I could cry, I'm going out of my mind!!!

DebbieT

Hi,

I think frozen brain should be an actual medical term then
I'm afraid hubbys cognitive impairment is worse than mine so I have to attempt it myself with my delightful (can you read sarcasm?) sister, no doubt, going behind everything I do to ensure it's done correctly. I'd be happy if she'd let me miss out my step as it seems somewhat ridiculous but nope, not allowed!! :roll:

My skin has calmed somewhat today .... It's Pustular Psoriasis that has erupted My skin must be extremely unstable!!

Thank you all.xxx

stickywicket

There are several people on this forum who are, like yourself, going through different forms of hell right now that have nothing to do with arthritis but which make it all worse. All of you amaze me at the way you are managing to cope. I feel humbled and proud to 'know' you all and I have nothing but admiration for you. (((())))

dibdab

Hi Debbie,

Just calling in to send a few more of these ((((((((((((((( ))))))))))))).

Hope today is bearable, and tomorrow even better. Keep talking and we'll keep listening.

Deb x

Toots

Ah Debbie, you poor thing, just what you didn't need at the moment (although of course precisely why it kicked in now). Sending you very gentle hugs and hoping that your skin calms down a little. If I remember rightly, you're off your meds aren't you? Forgive me if I have that wrong - I hope that if you are you can perhaps get restarted soon and get things under control. As others have already said, grief comes in many guises and not to order, be kind to yourself and try to take it easy. More hugs xxx

purpleowl

Hi Debbie,

I'm so pleased things are slightly better today long may you continue to improve!

I only had one episode of the pustular thing it is highly unpleasant! I do feel for you. Have they tried you on mthx? I suppose that's a silly question?

Look after yourself,
Trish xx

PS So glad that I'm not the only one with a sister like that, snap!! :roll:

nearlybionic

Hi Debbie
Sorry to hear that you have been having a bad time with your skin. I haven`t had problems with my skin but I have nursed children with eczema and psoriasis who had been hospitalised for intensive treatment. I loved the coal tar treatments, as I love the smell!! (wierd I know!!) and we also used to give some children UV treatment for their skin at times. I hope your skin settles down soon and you get some relief from the symptoms.
It does sound like stress and grief can have an effect, as others have said. My cousin`s eczema really flares with stress too.
Take care x
NB

DebbieT

Evening all (not said in a PC Plod type of voice :shock: )

SW, I think I know who ure referring too, I find them inspirational as well. The strength, courage & good humour with wot they're facing amazes me & I too feel very proud to 'know' them

Again, many thanks for the support regarding losing my Dad & my skin.

I've had pustular psoriasis only once b4 & that was wen I had glandular fever & was taken off of mtx. In comparison to wot I get everywhere it's really very small it's just it's all over my hands so it's very frustrating!! The itching all over has gone from a 10/10 to 8.5/10 today ... Much more normal for me. I suffer from itchy skin even wen I'm clear of psoriasis thanks to Fibromyalgia :roll:

I've got a call in to my Dermatologist just to see if there is anything she wants to add or change b4 starting this Ciclosporin (Cyclosporine? It's spelt the 1st way on the info she gave me but I see it the other way more often.lol) It still isn't at my Drs yet tho so I'll be ringing the hospital pharmacy tomorrow.

The kindness, hugs & well wishes mean so much, thank you.

((((( ))))) xxx

dreamdaisy

I get the pustular form on my soles and palms but the flakes on my ankles, scalp and elbows. I hope both kinds won't spread by knowing my luck . . . . which ran out aged around seven . . . . .


I hope the cyclosporin works (or at least helps). As with all the meds it may take some time to make a difference so be patient, yes? DD

DebbieT

Morning DD,

Yes definitely, patience is a must with all of these illnesses I have about 85% coverage of plaques over my body so ud think I'd be pretty blazè about my hands being involved ... I don't know why it has bothered me so much!! The itching, overall, is wot gets to me the most followed closely by the pain.

My Dermatologists secretary just rang, she wants me on the Ciclosporin NOW due to the on going instability which has caused the pustular .... Unfortunately, according to the hospital pharmacy, it won't arrive at my surgery until tomorrow :? She's worried I may end up quite poorly with .... I can't remember wot she called it. I've gotta watch my temp & keep my fluid intake up, above normal!!! Wonderful

Roll on tomorrow. That's my patience out the window :?

xxx

maria09

Hi Debbie
I'm so sorry you are having such a nasty time
I'm hoping things improve for you soon
(((( ))))
Maria

purpleowl

Hi Debbie,

so sorry you are so poorly, life can be a bitch!!
You are in my thoughts,

Trish xx

villier

Hope you can hang in there until tomorrow Debbie and the new meds kick in quickly.................Marie xx

stickywicket

I'm thinking of you, Debbie. I hope you get the meds and they work asap.

purpleowl

Hi Debbie,

I've been thinking about you, I am routing for you (is that the right word or is that what stags do? ) and hope you are feeling better today, don't grow antlers!! :roll:

Trish xx

DebbieT

Hi ya,

I've been staying off a bit coz I was sick of my own whining!! :roll:

Trish I believe its 'rooting' As for growing antlers .... I think devil horns are closer at this particular 'time of the month', for me

The new meds FINALLY turned up at the Drs at 2pm but I can't take them until I take my night time meds ... It's not so bad its only put the count up to 14 & it was 21 tabs a night 18 months ago so I know I can cope

Thank you all once again for the wonderful support ((((( )))))

xxx

stickywicket

You don't whine, Debbie. You've had a very tough time recently and you've told it like itmis but with no trace of self-pity at all. Please don't stay away if being here helps. I hope the new meds do the trick.

thistlegirl

Hi Debbie,

((((((Gentle hugs coming your way))))))

I hope you have told your sister you need a few days off to get this under control. Time to look after yourself, it sounds like she is there to help your mum for the stuff that is needed? You ending up even more poorly is only going to upset your mum so you are helping in the best way you can by getting yourself better. Only my opinion as thankfully I have no experience in this grief so far and can barely dare to imagine what you are going through at this time.

As you know I am a new member of looking after me first but I am happy to let you join the club. I think you get a VIP pass too, you have earned it!

Listen to your heart and listen to your body - I think they are both trying to tell you something. As you know I have issues with brains, they seem unreliable from my recent research :P

Here's to ciclosporin working wonders for you

Jenny

DebbieT

Sw & Jenny Thank you both ((((( )))))

I haven't been to Mums since last Saturday, thankfully she understands!! We've spoken on the phone daily & she knows I'll go around if I'm needed urgently but I'm in a state.

I had my flu & pneumonia vaccines this mornings ... I don't understand how/why they've said to expect to feel poorly for a few days as they aren't live vaccines?! Odd.

I feel far from VIP - ish Jenny.

I'm ever so tired ((((( ))))) Look after ureselves.xxx