Day 3 Ciclosporin

2

Comments

  • Toots
    Toots Member Posts: 483
    edited 30. Nov -1, 00:00
    Thanks Debbie!

    So happy this seems to be working for you! Long may the lack of itch last! x
    Toots x
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    Thanks everyone :D

    I was quite surprised, very pleasantly tho, to find all psoriasis much flatter & slightly paler again today :D I wouldn't have believed it if I hadn't seen it with my own eyes & all within 6 days!!! Shockingly wonderful :lol:

    The support, as always, has been amazing & so gratefully received (((((( ))))))

    Xxx xxX

    *Jenny, I'd fallen asleep earlier in the night & woke around 0030, I fell back to sleep about 0700 hrs :) *
    Healing Hugs
    Debbie.x
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Excellent news, Debbie. I am vert pleased for you :lol:
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • dibdab
    dibdab Member Posts: 1,498
    edited 30. Nov -1, 00:00
    It's great to hear good news, so pleased that things seem to be settling down for you.
    :D
    Deb
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    Hi,

    Today my plaques are scaling faster, still a lot slower than normal mind you. I also have a few pustules popping back up & a few new baby psoriasis!! :shock:

    I had a dermatology appointment thru for 20th Nov today so that's good news, it's not too far away. It's a shame my stubborn skin is fighting back against this new treatment tho :(

    I wonder if it will mean a higher dose or she'll set the ball rolling on Anti TNF's .... Should be interesting!! ;)

    Xxx xxX
    Healing Hugs
    Debbie.x
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
    Awe hang in there Debbie until the 20th wont be long and coming round a few of these to keep you going (((())))......................Marie xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
    O bother Debbie!! However your new appointment isn't too far away. Thinking of you,

    Trish xx
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    hi, just popping in to see how you are doing.

    I don't know much about the skin stuff but it sounds mostly good? hopefully the new ones are just your body's final push against the new med and things should continue to improve. they should have a good idea how it is going to behave by your appointment in november.

    ((((((fingers crossed)))))))

    jenny
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    Thank you all.

    I've definitely not lost hope but this dose is a bust I'm afraid, a big bust too. After 6 days I had a noticeable difference with all of it & by day 8 it's showing signs of re-growth with it all.

    I'm not as bad as I was b4 the med tho so I'm still grateful ... Just realistic ;)

    Xx xX
    Healing Hugs
    Debbie.x
  • Toots
    Toots Member Posts: 483
    edited 30. Nov -1, 00:00
    Ah blast it! :( Sorry to hear this hun. Maybe a increase in dose would sort you out? Hope you get sorted out very soon! Hugs x
    Toots x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I think Toots may be on the right track but we must remember that whatever we take doesn't permanently remove the problem. It might be a matter of tweaking the dose, or perhaps adding another immuno-suppressant med. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    I shouldn't be surprised to be fair as my skin has always been very resistant to every treatment I've ever had, It even took 2 years of 25/30mg dose of methotrexate to just about clear it, she said thats unacceptable!!

    My hope is she'll up the dosage but decide to start the process of getting me on a biologic too but I'll take wot I'm told wen I'm told, I'm a good girl like that ;)

    Thank you both :)

    Xx xX
    Healing Hugs
    Debbie.x
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I'm sorry it's not working out quite as well as it seemed, Debbie. I just hope you can hang on to the 'some improvement' bit and maybe the next appointment will somehow bring some good news.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Kittkat
    Kittkat Member Posts: 309
    edited 30. Nov -1, 00:00
    Hello Debbie maybe an increase would help. But I found on methotrexate that my skin lessened at first, then grew back a bit and got a bit red but now it is nearly gone ( if that makes sense?) x
    How am I gonna be an optimist about this?
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    Yes it does make sense :) Unfortunately it took 2 years to clear me on a dose of 25-30mg methotrexate, that's why she's taken me off of it as well as my chest. It worked very well for the 1st 6 months then not so well & after having to stop coz of glandular fever it really struggled to control it.

