Rituximab??????? Advice please??????

loulou
loulou Member Posts: 7
edited 27. May 2014, 16:28 in Living with Arthritis archive
Hi everyone, I'm a newbie on here but sadly not new to ra,

My meds are and have been extensive to cut a very long list short lol!!!
Next stop Rituximab after after an poor reaction to Enbrel (etanercept).
Soooo....I just wondered if anyone has had it? What it did for you? Side effects?
I know what it says on the leaflets but getting the real world view from ra sufferers
could be good...or XXXX scary lol!!! Depends on your replies :o:lol:
Info can only help so I go into my appointment armed with relevant queries and questions.
Thank you!!!!
Loulou x

[Moderated for language. Mod B]
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Comments

  • loulou
    loulou Member Posts: 7
    edited 30. Nov -1, 00:00
    Thanks Ken,
    Will note your comments for my visit. :)
    Thanks,
    Loulou
    Xx
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    Loulou[/colour]
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  • dreamdaisy
    dreamdaisy Member Posts: 31,557
    edited 30. Nov -1, 00:00
    If you put rituximab into the search function on here any thread that mentions it will be brought up. Quite a few on here have tried it and their feedback may be of interest to you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • As5567
    As5567 Member Posts: 665
    edited 30. Nov -1, 00:00
    This drug made me very tired on the day of the infusion, mild headache and just generally feeling run down and horrible. After a very long and heavy sleep I would feel more or less fine the next day, just a bit tired.

    The drug never did any good for me and I had an infusion related reaction which meant I wasn't able to take the drug again, not to worry you though as soon as I let someone know I didn't feel right the infusion was stopped they gave me some drugs and I felt normal again within the few minutes. The people who give these drugs are very well at what they do so there is no need to feel scared about the small possibility of any type of reaction.
  • loulou
    loulou Member Posts: 7
    edited 30. Nov -1, 00:00
    Thanks for the advice, will do a search on here :D
    Loulou
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    Loulou[/colour]
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