Got spots

mig

Hello everyone,as well as ra I have lupus which only shows up on skin not in bloods,its been nearly 8 years since i had an outbreak,10 months ago I started on humira injections along with hydroxy,I have a blotch on the back of right hand and small spots on forearms and chest ,not lots but enough to concern me,yesterday I should have humired but on advise I put it off and phoned rheumatology ,the result is not to do the injection and go to see consultant on Monday afternoon ,I hope I don't have to stop it as life's improved since I've been on it.Pocket duties will be appreciated . Mig

Boomer13

Oh Mig, Lupus too? I am sorry, that's really too much.

Pocket duties done.

xAnna

villier

Awe mig, as if you haven't enough to contend with, Lupus as well. I remember when the doc said to me when he thought I had it and know what you must feel like. I am in hospital on Monday getting my infusion but will be thinking about you very much, hope you are not in too much pain......................Marie xx (((())))

barbara12

Hi Mig
Aww bless I will have everything crossed for you that this is not a lupus flare..and you can continue with your meds...I remember how you saying how well it was working for you..please let us know how you get on xx

stickywicket

I hope you don't have to stop it too, mig, and wild horses wouldn't keep me away on Monday. ((()))

Susiesoo

I will be there, too, Mig. Will keep fingers crossed for you.

Susie

DebbieT

I've heard lupus can be really hard going, I'm really sorry I hope you'll get the all clear on monday ((((hugs)))) x

dreamdaisy

Oh beggur. Dammit, s*d it and 'sear' (anagram ). Oh Mig, this doesn't sound good, rest assured I will be in your pocket on Monday. DD

Megrose489

I'll be there too, mig. Hope it goes well.

Meg

suzygirl

Mig is Humira the same as Enbrel? If so that can cause lupus to flare unfortunately. I have SLE, do you have Discoid or SCLE? I hope it isn't the humira causing problems, when you have finally found a drug that helps. These auto immune beasts are a pig, always something to deal with.

I wish you well for Monday. What are you using for the rash?

mig

It's sle ,it's only ever shown up on skin bloods have always been negative ,I'm not using anything at the moment,I used to have dermovate . Mig

dreamdaisy

Hi Suzy, enbrel and humira are what my dad would have called 'same dog, different bit of string' but I say different dogs on the same bit of string.

Oh mig, I really hope that the humira will prove not to be the culprit. How are the spots at the mo? Spreading? Reducing? Still the same? DD

mig

They're still the same and still itchy. Mig

Toots

So sorry to hear you've been dished up another bad lot, Mig. Will be thinking of you on Monday x

kentishlady

Hello Mig. I'll be in your pocket too if there's room? Hope all goes well for you. Beryl. (((())))

applerose

I'll be there Mig. Hope all goes well on Monday.

stickywicket

I'm still thinking of you, mig. I hope it goes well today. ((()))

mig

Thanks Sticky,just getting ready,still a bit itchy and spots on hands and forearms,appointments not till 3.30 so goodness knows what time I will be home.
Just a little whimsy does anyone else keep a set of underwear for appointments or is it me . Mig

dreamdaisy

I apologise for not wishing you well earlier - I had a late start and then an outing. You will be done by now and I hope you have an answer. As regards the underwear, are we talking the little black lace numbers? Thought so. DD

barbara12

Hope its all gone well Mig...(((())))xx

stickywicket

mig wrote:

Just a little whimsy does anyone else keep a set of underwear for appointments or is it me . Mig

dreamdaisy wrote:

are we talking the little black lace numbers?

Lycra?

Toots

Thinking of you Mig, hope it goes well for you x

mig

So consultant said she has never seen a lupus rash that looked like what I have but has ordered the lupus blood test done,she said neither does it look like anything to do with the humira but have had usual bloods done .So it's now off to GP to see what they come up with,could possibly be a trip to skin clinic.So I shall have a nice warm shower pjs on and humira feet up cup of tea job done.
No not Lycra nor flimsy black things ,I go for comfort these days. Mig

stickywicket

I think that sounds like good news, mig. I do hope so. Enjoy the cuppa. You've earned it.

Boomer13

No, you're not the only one re the underwear....Keep a set just for that, not black, lace or lycra :shock: .

Could the spots be due to lupus vasculitis? I don't have lupus but have had various autoimmune phenomena one of which was vasculitis which caused red spots (petechiae) all over the backs of my hands wrists.

I've heard that lupus can do this too and it's different from the typical lupus rash.

Anna

dreamdaisy

Oh, spherical objects. I hoped you would be more the wiser but, as usual, this malarkey doesn't care to oblige. Dammit. My thinking is that a referral to dermatology is in order and I hope it comes through sooner rather than later. DD