vitamin B problems

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Comments

  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    The following link was given on the National OP Foundation forum in reply to a question about whether someone could have a B12 deficiency, because of the classical neurological symptoms the person was having, yet his blood count appeared normal.

    I did not understand it all and it was a bit scary in parts but in my opinion very useful information to store away as it would appear many doctors are not aware if this.

    http://www.youtube.com/watch?v=BvEizypoyO0&feature=player_embedded.

    All doctors and lab staff should view it.

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • Numptydumpty
    Numptydumpty Member Posts: 6,417
    edited 30. Nov -1, 00:00
    Thanks Elna, that's very interesting, and to me, a pescetarian in her late 50s, quite scary.
    I agree, all doctors should see this!
  • As5567
    As5567 Member Posts: 665
    edited 30. Nov -1, 00:00
    Hi, sorry to hear you have been feeling so bad but I'm glad I've found this thread. I have been having lots of problems with mouth (painful lumps on tougne and ulcers) feeling more tired than usual and weird dizzy and vision spells. The doctor I have been seeing in the maxofacial department mentioned vitamin b12 and anemia and sent me for bloods.

    I didn't get the bloods done on Friday so I need to get that done this week.

    hope u start to feel better soon there is nothing worse than being exhausted with arthritis

    take care
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Thanks Elna, that's very interesting, and to me, a pescetarian in her late 50s, quite scary. I agree, all doctors should see this!

    Yep, all doctors should watch this. I feel like sending this link to my local surgery and hospital but do not quite dare! I learnt a new word just now! Pescetarian. I ADORE fish but have gone off shell fish because in the past it has not agreed with me, with disastrous symptoms, albeit for a short while, but most unpleasant while it lasted. :mrgreen:

    Enjoy the day :)

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Thanks for the link Elna very interesting...
    Poor Tony..I do hope the injections kick in very soon...then hopefully you will feel much better...its good that they have picked up on this for you..take care xx
    Love
    Barbara
  • LignumVitae
    LignumVitae Member Posts: 1,972
    edited 30. Nov -1, 00:00
    Hey Tom

    You just solved a little query for me, thank you! Ive had mouth ulcers, been breathless and started going dizzy whilst also being tired. The doc queried anaemia but I kind of just ignored it...maybe he was right!

    Tony, still thinking of you and your red injections, hope they soon kick in. Love LV xx
    Hey little fighter, things will get brighter
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    Bless you all..
    I'm still the same at the minute. Sleeping pretty much the whole time. Barely eating still :roll:
    I've kicked myself up the bum today and got out of the house. Visiting grandma right now. She's very down. .
    She's on a dementia ward and the natives are restless. Lol
    We don't think grandma actually has dementia. She's just old and forgetful.
    Dementia is a dreadful thing. The poor folks on here. .

    I'll look at that Link Elna. Thanks hun.
    You are all very kind.

    Oh, also, I've had a really sore tongue lately. Probably all connected.
    Had two injections so far, third one tomorrow.
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Tony

    One of the patients on the link mentions a swollen tongue along with a host of other ailments and symptoms.

    I truly feel for you as so many of your symptoms appear to be linked to Vit B12 deficiency, since I watched the whole 45 minutes of the link, not understanding all of it as I mentioned before but, what an eye opener.

    I so hope that it gets sorted for you very soon, you do not deserve this, no one does and doctors MUST be made aware of B12 and what happens when patients become deficient in it.

    Bless you

    Love
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    you are a luv Elna.
    I admit, I've yet to watch the video as I've been sleeping lol

    I've just had my latest injection. . And got some surprising news. .
    I thought that after these injections I would be ok. .

    No.. that would be too easy.
    I will now be on these for the rest of my life. Usually monthly ones. . Shocked does not begin to cover it :roll:

    Oh bugger it... :x
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    The friend I wrote about earlier, who has pernicious anaemia, has to have these for life, too. Before diagnosis he was, literally, dying. About 12 years on, with his jabs and a good diet, he's fit and well.

    This is why I keep nagging you that you must eat :roll: It's not a matter of appetite but of fuel for the body. You can eat very healthily with little or no preparation.

    Here endeth the latest nag from SW to tjt :wink:
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Numptydumpty
    Numptydumpty Member Posts: 6,417
    edited 30. Nov -1, 00:00
    Oh Tony, no wonder you feel shocked! That is just what you didn't want to hear. I just hope the injections work, and you begin to feel better. You deserve a break!
    (((())))
    Thinking of you,
    Numpty
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    That sucks finding you have to be on them for the rest of your life Tony but, hopefully, they will make you feel much better. Please look after yourself though, as the others have said.
    Christine
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    thank you all.
    I am doing my best to eat as much as i can. Managed two chicken thighs for tea..
    I also had my blood test today, nurse said that she thinks I am anaemic judging by the blood... Will know more in a few days.
    I am just sooo bloody tired.. I know that I need to knock the self pity off but this has been a bit of a shock..
    You are all lovely lovely people..

    Thanks again.
    Xxx
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    (((((((((()))))))))). Mig
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Toni

    The not eating much is another symptom. One lady on the link said that she felt hungry and after a couple of mouthfuls of food could not eat anymore. The awful tiredness and sleeping most of the time is another one. Poor you, my heart really goes out to you. It is dreadful that you have been deteriorating in this manner with all these symptoms and no one realised what the problem was presumably because of their lack of knowledge about the importance of B12.

    Love
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    thanks Mig, Elna..

    I did watch a bit of that Link, but due to lack of concentration couldn't make it through the whole thing. It's pretty interesting though eh? And amazing what trouble it can cause.
    I'm getting confused a fair bit too.. Dreams are very realistic and weird at the same time.
    My whole upper body is tingling, especially my face.. very strange feeling.

    Thank you again.
    I'll try to keep popping in.
    X
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP