Update ~ Moan

DebbieT

Hi all,

I've got OA , PsA & FM.

I'm not doing very well at the moment. I seem to be in a flare of arthritis & fibro The pain is stupid & I'm no novice to it. My meds & top Ups aren't touching it. I'm utterly exhausted, grumpy as anything & feel like I've got another chest infection starting.

My right hip joint is making an awful deep clunking noise wen it's moved from being in a bent position to straight. I'm used to grinding noises but not this, it's a bit disconcerting ... Suggestions/thoughts etc very welcome.

I saw the Respiratory Consultant last Wednesday.
I did really well in the breathing tests, I'm very lucky considering how long I was a smoker!!
Anyway he's decided to get an MRI of my chest as he wants to be absolutely certain there's no scarring from methotrexate (25-30mg) before he can give the all clear to my rheumatologist & dermatologist to put me back on it!!
It also turns out that my 'mild' asthma is actually quite a lot worse than any of us realised so I'll be starting another new inhaler along with the 2 I'm already on, fun :shock:

Well that's my update/moan over. Thanks coz I didn't wana moan to my family again, they put up with enough. ((((forum)))) x

Boomer13

Dear Debbie, sorry you are in a horrible flare and your MRI is going to have you waiting longer. Hopefully not too long....Not uplifting news for you.

I was glad to see your post, though. Sending gentle hugs your way,
Anna

DebbieT

Thanks Anna ... I figured it was safe at that time of night

Having no DMARD is probably why I'm flaring so yeah, it's grim. I'd rather he was 100% sure my lungs aren't scarred by mtx tho so I'll bare the pain. Luckily I'm alone in the night while everyones asleep so I can moan & groan to my hearts content!!

(((hugs))) Thank you.x

barbara12

Debbie I am so sorry you are suffering like this...there is nothing worse than pain that you cant get on top of...
You do seem to have a good team around you,much better to have the MRI and be on the safe side...please let us know how you get on...here's some very gentle hugs ((((()))) xx

DebbieT

Thank you Barbara. I think I'm pretty lucky too

Daily the x 2 150mg Tramadol SR etc usually help me stay on top of the pain but the top up meds for a flare of a 4th dose paracetamol & X 2 5mg tramadol fast release really don't do much good at all :?

Enough, I've got to stop whining!!

Thank you again & love reading how well ure healing (((hugs))) xx

barbara12

Debbie stop apologizing you are in pain haivng a rant will do you good.. and that is what we are here for to support one another..I hope you get some relief very soon..(((()))xx

DebbieT

Of course, thank you!! It's sometimes hard to allow the ranting to come out after trying to keep it minimized for the family :?

(((( )))) xxx

barbara12

Debbie it takes a while to let things out, like you say you learn to bottle things up ..the good thing is you are talking to people that understand some of what you are going through..must say its very quiet on here at mo...you look after yourself..xx

DebbieT

It is quiet!! I'd love to think of everyone in low pain with good mobility & out doing things they normally wouldn't but I fear it's more likely to be the opposite & the wet weather is causing too much pain & stiffness to cope with being online Big hugs.x

dachshund

Hello Debbie
I hope you don't have to wait too long for the mri they are very noisy but worth it. good luck.
joan xx

villier

Sorry you are in such pain just now Debbie lets hope you get that mri soon, sending some (((()))) hope you feel a bit better soon..........Marie xxx

DebbieT

Thank you Joan & Marie,

I've been off of it 6 weeks. My psoriasis is flaring now too. I've even got it on my nose & eyelid I've had it much worse than this tho so it's managable!

I had an MRI on my brain in May, I didn't do very well being confined for over an hour ... I REALLY hope it's much quicker than that one was!! Fingers crossed.

Thanks again (((( )))) xx

stickywicket

This is a safe place to let off steam, Debbie. You do a good job of supporting others so it's only right that we should support you when you need it. You've had a lot going on and managing to stop smoking in the middle of it all speaks volumes about your stamina and dedication. I guess something has to give and you've just reached a bit of a low ebb with it all. You'll bounce back. I'm sure of it. Meanwhile have a few of my specials ((()))

DebbieT

Aww thank you SW, that's so kind to say I'm just trying to follow the example that uve all shown me ... I'm not very confident yet, I'll keep trying Ure special hugs are gratefully received

I think ure right, I feel run down & my body certainly agrees :? I'll try & remember to moan in here but also to chill a bit, everything will happen in time!!

