Day 3 Ciclosporin

DebbieT

Hi,

Well it's day 3, as the title suggests.

My large plaques aren't layering skin as rapidly. This is fascinating to me coz I'd normally have a new layer of skin within 4 hours max a process that takes 'normal' people about 28days!! :shock: Some of the colour has drained out of them too but they're still very hot, they're also still very itchy which is a surprise as I've always thought it was the layering that caused the itching not the heat ... Live & learn

The pustular hasn't changed at all as yet in fact it's now up both forearms.

It's a decent start for 3 days I think

Thank you all for helping me thru the pain & itching lately (((( ))))

Xxx xxX

Kittkat

Nice one Debbie sounds like you are making progress

DebbieT

It does, Hurray!!

Thanks Kittkat

Xx xX

villier

Glad things seem to be on the up for you Debbie, lets hope it continues.................Marie xx

purpleowl

Hi Debbie,

I thought the skin layering and shedding was what caused the itching! Thinking of you and glad you have a little relief from the medication, hoping it will improve quickly.

Trish xx

dibdab

Sounds like it's going in the right direction-hooray!!!!!!!!!!!!

Deb x

DebbieT

Thank you ladies My fingers are crossed it continues to improve

Trish, thats exactly wot I thought too!! I'm wondering now if the heat plays a bigger part than I've ever realised?!
I must add I have fibromyalgia & one of my many symptoms from that is itchy skin ... Unlucky or wot

It hasn't made any difference to my scalp at all yet but its such early days still.

Xx xX

maria09

Hi
I'm glad you are improving although it is slow
Do you suffer any adverse reactions to cyclosporine?
I'm only curious as that might be the next stage of treatment for my daughters ulcerative colitis as nothing at the min seems to be helping
Maria

DebbieT

Hi,

I'm only on 250mg a day at the moment but absolutely no reactions as yet
I really hope it helps her if she does get put on it!!Xx xX

dreamdaisy

It's early days but things are sounding a little more positive which is a good thing. DD

DebbieT

My thoughts too DD

Xxx xxX

DebbieT

My Dermatologist is fab

She just rang to see how I'm doing & to check I'm not ill n avoiding hospital

She's pleased my plaques are being helped already but said Ciclosporin is the best treatment for pustular so it will definitely help very soon. She was so reassuring!!

How kind of the Head Clinician of a Dept to care enough to ring a patient at home!! Gives ya a warm glow eh

Xxx xxX

dreamdaisy

Wow, there are some lovely medicos out there and it seems you know one of them! I didn't know about the cyclo being good for the pustular (that's what I get on my palms and soles) but my P is being pretty well controlled by the meds I take. I am so pleased that things are getting better, long may it last, yes? DD

DebbieT

Absolutely DD
*If only it helped the itching too but I'm being greedy now*

I am extremely lucky that I see her, I've been very frustrated in the past wen she took me off of mtx coz I had Glandular Fever. I knew it was for my own safety but the flare was worse than this one I'm in now, I stopped moaning so much once she explained I could end up in ITU with liver problems!! :shock: :oops:

I'm very grateful that she hasn't given up on me!! It's a shame I don't have the same stability with a Rheumatologist :?

Xx xX

stickywicket

I'm late to this, Debbie, but I, too, am very pleased. I do hope it all continues in this vein.

DebbieT

Thank you SW, I knew you'd be pleased

Xxx xxX

Toots

Hurrah, great news Debbie I hope things continue to improve x

DebbieT

Thanks Toots.

Have you heard anything regarding ure 1st appointment yet?Xx xX

Toots

No word yet Debbie, by rights I should hear in the next week or two if they're sticking to their 12 week expectation :roll:

purpleowl

Hi Debbie,

so glad that you are feeling better. What a wonderful dermatologist, hold on to her!

Trish xx

DebbieT

I intend to Trish ... She's my root to biologics too She's realised, now my rheumy consultant has left early this year, that I'm being totally left to cope with no help from them, bless her!!!

Toots, I'll keep everything crossed. It may be worth ringing & chasing it up

Xxx xxX

DebbieT

A quick update.

Even the pustular psoriasis are now dying down as is the worst of the itching!!
I feel so blessed right now

Xxx xxX

purpleowl

Hi Debbie,

I'm so happy for you I know the misery of psoriasis!

Long may it continue to improve!

Surely you won't be left without a rheumy to support you, is he not being replaced?

Have a great weekend,

Trish xx

barbara12

Aww that is good news and you deserve a break..long may it continue. xx

thistlegirl

That is great news Debbie, I did note the time of the post though :roll:

I am so glad to hear it is working, your doc does sound great, and as you said she seems to to be picking up the slack for the other guys.
Sometimes you wish you can say more than thank you to these doctors that do that little bit more, calling us at home late at night, researching new medications-chasing up other doctors who have forgot about us.

glad to here you are improving and hopefully resting lots and lots!?!

Jenny

dreamdaisy

Blimey, that is wonderful news, I am very pleased for you. DD