going to take a new urin test on tuesday to se ...:)

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