Thank you again ((((SW)))) xxx

Toots

Hugs Debbie, sounds like things are really stinky for you at the moment x

Just a thought, but there is the possibility that nicotine withdrawal is adding to your woes, I know everyone deals with it differently, but aches and pains and general malaise can be an effect that goes on for a good few weeks, not to mention your chest clearing which might make you feel you have another infection in the wings. Not that you can do anything about it lol, just thought I'd mention it in case you hadn't considered it a factor. I'm told fresh orange juice is really good for managing nicotine withdrawal, and since you're off the meth perhaps it might be worth a try?

Fingers all crossed for results of the MRI, how long will you have to wait?

DebbieT

Thanks toots I hadn't considered nicotine withdrawal!! I've noticed a difference in my temper ... For the worse :?

Fm (fibromyalgia) has all of those symptoms too except the pain is severe for me. I also get fatigue badly from fm but also PsA .... I'm getting it from all around, typical, maybe I should start again

I eat 2 small pots of homemade fruit salad daily, I make it with orange juice so I'm good with it but that may help explain why I've started to find it easier doing without nicotine replacement since week 2 of the 6. Cheers for that

I honestly don't know how long the MRI appointment will take as I had emergency ones for the brain cyst. Hopefully it won't be too long tho

Thanks x

Boomer13

I really think moaning on here is good for you I was sceptical at first but I seem to have worked through a bit of my chronic moaning since finding everyone here. I know you've read a fair number of mine.

As far as the actual pain-moaning goes, if I indulge at night I'm apt to get an elbow strategically placed in the ribs from spouse!! He hates the sound. So, it's better if I come on here at look for other non-sleepers!

Keep on moaning/ranting if needs be!
xxAnna

Toots

DebbieT wrote:

maybe I should start again

Erm no, I don't think so!! I'll be kicked out of here pronto if you do! x

DebbieT

I won't be Toots

Anna, hubby & I sleep in separate beds as he's got severe RLS so he'd need long arms to elbow me in the night

Thank you both x

DebbieT

Oh one of the GPs has changed me from ibuprofen to naproxen to see if it'll help my flare pain. Don't know much about it but I hope it does help wen I get it x

Boomer13

It worked better than ibuprofen for me Debbie, until inflammmation overtook the effect. Very caustic on the stomach though. I took the enteric coated version for 2+ years. I stopped it because of eosphagitis, ultimately (was taking multiple prescribed NSAIDS so can't blame it for that).

Hope it helps,
((()))Anna

dreamdaisy

I had nap for a couple of years but it wasn't much cop, I get on far better with diclofenac. I was also given a stomach protector - I hope you have too, Debbie, it's vital. DD

Toots

I've been on Naproxen for 3 months now, didn't think it was doing any good so stopped for a few days - while I never thought it helped with the pain, I did find I was markedly stiffer on the few days off, so I'm back on it. I take omeprazole too to protect the tummy, hope they've given you something similar. Originally was prescribed Arcoxia with no inhibitor which was picked up later by a different gp, definitely a no-no. Hope they help! x

Toots

dreamdaisy wrote:

I had nap for a couple of years but it wasn't much cop, I get on far better with diclofenac. I was also given a stomach protector - I hope you have too, Debbie, it's vital. DD

I understood from a friend awaiting a THR that docs are trying to phase out diclofenac. She was taken off it and given Naproxen, but she didn't find it helped so quit taking them. She longs for her diclofenac back!

DebbieT

Thanks ladies

It's great to have feed back. I was put on lansoprazole originally wen my rheumy started me on daily ibuprofen but I've been on omeprazole for a while now. My rheumy won't prescribe diclofenac, she views it as not worth the risk.

The chemist freaked n said I can't take them with mtx it's really dangerous!? I know I'm currently off of it but I'm expected to return to it as long as the chest scan is scar free ... Tad concerned as he's not my GP :? I assume/hope that it'll be sorted by then. Maybe he's only prescribed it for the flare tho. Who knows.

Thank you all.xx

Toots

I'd be sure to ask about this if you get positive results back from your chest scan. In my experience pharmacists are the ones who know what they're talking about when it comes to mixing meds! Good luck! x