Day 3 Ciclosporin

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DebbieT
DebbieT Member Posts: 1,033
edited 31. Oct 2013, 03:29 in Living with Arthritis archive
Hi,

Well it's day 3, as the title suggests.

My large plaques aren't layering skin as rapidly. This is fascinating to me coz I'd normally have a new layer of skin within 4 hours max a process that takes 'normal' people about 28days!! :shock: Some of the colour has drained out of them too but they're still very hot, they're also still very itchy which is a surprise as I've always thought it was the layering that caused the itching not the heat ... Live & learn :)

The pustular hasn't changed at all as yet in fact it's now up both forearms.

It's a decent start for 3 days I think :D

Thank you all for helping me thru the pain & itching lately (((( ))))

Xxx xxX
Healing Hugs
Debbie.x
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Comments

  • Kittkat
    Kittkat Member Posts: 309
    edited 30. Nov -1, 00:00
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    Nice one Debbie sounds like you are making progress :D
    How am I gonna be an optimist about this?
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    It does, Hurray!! :)

    Thanks Kittkat :D

    Xx xX
    Healing Hugs
    Debbie.x
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
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    Glad things seem to be on the up for you Debbie, lets hope it continues.................Marie xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
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    Hi Debbie,

    I thought the skin layering and shedding was what caused the itching! Thinking of you and glad you have a little relief from the medication, hoping it will improve quickly.

    Trish xx
  • dibdab
    dibdab Member Posts: 1,498
    edited 30. Nov -1, 00:00
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    Sounds like it's going in the right direction-hooray!!!!!!!!!!!! :D

    Deb x
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    Thank you ladies :D My fingers are crossed it continues to improve :)

    Trish, thats exactly wot I thought too!! I'm wondering now if the heat plays a bigger part than I've ever realised?!
    I must add I have fibromyalgia & one of my many symptoms from that is itchy skin ... Unlucky or wot :lol:

    It hasn't made any difference to my scalp at all yet but its such early days still.

    Xx xX
    Healing Hugs
    Debbie.x
  • maria09
    maria09 Member Posts: 1,905
    edited 30. Nov -1, 00:00
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    Hi
    I'm glad you are improving although it is slow
    Do you suffer any adverse reactions to cyclosporine?
    I'm only curious as that might be the next stage of treatment for my daughters ulcerative colitis as nothing at the min seems to be helping
    Maria
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    Hi,

    I'm only on 250mg a day at the moment but absolutely no reactions as yet :D
    I really hope it helps her if she does get put on it!!Xx xX
    Healing Hugs
    Debbie.x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    It's early days but things are sounding a little more positive which is a good thing. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    My thoughts too DD :D

    Xxx xxX
    Healing Hugs
    Debbie.x
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    My Dermatologist is fab :D

    She just rang to see how I'm doing & to check I'm not ill n avoiding hospital :lol:

    She's pleased my plaques are being helped already but said Ciclosporin is the best treatment for pustular so it will definitely help very soon. She was so reassuring!!

    How kind of the Head Clinician of a Dept to care enough to ring a patient at home!! Gives ya a warm glow eh :D

    Xxx xxX
    Healing Hugs
    Debbie.x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    Wow, there are some lovely medicos out there and it seems you know one of them! I didn't know about the cyclo being good for the pustular (that's what I get on my palms and soles) but my P is being pretty well controlled by the meds I take. I am so pleased that things are getting better, long may it last, yes? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    Absolutely DD :D
    *If only it helped the itching too but I'm being greedy now*

    I am extremely lucky that I see her, I've been very frustrated in the past wen she took me off of mtx coz I had Glandular Fever. I knew it was for my own safety but the flare was worse than this one I'm in now, I stopped moaning so much once she explained I could end up in ITU with liver problems!! :shock: :oops:

    I'm very grateful that she hasn't given up on me!! It's a shame I don't have the same stability with a Rheumatologist :?

    Xx xX
    Healing Hugs
    Debbie.x
  • stickywicket
    stickywicket Member Posts: 27,717
    edited 30. Nov -1, 00:00
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    I'm late to this, Debbie, but I, too, am very pleased. I do hope it all continues in this vein.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    Thank you SW, I knew you'd be pleased :D

    Xxx xxX
    Healing Hugs
    Debbie.x
  • Toots
    Toots Member Posts: 483
    edited 30. Nov -1, 00:00
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    Hurrah, great news Debbie :D I hope things continue to improve x
    Toots x
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    :D Thanks Toots.

    Have you heard anything regarding ure 1st appointment yet?Xx xX
    Healing Hugs
    Debbie.x
  • Toots
    Toots Member Posts: 483
    edited 30. Nov -1, 00:00
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    No word yet Debbie, by rights I should hear in the next week or two if they're sticking to their 12 week expectation :roll:
    Toots x
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
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    Hi Debbie,

    so glad that you are feeling better. What a wonderful dermatologist, hold on to her! :D

    Trish xx
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    I intend to Trish ... She's my root to biologics too :D She's realised, now my rheumy consultant has left early this year, that I'm being totally left to cope with no help from them, bless her!!!

    Toots, I'll keep everything crossed. It may be worth ringing & chasing it up ;)

    Xxx xxX
    Healing Hugs
    Debbie.x
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
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    A quick update.

    Even the pustular psoriasis are now dying down as is the worst of the itching!!
    I feel so blessed right now :D

    Xxx xxX
    Healing Hugs
    Debbie.x
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
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    Hi Debbie,

    I'm so happy for you I know the misery of psoriasis! :cry:

    Long may it continue to improve!

    Surely you won't be left without a rheumy to support you, is he not being replaced?

    Have a great weekend, :D

    Trish xx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Aww that is good news and you deserve a break..long may it continue. xx
    Love
    Barbara
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
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    That is great news Debbie, I did note the time of the post though :roll:

    I am so glad to hear it is working, your doc does sound great, and as you said she seems to to be picking up the slack for the other guys.
    Sometimes you wish you can say more than thank you to these doctors that do that little bit more, calling us at home late at night, researching new medications-chasing up other doctors who have forgot about us.

    glad to here you are improving and hopefully resting lots and lots!?!

    Jenny
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    Blimey, that is wonderful news, I am very pleased for you. :D DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
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