Hi, Welcome!
A joint effort.
Starburst
Posts: 2,546 ✭
The joints and I started a new job today. Despite the career outlook appearing positive, they are wondering how on earth they are going to cope with working 9 'till 5.30 with a 22 mile drive either way, not to mention many miles driven when visiting service users.
However, I have told my joints that we have to pull together and get through this. I have told them that we're due a humira jab in a few days and that we always feel lousy when it's effectiveness is running low. I have told them that we can do anything we put our mind to. They remain unconvinced, the stubborn little beggars.
Both they and I are hoping that the rheum will agree to a weekly dose of humira when we have our appointment in September. It's a nice little drug with no side effects but it doesn't quite stretch across the fortnight.
Come on, body, we can do this together!
However, I have told my joints that we have to pull together and get through this. I have told them that we're due a humira jab in a few days and that we always feel lousy when it's effectiveness is running low. I have told them that we can do anything we put our mind to. They remain unconvinced, the stubborn little beggars.
Both they and I are hoping that the rheum will agree to a weekly dose of humira when we have our appointment in September. It's a nice little drug with no side effects but it doesn't quite stretch across the fortnight.
Come on, body, we can do this together!
0
Comments
Julian of Norwich
It sounds like, typical of you, it's a challenge but you can do challenges girl, you eat them for breakfast. That said, arthritis will out regardless of will power. The weekly Humira option sounds very sensible if you can get it. Personal experience has left me believing that it's best to talk to your employer and be open. I'm lucky to have a good relationship with my boss that definitely would be classed as a friendship out of work and in work (most days) so I'm fortunate enough to feel safe and comfortable talking about my limitations and needs. He is also clever enough to recognise that where I have physical difficulties they also bring a very unique insight that can be valuable in my job and must be a real asset in your job - few people look at the world from the perspective of struggling like we do. What I'm saying is don't sell yourself short and be honest. That way people will know how they can rely on you and your joints and come to value you even if that means that you might have to do things a bit differently to your colleagues. Good luck with all that driving - get that car as comfy as possible. Go and shine Sophie xx
Just one word of advice - I'd lay of the concoction named on your Chit Chat thread, until the weekend at least
Barbara
I know the first few weeks are going to be tough. My joints are very stiff and swollen which is making things that extra bit harder.
A small chocolate bar (not the best food for my stomach condition but hey ho, I've been good all day!) and an early night should brighten up my spirits. And no, definitley not the sort of spirits I drank last week.
May we have a weekend update please to see how your first week went? I'm presuming there will be quite a lot of lounging about in recovery going on at the weekend
I'm quite fortunate that my team spend a lot of time working from home, so once I know the job and once I get a laptop, my 'office' will be a lot closer! I know the next year or so will be a challenge. In particular, I think the next few weeks will stretch me in every way possible. I think the best strategy is to take it day by day and not to worry too much about the long time future.