Trying hard not to complain but . . .

suzygirl

I need some words of wisdom please. I have plenty to be grateful for, but I am struggling and feeling really stressed.

I had my back injections and they have helped. However as the pain was so great, it prevented me from doing certain things. So I am trying to do those things and discovering I still can't . I have pushed myself, overdone it and triggered a flare, amongst other things.

I went to the shops and walked with my walker and suffered the most horrific nerve pain in my legs :shock: I wanted to tear my skin off, the nerves inside my leg were itching and on fire at the same time. It was horrible.

I still have the muscle weakness, and other joint pain. It appears I may have had unreasonable expectations of my 'magic cure all' back injections. I am feeling my other back pain a lot more and my neck is agony for some reason (blaming the chill and damp of autumn :x )

I had my eye appt on Tuesday to see why the vision in my right eye is grey to discover yet again it is a symptom seen in Multiple Sclerosis patients and am I sure I don't have it? Yes, absolutely. Well, you need more tests to see whats going on.

I have my ENT appt on 26th to see if the dizziness & deafness preventing me from driving are actually menieres disease.

Nothing has changed but I am not dealing as well with it all. I need a kick up the proverbial please. I am sorry to complain, it seems so trivial but it is overwhelming today. I am finding it hard to rest, which is what I need, but so many things need doing which makes everything worse. :roll:

Thanks if you made it this far!!!! :roll:

julie47

Oh dear suzy I am sorry that your spine injections haven't worked as you expected but don't be hard on yourself and try to take things a little slower. There are a lot of things that we can't do and it is so frustrating. I stripped the bed today and it took ages but I can't make it so my OH will do it tonight. Can you ask one of your family to help maybe??
Can you maybe use some gadgets to help too?

I really do feel for you because you seem to be having a really bad time at the moment. I wish there was more I could say or do to help.

Try to rest and take care
Love Juliepf x

dreamdaisy

Ignore the things that you think need doing as they probably don't. They will still need doing when you're feeling more like doing them but doing them now will only further set you back in your recovery from this. You've been a twerp and overdone things, you are now paying the price so listen to your body. It needs rest. It needs rest so that it can begin to feel the proper benefit of these injections and to recover from your twerpness. The one sure-fire way not to reap the benefit is to overdo things - and you're not that much of a prat are you? Of course not, so rest now. And tomorrow. And Friday.

We all want the best results these treatments can offer and the feeling of utter dejection when they don't live up to our expectation is ghastly. You are facing the prospect of more and more tests to hopefully rule things out rather than in, and that in itself is stressful. You don't need a kick, you need a drop of understanding, a splash of reassurance and most of all an utter deluge of rest. As Nike say, Just Do It. (Not the chores, the resting.) Brace yourself: ((((())))) DD

frogmorton

Suzy

You DON'T need a kick up the proverbial at ALL!!

You need to remember your other health issues and be kind to our friend Suzy - we care about her and she needs looking after

Pace yourself if you can you do need to - it sounds to me as though you have enough going on with all those appointments ahead of you and possible investigations!

Suzy - HUGS from me and I really DO hope you feel even a wee bit better soon.

Love

Toni xxx

Numptydumpty

I'm really sorry you are feeling so bad.
I hope things improve for you very soon.
Thinking of you and wishing you well,
Numpty

numptynora

What the others have said...it is difficult to pace yourself when there are things to be done but, you know it makes sense.

Now do as you're told.....it's what my son says to me

Hope you feel a bit better after a rest

Numps xx

stickywicket

Sorry, Suzygirl, but I'm another who's refusing to dish out that kick, and not just because it'd hurt me too.

You know the others are right. You got carried away by the hope of the future and the frustration of the past. If we all had £1 for every time we've done that none of us would be here: we'd all be living it up at the destination of our choice.

Relax. Chill out. Give your body what it wants. The short term gain of a bit of housework done just isn't worth it. The same stuff will only want doing again tomorrow. (I remember having kids at home :roll: ) and what we all want for you is long term success.

You have a lot of stressful stuff going on right now and we all know what stress does. Don't minimise it. It's not at all trivial. The eye test, the ear test - these are scary enough for anyone but, for us, it's the fear of yet another bit dropping off and the implications if it does.

NOTHING NEEDS DOING. It'll all keep. Or someone else will do it, possibly - probably - not quite to our specifications but good enough. None of us is indispensible. The world will keep turning. Please rest. ((()))

suzygirl

A BIG thank you to all of you for replying. I admit I am in a tizz,and need to calm down. Probably due to other stuff in life taking over as well as my own bundle.

I am going to try and chill out this evening. An old friend came to see me this afternoon which was lovely to catch up and have a giggle.

I appreciate the support, I am finding it hard at the moment. I have dosed up on 'dullers' and plan to veg out with the tv.

Hope you all have a good evening.

frogmella

Hi Suzygirl,

I don't think you need a kick either. You have a lot going on.

How long is it since your injections? I remember about a week after mine I felt quite good and then day 10 I felt awful. I posted on another site trying to find out if that was it! Maybe I too had fallen into the "doing everything I could because I felt better" trap. I took it easy for a few days, worrying that this was as god as it would get and then I felt really better.