    I'm definitely gona hang on to the positive in all this tho ... Its better than it was wen I posted about my skin driving me nuts :D

    Thank you SW & Kittkat, it's appreciated.

    Xxx xxX
    Healing Hugs
    Debbie.x
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
    Awe Debbie when you thought things were on the up, I am afraid I don't know much about the meds that you take so I cant give any advice just send you some (((()))) you have got such a positive attitude with all the dross that gets flung at you, lets hope it doesn't get as bad as it was before..............tc..................Marie xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
    Hi Debbie,

    keep those positive thoughts going!!

    Still thinking of you.

    Trish xx
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    hi debbie, popping in to check up you! :wink:

    are you getting some sleep, how is your skin doing. I have been thinking of you.

    hope you are feeling ok, whatever that means :roll:

    Jenny
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
    Hi Debbie,

    how is your psoriasis now? Hope the medication is still giving you some relief.

    Thinking about you.

    Trish xx
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hello, how are things gong now? These things can take time to be tweaked etc - hang on in there, it started well so let's hope it continues well, yes? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • jerrymouse
    jerrymouse Member Posts: 3
    edited 30. Nov -1, 00:00
    Hi Debbie, I am a new member and starting my 3rd month on ciclosporin , but for psa .
    I havent found it to help with the psoriasis really but am hoping to goodness it helps the psa as I had severe reactions to both mtx and sulfasalzine.

    I hope it helps your skin , I have had it for 50yrs so know just how nasty psoriasis is .
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    Hi everyone,

    Thank you all for your continued support, it's very much appreciated!!

    (((((best cheer squad EVER)))))

    It has flattened out again so I'm hoping the stress I had yesterday doesn't cause another round of pustular!!
    A good friend visited & she made me tell her everything from start to finish about my Dad, it poked a hole in that dam that had been holding it all in!! I cried & cried. That was her plan of course, I wish she'd warned me :roll:
    It was stressful but also a relief to know I was normal after all :lol:

    It's our 26th wedding anniversary today. Wen we married I was 17 & hubby just 19, we were told it wouldn't last well we sure showed them eh? :D

    I'm staying positive about this treatment coz it's still better than it was, it's not stopping new plaques popping up but the colour is draining from the big ones, the itching is minimal ... I can't complain to be honest!! :D

    Thank you all again.

    Xxx xxX
    Healing Hugs
    Debbie.x
  • purpleowl
    purpleowl Member Posts: 231
    edited 30. Nov -1, 00:00
    Hi Debbie,

    Congratulations on your wedding anniversary! You have done well. :D Are you doing anything on your special day?

    Hoping that your psoriasis keeps behaving itself. Have a great weekend.

    Thinking of you,

    Trish xx
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00
    Aww thank you Trish :)

    Yes, we had a lovely day & went for a gorgeous meal on the outskirts of Bradford-on-Avon. The food was delish, as it always is there :) All the kids were here wen we got home & the Grandson, it was noisy but perfect :D
    A rest day today as it was exhausting & I didn't sleep too well :roll: :lol:

    A few pustules have popped up today, there is NO doubt they are triggered by stress/upset now. It's quite managable tho so I'm fine about it. My calmness is thanks to all of you ... Uve been a massive help, truly!! I've noticed ive got a lot of peeling skin on my hands & toes, not sure wot that is, psoriasis maybe? Who cares ;)

    Enjoy ure week end :D ((((( )))))

    Xx xX
    Healing Hugs
    Debbie.x
  • lavenderlady
    lavenderlady Member Posts: 409
    edited 30. Nov -1, 00:00
    I myself suffer from both RA and OA, Lupus and Sjorgrens amongst other health problems what I am interested in is my sons girlfriend is on Cyclosporine her skin problems are bad but she's told its just her eczema, is this not correct? her skin is terrible and she's in a lot of discomfort is it a type of arthritis I've not yet read about I wonder lol

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