Even when I was feeling good I still got better once I did some physio too. I had quite a lot of muscle weakness in my glutes and quads along with tightness in my glutes too. I am still working on these ares, but mostly on loosening and not so much strengthening now the injections have pretty much worn off.

My surgeon said I had to be careful, that I wasn't "better" just better than I was. I am not allowed to hoover (yay!), do the dishwasher, garden etc. If I was naughty I felt it even when I felt good.

i do know what you mean about the "miracle" injections though. I am pretty down now that mine have worn off and my surgeon doesn't think I should have any more. He sees it as diagnostic and says long term I am looking at another fusion.

re the eye business, a few people on another site I read have mentioned that steroid injections can cause some eye problems. Not sure if it is relevant but it might be?

I don't think you are moaning at all. All these "little" things add up to become one big thing and it is hard to think clearly, espescially once you chuck a few dullers into the mix.

I hope you feel better tomorrow. ((()))

Helen x

valval

well reading that i did feel you were expecting to much of your self. you have been a long time in great pain and unable to move about much ,why did you feel the injections would make all well it takes time. your muscles will have to start working again and it will not be quick fix so take it steady pace your self the muscles will strenthen but it will not be over night little and often be kind to your self do not expect to much you will notice you can move better and longer but life is never straight foward so i will not be kicking you either good luck val

suzygirl

Helen and Val, I appreciate the understanding. I just needed some clarity and objectivity I think. I have been silly, doing things I shouldn't. The change of seasons brings the panic of tidying everything up for winter.

Youngest has gone back to school and the early mornings are not my cup of tea :shock: Also hubby is around as his work is quiet and that is difficult in a strange way. :roll:

Just feel too much is going on and I am panicky. You have hit the nail on the head, my muscles are really complaining. I think I may need physio to get posture properly sorted as I know I held myself 'funny' due to pain. Plus muscles in my leg are weak from nerve problems due to disks.

Really, I am down to earth with a bump. Hubby says I thought I would be in a mask and cape saving the world after my jabs Which it seems is pretty accurate! :roll:

So today my dizziness and vision is quite bad, I am tired and joints are groaning. I am going to try and rest.

Thanks everyone for listening

mig

Really really hope you feel better soon.Mig

dreamdaisy

I erred and I apologise. I meant rest tomorrow (now today) and SATURDAY. I have no excuse apart from being blonde. Ye gods. :oops: DD

suzygirl

I hadn't noticed what does that say about me? :oops:

skezier

Hi Suzy

I hope today will be kinder to you and you feel a bit better? Leaving a bucket of understanding and another of hopes with a (((((( ))))) and a sachet for Izzy Cris xx

stickywicket

Thinking of you, Suzygirl. I hope it's a bit better but KEEP ON RESTING

bubbadog

Oh suzygirl, I feel aweful for dumping the 'book club' on you while I was away on hols. I hope dealing with that didn't bring on anything. If you ever feel not well and can't help please let me know.
I hope you are getting plenty of rest and you have every right to feel rubbish! Arther is an evil devil and brings you down and sucks the life out you! I am terrible at thinking I can do a hundred things at one when I'm having a good day and go to bed and wake up feeling like I'd had a body swap with a punctured blow up doll! And my smart inner me lectures me on over doing it and pacing myself! We all do it suzygirl!! Now you rest up recharge your battery, do some reading and nothing too dirty!

suzygirl

Thanks, I am trying to rest today. Bubba, the book club is no problem at all, so don't worry.

dreamdaisy

Hello Suzy, I hope things are going better for you today. I am thinking of you. DD

tillytop

Thinking of you loads Suzy.

Lots love Tilly xxx

suzygirl

The nerve pain in my legs is awful and my walking is really bad. I am climbing the walls, dullers are not touching it. Hope this doesn't carry on. Can't see why it is worse either.

Any tips?

stickywicket

No tips at all, I'm afraid, just hopes and wishes.

I've just thought of some - probably silly - suggestions. Would a bath help? A good leg massage from Mr Suzygirl?

Sorry, I'm stumped. I don't get nerve pain.

suzygirl

Sticky, I feel like crying. My walking is awful and the pain unbearable. I am even contemplating A & E! :shock:

I just hope the injections haven't made things worse. I need to rest, but everything needs doing. P.E kits, etc. I may have to go to bed, they seem to understand just how bad things are then. :roll:

stickywicket

Suzygirl, go to bed. My experience of PE kits is that, after the first game of rugby, they're never clean again. And, even if you wash 'em and fold 'em, they will instantly be screwed up into a bacteria-ridden corner of the rucksack.

Have you thought of ringing NHS Direct? I've never forgotten them once advising me on an abcess under a tooth. I was taking the usual stuff but they suggested neurophen saying it worked better for toothache than the others. It did. It got me through Sunday until I could see the dentist on Monday.

Please just rest. It's amazing how families cope without us. And a few of these ((()))

RitaW

Hi,Suzygirl,I do hope you get some help to relieve the awful pain you are in.As others have said,try to rest as much as possible.x

barbara12

Oh Suzy
I am sorry I missed this, I do wish you well and hope you get some relief very soon....(((((()))) xx just a point, I have gone to A&E quite a few years ago now, and was given a steroid injection in my bum...it worked wonders for a couple of weeks...